Gi Apt - Endoscopy Scheduled For Next Week

[NotMollyRingwald]

Wow can't believe how well that went. I think. Lol

GI was on the up & up w/current Celiac/NCGS research, and immediately started talking about scheduling an endoscopy/biopsy (such a relief to me as I was very nervous about being brushed off). Apparently, my PCP was incorrect about my blood tests, or I misunderstood her interpretation. The only test she took (aside from the total IgA to verify I wasn't deficient) was the tTg IgA, which was negative (my level was 8, when range was <10 being normal), but the GI said that test could have been false neg as I had been gluten-free for 6 weeks when it was taken. He listened to my symptoms and concerns & did a brief physical exam of my mid section. Spent a decent amount of time explaining the basics of Celiac/NCGS (little did he know I had already been schooled by you fine folks ) and discussing other possible issues. They ran some additional blood work (thyroid and the celiac gene test) and were able to get me in for the scope next week! Only 5 more days of gluten challenge for this girl. Yahoooooooooooooo!!! *happy dance conga line*

One weird thing, when he was checking my stomach, my lower right quadrant hurt like heck when he pushed on it. I guess my face showed the pain, caz he asked me to confirm my discomfort. My lower left quadrant was tender, also, but the right side HURT. Anyone know or want to take a guess what that could mean?

[IrishHeart]

No guesses. Nor should I try. I just know I had SEVERE  abdominal pain for so long, it could just be gluten-related.

If it were your appendix, for example...you'd have screamed bloody murder and kicked him someplace he would have noticed.

and the pain would be constant. He may need to do a CT scan of the area. Let him decide.

 

Still think you have celiac (or NCGI) but what I really want to say is:

 

Kudos for being so brave for continuing this gluten challenge.

 

Kudos for finding a GI who "gets it". Hang in there and no matter the results, I do hope you will stay gluten-free as the gluten really seemed to cause you so much trouble.

 

And despite it all, you kept your sense of humor. Impressive as all get-out, In my book.

[NotMollyRingwald]

No guesses. Nor should I try. I just know I had SEVERE abdominal pain for so long, it could just be gluten-related.

If it were your appendix, for example...you'd have screamed bloody murder and kicked him someplace he would have noticed.

and the pain would be constant. He may need to do a CT scan of the area. Let him decide.

Still think you have celiac (or NCGI) but what I really want to say is:

Kudos for being so brave for continuing this gluten challenge.

Kudos for finding a GI who "gets it". Hang in there and no matter the results, I do hope you will stay gluten-free as the gluten really seemed to cause you so much trouble.

And despite it all, you kept your sense of humor. Impressive as all get-out, In my book.

Thanks, Irish. And lol at the "kick him somewhere he would have noticed. I'm guessing you meant his shin.

[IrishHeart]

Thanks, Irish. And lol at the "kick him somewhere he would have noticed. I'm guessing you meant his shin.

 ah yeah,  sure...that's what I meant