Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

Gluten Sensitivity? Opinions Are Appreciated!

3 posts in this topic

This is my first post although I have lurked here in the past.  I recently found out that geographic tongue is associated with celiac disease, and as I have had this since childhood, I'm thinking maybe I do have it!


My Timeline:

-Geographic tongue (constant since young age, not bothersome)


-2008: IBS-constipation (colonoscopy to rule out Crohn's; diagnosed as post-infectious IBS, after Salmonella infection 2 years before)

-extreme gas and bloating after meals (especially after having a sandwich with wheat bread) 


-10/2012: iron-deficiency anemia diagnosis. began iron therapy.

-11/2012: Became unable to drink tea or alcohol. Both would now make me feel 'weird in my head' (alcohol - bad kind of weird. also felt like i could feel it in my muscles. it was very strange.)

-12/2012: Began having really weird feelings after eating. Felt light-headed, dizzy, foggy (however, these symptoms went away after 2 weeks when I went back to school.)


-01/2013: Doctor suggested testing for celiac disease in addition to gluten-free diet for 3 weeks

-IgA test was negative

-Within a few days of starting gluten-free diet, I suddenly became lactose intolerant. I also couldn't handle fructose, as apples would give me bad gas. About a week later I was able to tolerate these foods again in small amounts.

-I noticed I was pretty bloated still throughout my gluten-free diet, which was disappointing, because I seriously look pregnant sometimes. When I started eating gluten again, I didn't notice any changes, and assumed I was not sensitive to gluten.


Now I am still bloated 24/7.  I am wondering if I should have done the gluten-free diet for longer than 3 weeks? Also, are there other blood tests besides IgA to transglutaminase? 









Share this post

Link to post
Share on other sites

Ads by Google:

Were you gluten free prior to the blood test?

That will give you a false negative result.


The other tests you asked about are:  DGP-IgA  and DGP-IgG



Later after you've done the Celiac blood test panel, you could try a digestive enzyme pill.


Share this post

Link to post
Share on other sites

Thanks, I'll look into the other tests and this digestive enzyme.


And no, I was not gluten free prior to the test. However, my normal diet doesn't have a ton of gluten in it.


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • I have not taken him to a dermatologist. I have dapsone, which I put on the rash, it always clears up. I have it for another family member. But then I started reading about celiac and all these dots are out there but not connected.  The next time he has the bumps, I am going to take him in. In the mean time, I am trying to find a dermatologist who understands the condition. I don't want my kid to have celiac. And I kinda feel crazy for thinking he may have a gluten issue but with it in my family and him having these other things, I want to be dilligent.   i will read up on the test you suggested. Thanks for taking the time to read and respond everyone.   
    • I tested positive to deamidated gliadin in August at a hospital. My old GI tested me using gliadin (the test listed on your result) in September and it was negative. Literally the next day, my new GI tested for deamidated gliadin again and it was positive (I was unaware the hospital scheduled an appointment with the new GI for follow up).  If you still suspect it, Google deamidated gliadin, print out the Mayo clinic lab info and circle the part where it says they have discontinued the use of gliadin in favor of the deamidated gliadin.  Has he seen a dermatologist?
    • He has a rash on his fingers from time to time. Angular Chetelis. Mouth sores. So skinny. Anxious. 
    • The blood test results are negative (and he had the complete panel).  No GI issues (per your posting).  What makes you suspect celiac disease?  
    • Hi WS, So sorry to hear your not feeling quite right just yet. I can relate! I believe in doing whatever is needed for you to be able to come to terms with the diagnosis, which it sounds like was given to you already but if you still need further evidence then do whatever is needed!  In regards to food, I am a pescatarian so I also don't eat meat but I get my protein from some seafood, eggs, beans, natural protein replacements, exct...I was vegetarian and found it extremely difficult on the gluten-free diet for my lifestyle. I found probiotics have really helped me but even now I still feel off days with my digestion and I think that just comes with having a digestive disease. I know what foods trigger it (Yes gluten-free foods!) and try to stay away. I remember the first month or so I was very sick from removing gluten, almost like withdrawal symptoms. Probably because I ate a lot of it prior so it was a shock. 3 1/2 years later, I still feel weak and light headed if I don't eat enough carbs/protein. Celiacs are known to have deficiencies already so your nutrition intake/supplements are super important! I hope your able to find peace with your health and get the answers your looking for! Let us know an update -Cristina  IG: ifitceliac
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member