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I've Been Gluten Free For One Year!

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Last May I had my celiac blood test panel and stopped eating gluten. Well, stopped intentionally eating gluten. I spent the summer getting sick and learning all about hidden gluten, until figuring out that CORN was just as big a problem.

Well, really, corn is a bigger problem. It is hidden in more places and without labels. For example, I just recently learned that corn is in iodized salt. Maybe this source is the cause of my always aching stomach. But it does seem like I am still finding other sources of discomfort. Like most recently, mushrooms. And skins of almonds.

For some reason I thought that after a year symptoms would have improved. Or at least all the intolerances (or allergies?) would have been uncovered. Sure my, um, lifestyle change has me eating healthier but sometimes I wish I didn't have to eat. It is just such a bother!

Sorry, I am in a downer right now. I tried eating some Zankou Chicken after hearing assurances that it was gluten, soy and corn free and now I feel nauseous. Blah.


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Happy First Birthday!

Sorry you aren't feeling great yet...but as you point out you have learned a lot...this knowledge will bring healing...unfortunately it can take months and years...doesn't seem stomp...yell..I have a time or ten and then get up tomorrow and try day (hopefully very soon) you will be amazed by the improvement.

Until then...hang in there :)


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AnnJay, happy anniversary. I hope you figure it all out soon, we do become food detectives, don't we?


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    • Hi Beachgrl, It won't hurt anything to go gluten-free now, except the possibility of getting a diagnosis of celiac disease.  When i went gluten-free, it seemed like the initial changes were spread over about 6 weeks.  I had gut spasms for that time.  And other changes, all for the better.  Initial recovery from celiac damage can take up to 18 months, so it can be a slow thing.  Some people get better much faster of course, because we are all individuals and not identical. Going gluten-free for celiac disease is a lifetime commitment though, and some people have a hard time doing that without a diagnosis.  Even minor amounts of gluten can cause us to react, so it is best to eat a very simple diet of whole foods at first.  Avoid dairy and processed foods.  I hope it works out for you.  I know some people with Crohns disease eat gluten-free and find it helps them.  Gluten is a tough thing to digest for all people, but most don't have an immune reaction to it like celiacs do.  
    • Honestly, I would not trust the school to provide a gluten-free meal except for fruit, salads, veggies, etc. I sub in a school cafeteria and I swear everything is breaded or on bread. Utensils are shared. They're very clean but unless you have a very knowledgeable person in there, I just wouldn't chance it. I found a slim Jim type snack that says gluten-free on it. If you want to give me your email or FB account, I can send you some very valuable info on 504's though. They carry the student right through college. I kept a copy of what a friend wrote about her daughter being in a sorority and just how the 504 helped immensely. But, I would definitely get one and still be prepared to pack a lunch. All our meals are delivered frozen and we just hear them up. If your school actually fixes food, that's different. 
    • Oh, I would suggest providing gluten-free goodies (e.g. Candy) or even a frozen cupcake (kept in the teacher's freezer) in the event of a party.  My daughter's classmate is severely allergic to peanuts.  Her mom did that and Abby was never left out!  😊
    • Hi Nobody, Welcome to the forum!  I noticed you said you have been avoiding wheat products.  That's good, but are you avoiding rye and barley also?  Wheat, rye, and barley are the 3 grains that cause reactions in celiac patients.  About 10% also react to oats. If you haven't had the full celiac antibodies test panel, it might be worthwhile getting that done now.  The ttg is just a basic test and is generally followed up by an endoscopy or the full celiac panel. I wouldn't worry a lot about getting cancer.  That doesn't happen often. It is possible some of the other grains you might be eating are contaminated.  A group did a test on several off the shelf products a few years ago that would not normally be thought of as having gluten and found some actually did have low levels of gluten.  Things like corn meal for example.    
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