Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Cross Reacting Diet?
0

8 posts in this topic

Hi,

 

I'm having a bad time, having been stable for quite a while. I'm not sure what glutened me, but I suspect it was some processed soup (supposed to be gluten-free, but.....)

 

Since then I haven't recovered. Normally it takes 4 days or a week, but it's 2 weeks on and I'm still struggling. I'm already extremely thin, and I'm losing weight because of the reaction.

 

I've found a website that says you can cross-react to a long list of other foods:

 

 

  • Amaranth
  • Buckwheat
  • Chocolate
  • Coffee
  • Corn
  • Dairy ie Milk and Cheese (Alpha-Casein, Beta-Casein, Casomorphin, Butyrophilin, Whey Protein)
  • Egg
  • Hemp
  • Millet
  • Oats
  • Polish wheat
  • Potato
  • Rice
  • Sesame
  • Sorghum
  • Soy
  • Tapioca
  • Teff
  • Yeast

So I'm tempted to go on an extreme diet, but I'm also worried about losing more weight. Can anyone suggest foods that I can definitely eat safely to help my gut recover?

 

Thank you!!!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Rotation, rotation, rotation!  If you suspect allergies (or already know of some), you'll need to rotate your foods to 1) calm down the "fire" inflammation and 2) prevent other allergies from developing.  There are plenty of websites that discuss four day or seven day rotational food diets.  

 

Good luck!

 

 

0

Share this post


Link to post
Share on other sites

There is no real scientific evidence for this " cross- reactive" foods to gluten.

1

Share this post


Link to post
Share on other sites

Hi Hannisa,

 

If you spend a little while reading the signatures of people on the forum, you will see that many of us have food intolerances beyond just gluten.  But they are not all the same.  Some people react to soy, to nightshades, some to corn, some to eggs, some to dairy, etc.  It varies by the person.  So one diet that fits all is not possible.  As far as your own individual food reactions go, you may want to try and elimination diet.  That is a pretty good way to figure them out.

1

Share this post


Link to post
Share on other sites

OK, thanks guys. I've always felt pretty positive about having celiacs - you just gotta avoid the gluten and you're fine - but it's obviously not that simple.

 

I've also remembered that I've been taking high strength Vit C the last few days to avoid catching a bug that my family has. I know Vit C can upset the stomach if you take too much, so maybe that hasn't helped either.

0

Share this post


Link to post
Share on other sites




Have you tried coconut milk?  It has many nutrients and energizing fat.

 

Nuts can add nutrients and energy if you tolerate them.

 

Avocados help load me with energy; they aren't my favorite taste.

 

Diana

0

Share this post


Link to post
Share on other sites

I had problems with a lot of foods too and people suggested other food intolerances and that cross reacting stuff.  What I found was that a certain food item from one source would make me sick, and then if I got it somewhere else, it wouldn't.  I figured out that I was reacting to low levels of gluten contamination.  My GI told me how some celiacs react to lower levels of gluten than others.  Some can't tolerate the tiny amounts allowed in gluten-free foods.  Learning that made all the difference and I was able to take steps to get healthy again.  

 

Whether it be low level sensitivity, or other food intolerances, the food/symptom journal along with challenge/elimination diets is the way to find safe food to eat.  Keep track of sources of food as well as what they are.  It is easier if you keep it more simple with fewer ingredients and fewer sources of possible cc.  Produce and unprocessed meats accomplish this.  Be patient and confident that you will be able to solve this problem.  It will just take some time.

0

Share this post


Link to post
Share on other sites

Thank you both. It's good to get advice from some real experts because I have a feeling my doctor would just be sympathetic but quite useless.

 

I like avocados and nuts, so I'll try having more of them. I'm in the UK and coconut milk, as far as I know, comes in tins with additives and sometimes thickened. Not sure if this is what you have in mind, but I will have a closer look when I'm in the shops.

 

Part of the problem is that I have been fine since I started the gluten-free diet a couple of years ago. I have got glutened a few times by processed food but it goes in a few days. So this is something new and I have to adapt to it. Perhaps I need to get more organised, as you say, and keep a track of what I'm eating, and also do an elimination diet.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,387
    • Total Posts
      917,575
  • Topics

  • Posts

    • New Celiac Doctor - Atlanta/Duluth, GA
      I can't help you with finding a new GI, but I can empathize with driving the 400!   I have family in the Northern Atlanta area and visit often.   How horrible that your account was so mis-managed! 
    • New Celiac Doctor - Atlanta/Duluth, GA
      Hello! I have Celiac Disease (confirmed by blood tests and endoscopy done in 2013) and was going to a doctor at Atlanta Gastroenterology Associates until the end of last year (2015) when they started charging me for things that happened in 2013 - two years late. I had since changed insurance and was forced to pay out of pocket for the charges or be sent to collections. All in all, I loved my doctor there, but was very unhappy with the way the billing was managed.  So, I found a new doctor and have seen her once. I like her very much so far, but have recently moved and my home is so far from her office it often takes me 1-2 hours to get there with Atlanta traffic. (Her office is at Emory St. Joseph's hospital.) I should say one of the reasons we moved to Duluth was to get away from Atlanta traffic. I don't want to change practices, but I'm considering it. Does anyone out there live in North Atlanta? Alpharetta, Lawrenceville, Duluth, Suwanee? And have a doctor in the area they would recommend that is NOT associated with Atlanta Gastroenterology Associates? I would rather drive 5 hours to see a doctor than go back to that group, no matter how good the doctors are! Any recommendations are welcome!
    • Sjogren's, Celiac, or both?
      Welcome!  Unfortunately, you would have to go back on gluten to get tested (8 to 12 weeks for the blood test and 2 to 4 weeks for the endoscopy).  Here are the tests: http://www.cureceliacdisease.org/screening/ I am sorry that your doctor is so mis-informed! There are over 300 symptoms attributed to celiac disease and some celiacs are considered "silent" with no symptoms at all!  I personally was anemic and had no tummy issues that I was aware of at the time of my diagnosis.   There are other forum members who have Sjogren's who might have some good advice (@Gemini).   I wish you well!  
    • Sjogren's, Celiac, or both?
      Hi! This is my first post here. I'm wondering if anyone else has had a similar experience. I'm in the diagnostic process for Sjogren's, which my rheumatologist is very sure that I have even though my dryness symptoms are very mild. (I am positive for SSA, the autoantibody associated with Sjogren's.)  The symptoms I initially went to my GP with are: fatigue, hair loss, irregular menstrual cycle (very unusual for me), headaches (migraines, almost daily), elevated temperature, weight loss My GP did not do the blood test for Celiac disease. She opted not to because when she asked me if I had loose stool, I said "No, actually, I've been constipated every day for the last 10 years." She said, "Ok, no Celiac then."  ???????? During the diagnostic process, I also lost a pregnancy.  When I eliminated gluten because of recommendations from the Sjogren's Foundation website, almost all of my symptoms disappeared. I still have the hair loss, but no headaches, fatigue is better, cycle is regular, and I'm back to my normal weight. Even my temperature is closer to my norm. I feel like an entirely new person. I still sometimes have mild dryness symptoms but nothing that would have prompted me to go to the doctor without the other symptoms. Should I make an appointment with my rheumatologist and try to get tested for Celiac disease? Has anyone had a similar experience? And how hard do you think it will be to get tested? (Like most doctors I've worked with, my rheumatologist likes to be the one who makes the suggestions.) Thanks for any input! Kristen
    • frustrated and not feeling well
      Hello, how long did it take to get back up? I quit the pepcid and started iron but the ferritin dropped from 74 in December, to 49 in March and 33 a couple of weeks ago. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,524
    • Most Online
      1,763

    Newest Member
    Edav009
    Joined