HI there, I'm new to this board and I would like to start by saying that I have not been diagnosed with Celiac (neither has it been ruled out). I was referred to this site for the rich resources available about eating gluten free and as a support network with others dealing with the difficulty of living with the daily problems of living with such restrictions. I have, however, been diagnosed with Eosinophilic Esophagitis. Symptoms including, tightening of the airway, dysphagia, choking, gastrointestinal distress. I also had a rash that started around the same time these symptoms began. On and off, I couldn't correlate it to anything. I started with an upper gi. My physician said that if I wanted, before he did a scope, I could try an elimination diet.
So for several weeks I went off of dairy, wheat, soy, nuts, seafood and eggs. (and I do mean religiously. I did not 'cheat' and read every package on every thing, nor did I eat out for fear of the unknown) I started adding these back into my diet slowly and watching for response. Everything was added back into my diet without issue. Shortly before I got to the last thing on the list, wheat, I had buckwheat with dinner. I had a reaction. I thought it was supposed to be safe! Then I tried quinoa. same issue. Then teff and millet. Issues there too. I still have yet to try wheat, but I fear the worst. When I was tested for allergy to wheat, it came back clear, but my physician said that I could have an intolerance which isn't the same as an allergy. I have no problem with rice or seeds.
My question is, have any of you experienced this sort of issue? I am curious because I thought out of all those things I should be able to find an alternative to wheat. I have been using rice flour and chickpea, but I am having difficulty finding too much on the internet about intolerances or allergies with these grain substitutions. Any ideas or info would be greatly appreciated. Thank you!