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Gluten Free Substitutions And Allergies
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HI there, I'm new to this board and I would like to start by saying that I have not been diagnosed with Celiac (neither has it been ruled out). I was referred to this site for the rich resources available about eating gluten free and as a support network with others dealing with the difficulty of living with the daily problems of living with such restrictions.  I have, however, been diagnosed with Eosinophilic Esophagitis. Symptoms including, tightening of the airway, dysphagia, choking, gastrointestinal distress. I also had a rash that started around the same time these symptoms began. On and off, I couldn't correlate it to anything. I started with an upper gi. My physician said that if I wanted, before he did a scope, I could try an elimination diet.

 

So for several weeks I went off of dairy, wheat, soy, nuts, seafood and eggs. (and I do mean religiously. I did not 'cheat' and read every package on every thing, nor did I eat out for fear of the unknown) I started adding these back into my diet slowly and watching for response. Everything was added back into my diet without issue. Shortly before I got to the last thing on the list, wheat, I had buckwheat with dinner. I had a reaction. I thought it was supposed to be safe! Then I tried quinoa. same issue. Then teff and millet. Issues there too. I still have yet to try wheat, but I fear the worst. When I was tested for allergy to wheat, it came back clear, but my physician said that I could have an intolerance which isn't the same as an allergy. I have no problem with rice or seeds.

 

My question is, have any of you experienced this sort of issue? I am curious because I thought out of all those things I should be able to find an alternative to wheat. I have been using rice flour and chickpea, but I am having difficulty finding too much on the internet about intolerances or allergies with these grain substitutions. Any ideas or info would be greatly appreciated. Thank you!

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Allergy and intolerance are often used interchangeably by docs, if your tested showed an allergy to wheat then you gave an allergy to wheat, you could also ave an intolerance to wheat but that wouldn't show up on an allergy test.

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    • puffiness in face
      The puffiness in my face went down a lot after I went gluten free. Old photos shock me sometimes now! Your doctor should be able to test you for food intolerance? Here in UK I did tests for wheat, nut, mustard etc. You can do a blood test and there's also skin prick tests I think, am sure others here would know more.  Good luck    
    • glutened by lays potato chips?
      Here in the UK I can't eat Lay's owned Walkers crisps as even the ones without gluten ingredients can cause a reaction. I read it was something to do with their production processes. Looks like others have same problems too:  
    • Newly diagnosed and totally overwhelmed
      Don't apologise! Not needed here at least where people know exactly what you're going through. As Cyclinglady says, you're now in a grieving process for the former, carefree attitude to food you've now lost. You may find this helpful in understanding the psychological journey you're on: http://psychcentral.com/lib/the-5-stages-of-loss-and-grief/ It WILL get better. Eating cleanly is very good advice as you heal but you can then find the replacement snacks and treats that are safe to eat.  I now know which chocolate bars are ok, which brands of crisps (chips) are safe etc.  I don't drink now, but I did find there were some fantastic ciders that I could tolerate and you've always got wine! In fact one of the weirder discoveries post gluten was that my past (vicious) hangovers were far more about gluten reactions than the alcohol itself. A cider hangover is a breeze in comparison All the best!  
    • glutened by lays potato chips?
      I ate some baked lays last night and felt very sick all night and haven't been feeling great all day today. Other than that I didn't eat anything different from what I normally eat and there was no risk of cross contamination with anything.. These were the only thing I had that was different. They're labeled gluten free so I figured it would be okay, but I started feeling sick pretty soon after eating them. I'm not sure if it's another ingredient in them or what (and i know it's not the soy).. Has anyone else had a reaction to lays potato chips?
    • Symptoms In Toddlers?
      Welcome Ashley! Here are the current tests.  The DGP versions seem to work a bit better than the TTG in small children.  So, ask for the complete panel (and get it all in one stick....my 15 year still hates to get blood drawn ! http://www.cureceliacdisease.org/screening/ Your doctors are wrong!  They must be reading old medical text books.  Not all kids or people have failure to thrive!  You can even be symptom free!. I was anemic and had no intestinal issues when I was diagnosed.  celiac disease affects everyone differently and that's probably why so many folks are not diagnosed. Your kids (parents, siblings too) should be tested every few years (sooner if symptoms develop) per all the leading celiac researchers/doctors if a first-degree relative has celiac disease (like you!)  celiac disease can develop at any age! Hope this helps!   
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