Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

New At This.
0

21 posts in this topic

I was diagnosed a month ago and am still somewhat reeling. I have always been a label reader, now I'm just looking for gluten/wheat/barley/rye/farina/etc in addition to everything I was looking for prior to this.

 

I purchased this book: http://www.ceceliasmarketplace.com/gluten-free-guide/ to use as a guide. If something's in this book, then I look to purchase it but still check the label because I know that companies change ingredients and processing equipment/procedures at the drop of a dime.

 

I have found that Outback Steakhouse and Pizzeria Uno's have good gluten free menus and Outback even has a flourless brownie (and it's yummy.)

 

Trader Joe's was always someplace I shopped, now I'm there more often.

 

My symptoms are getting better, but I'm not sure how long it will be before they are gone.

 

Finding this site and the forums has been a great help. Until now I was just a voyeur, reading posts and getting information, but today I wanted to introduce myself, say hello, and say thank you to all of you because your posts are helping me every day.

 

 

 

0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome, nice to meet you, and congratulations on starting your journey of healing :-)

0

Share this post


Link to post
Share on other sites

Welcome to the family! :)

 

May I direct you to: 

 

(1) this thread for newbies

 

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

 

 

 

and  

(2)   I recommend:

 

"Find Me Gluten Free"  for dining out

 

and

 

(3) I also recommend this must-read book:

 

Real Life with Celiac Disease

by Melinda Dennis and Daniel Leffler

 

Best wishes to you! we're here for you!

0

Share this post


Link to post
Share on other sites

Greetings Glutey,

 

I hope all continues going well for you!

 

Diana

0

Share this post


Link to post
Share on other sites

Hi guys, my name is Michael I'm 38 years old and i've known for certain I have had celiac disease for about a year. However I do not know how long I've been living with this disease nor do I know the extent of the damage done. I have been avoiding things with gluten for the better part of a year but as of recent i've gotten serious about avoiding all things with wheat. My question is; does early or moderate stages of villious atrophy reverse its self over time if strict adherance to the proper diet is maintained?

 

0

Share this post


Link to post
Share on other sites




Welcome, Michael,

 

Yes, the vast majority of people do heal after time on a strict gluten-free diet. I had significant damage at the time of my diagnosis. A follow-up examination five years later found no evidence at all of celiac disease in my intestines.

1

Share this post


Link to post
Share on other sites

Hello & Welcome....you  have found  a  great  place  ......

0

Share this post


Link to post
Share on other sites

Hello Gluten Stinks (great name!) and Michael!  I wish both of you luck on your gluten-free journey.  

 

Michael, I'm a bit confused about how you've been avoiding gluten, but just now have gotten serious about avoiding wheat... cause gluten is in wheat.  Maybe I'm missing something? It certainly wouldn't be the first time!  :)  But your statement makes me believe you haven't excluded all gluten. Please correct me sternly if need be!  I would encourage being strict about your diet earlier rather than later.  Believe you me, you don't want years and years of damage (and if you're eating gluten in any amount- there will be damage given your diagnosis).  Let us know if we can help.  

 

Shellie

0

Share this post


Link to post
Share on other sites

Welcome, Michael,

 

Yes, the vast majority of people do heal after time on a strict gluten-free diet. I had significant damage at the time of my diagnosis. A follow-up examination five years later found no evidence at all of celiac disease in my intestines.

Wow!  That's what I want to hear from my doctor in five years!!!!!  I have complete confidence that I will adhere strictly to the gluten-free diet, since I've been taking care of my gluten-free hubby for the past 12 years and I've never glutened him (restaurants have though.....)  I have been worried about healing based on the research I've seen, so it's great to find a someone who is well!  

 

Thanks!

0

Share this post


Link to post
Share on other sites

Hello Gluten Stinks (great name!) and Michael!  I wish both of you luck on your gluten-free journey.  

 

Michael, I'm a bit confused about how you've been avoiding gluten, but just now have gotten serious about avoiding wheat... cause gluten is in wheat.  Maybe I'm missing something? It certainly wouldn't be the first time!  :)  But your statement makes me believe you haven't excluded all gluten. Please correct me sternly if need be!  I would encourage being strict about your diet earlier rather than later.  Believe you me, you don't want years and years of damage (and if you're eating gluten in any amount- there will be damage given your diagnosis).  Let us know if we can help.  

 

Shellie

Thank you all for your replies :)

When I first got diagnosed I felt really lost until I found this forum.

 

Michael, the first thing I did was research, research, research. The more you know about gluten, and especially what ingredients it is hiding in, the better armed you are to keep it out of your stomach! I went to see a nutritionist twice, and am constantly emailing companies for information.

0

Share this post


Link to post
Share on other sites

 I have been worried about healing based on the research I've seen, so it's great to find a someone who is well!  

 

There are many of us on here who can tell you they are well and healing. Some of us came back from the "walking dead" even.

 

Hang in there. Time and patience. These two things are essential. :)  

0

Share this post


Link to post
Share on other sites

I love the newbie thread !! I am also new at this!! Cannot w8 to learn more!! And more and more!! 

0

Share this post


Link to post
Share on other sites

Welcome, Michael,

 

Yes, the vast majority of people do heal after time on a strict gluten-free diet. I had significant damage at the time of my diagnosis. A follow-up examination five years later found no evidence at all of celiac disease in my intestines.

Thanks for sharing this.  VERY encouraging!

0

Share this post


Link to post
Share on other sites

when i was a newb, this place saved my life.  i would say "sanity" but y'all know me....  ;)

 

welcome to the best club you never wanted to join lolz 

0

Share this post


Link to post
Share on other sites

Agreed. This place really did save me. I was ready for despair, and found you all and my outlook changed almost immediately.

 

Thank you AGAIN!!!!   :D

0

Share this post


Link to post
Share on other sites

I love the newbie thread !! I am also new at this!! Cannot w8 to learn more!! And more and more!! 

 

Yaay!! Your positive attitude will help your recovery and adaptation to this "new normal" more than anything else!! :)

0

Share this post


Link to post
Share on other sites

when i was a newb, this place saved my life.  i would say "sanity" but y'all know me....   ;)

 

welcome to the best club you never wanted to join lolz 

 

yes, we DO know you  :lol:  and yes, "the best club you never wanted to join" --classic!!!

 

Agreed. This place really did save me. I was ready for despair, and found you all and my outlook changed almost immediately.

 

Thank you AGAIN!!!!   :D

 

Yaay!!  :lol: hang in there, hon--it gets better and better!

0

Share this post


Link to post
Share on other sites

HI Gluten Stinks and The Rest,

 

I too am a recent entrant into the Coeliac mind field. I was diagnosed with no symptoms (during a routine check up) and since then things have taken a turn for the worse! Now that I am trying to keep gluten out of my diet I am finding myself reacting to it if I accidentely eat it. Tonsilitis set in not too long after the diagnosis for two months closely followed by the office cold/flu that is going around.

 

I am very much looking forward to the day that things start to improve. Heading to the toilet 6-7 times a day and feeling constantly constipated is starting to take its toll. As is no exercise and just being constantly exhausted.

 

However, this site and these forums give me hope that things will improve and hopefully I can stop being such a wind bag (in more ways then one!).

 

Thanks for all the info - it's very much appreciated.

 

Cheers

HC

0

Share this post


Link to post
Share on other sites

HI Gluten Stinks and The Rest,

 

I too am a recent entrant into the Coeliac mind field. I was diagnosed with no symptoms (during a routine check up) and since then things have taken a turn for the worse! Now that I am trying to keep gluten out of my diet I am finding myself reacting to it if I accidentely eat it. Tonsilitis set in not too long after the diagnosis for two months closely followed by the office cold/flu that is going around.

 

I am very much looking forward to the day that things start to improve. Heading to the toilet 6-7 times a day and feeling constantly constipated is starting to take its toll. As is no exercise and just being constantly exhausted.

 

However, this site and these forums give me hope that things will improve and hopefully I can stop being such a wind bag (in more ways then one!).

 

Thanks for all the info - it's very much appreciated.

 

Cheers

HC

HC,

Things really will improve. In a little over four weeks my symptoms are reduced. It can take many months for them to completely go away (I am told) but you will see and feel the change.

My stomach cramping went away rather quickly, and that was the most painful symptom for me. Sometimes I'd be doubled over...

Hang in there!!

0

Share this post


Link to post
Share on other sites

when i was a newb, this place saved my life.  i would say "sanity" but y'all know me....   ;)

 

welcome to the best club you never wanted to join lolz 

Well said.  I'm kinda feeling the same way.  It helps me a lot.

0

Share this post


Link to post
Share on other sites

Welcome!!! 

 

I'm stealing from Notme....

 

The most awesome club you never wanted to join!!!  or something like that ;)

 

We've all been thru it...so hang out and keep laughing -- it really does make everything better.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,501
  • Topics

  • Posts

    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Going gluten free may be beneficial if you're among the roughly 10 percent of people who suffer from celiac disease, a genetic immune disorder, ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,416
    • Most Online
      1,763

    Newest Member
    djs2117
    Joined