Posted 25 May 2013 - 03:23 PM
We have an allergist appointment on June 3 and a GI appointment on June 11 for my daughter.
What are your suggestions? Things you wish you would have asked, things to make sure to ask, things to look out for...etc. I don't want to miss anything!
I highly suggest that you have the normal allergy panel done along with testing all the gluten culprits. This means not just wheat but barley, rye, and others. Make sure you have those results when you go to the GI. They will most likely pass your child off as having allergies. We had to have our testing redone 3x before the believed that our son was not allergic to wheat. It is worth keeping a file with all the lab copies to take to appointments with you. I also keep a journal that i log all appointments, conversations and results into so I don't miss anything when answering doctor's questions.
Mother of Celiac and DH infant.
Doctor's keep telling us that "babies can't have Celiac" and that it is impossible to get gluten from breast milk.
In spite our their refusal to see reality, our son developed his Celiac at 2 months old after antibiotics and antifungal treatments.
He was diagnosed with DH at 6 months old yet the GI refuses to consider Celiac out of stubbornness.
Still seeking a doctor who will do a biopsy and genetic screen.
DH cleared after removal of gluten, corn, and iodized salt.
Leaky gut problems occur with ingestion of nightshades, soy, and all grains.