Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

First Car Trip!


ABQ-Celiac

Recommended Posts

ABQ-Celiac Rookie

After eating gluten and dairy free for 9 months, I made my first long car trip. I used to love road trips: pizza, Chinese food, and fast food all day!

 

But this year I packed my rice cooker, toaster, and a cooler with ham, frozen chicken, ketchup, bacon, eggs, soy sauce, and then a bag of the life-saving Mi-Del cookies and Glutino crackers and nutrition bars to fill in the cracks!

 

It was a pain, of course, finding kitchenette motels where I could cook suppers and breakfasts, but I was healthy all week. I stopped at Wendy's every lunch for plain patties and a baked potato, or a plain chicken patty for a change. (Not every fast food place understands the order: "2 patties, no bun, no cheese," but most did.

 

I got tired of washing dishes in motels every night and morning, but it was better than being sick.

 

I did 7 days and used up my traveling food and restocked it every couple of days. The food gets boring, but it's boring at home as well. (Rice and ham. Rice and chicken. Rice and hamburger.)

 

Since I last posted, I did have another endoscopy to check my villi, and they are still atrophied, but overall I was cancer free in my stomach, colon, and duodenum, so that was all good news.

 

Here's to a good week of coping for everyone!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

That sounds great!  We have an RV which makes it a lot easier, but travel for business too.  Purchasing a "throw" away Styrofoam cooler upon arrival  is handy or cramming a collapsible  cooler into our luggage has saved us when we haven't found a frig in our hotel room.  Our fast food is shopping at grocery stores now.  Just a few visits, like you, to Wendy's or In-N-Out when we're sick of cooking.  

 

We always keep a few cans of gluten-free soup on those trips for emergencies.  Our little cheap toaster is invaluable for sandwiches.  And there's nothing like a bowl of Rice Chex with added fruit to start your traveling day.

 

Thanks too for letting me know about your recovery.  I'm still a newbie and I guess I'm just going to have to accept the fact that it took years to damage my villi and years to completely heal.  The good news is that I'm feeling much better.

Link to comment
Share on other sites
ABQ-Celiac Rookie

Hi! Yes, I wasn't diagnosed until I was in my 50s, so the amount of damage was fairly extensive. I still have bad nausea days, sometimes from cross-contamination, sometimes - as my doctors say - because my stomach is just doing the best it can.

 

We had an RV years ago, though, and are thinking of getting one again. 

 

Cheers!

 

 

That sounds great!  We have an RV which makes it a lot easier, but travel for business too.  Purchasing a "throw" away Styrofoam cooler upon arrival  is handy or cramming a collapsible  cooler into our luggage has saved us when we haven't found a frig in our hotel room.  Our fast food is shopping at grocery stores now.  Just a few visits, like you, to Wendy's or In-N-Out when we're sick of cooking.  

 

We always keep a few cans of gluten-free soup on those trips for emergencies.  Our little cheap toaster is invaluable for sandwiches.  And there's nothing like a bowl of Rice Chex with added fruit to start your traveling day.

 

Thanks too for letting me know about your recovery.  I'm still a newbie and I guess I'm just going to have to accept the fact that it took years to damage my villi and years to completely heal.  The good news is that I'm feeling much better.

Link to comment
Share on other sites
cyclinglady Grand Master

Hi! Yes, I wasn't diagnosed until I was in my 50s, so the amount of damage was fairly extensive. I still have bad nausea days, sometimes from cross-contamination, sometimes - as my doctors say - because my stomach is just doing the best it can.

 

We had an RV years ago, though, and are thinking of getting one again. 

 

Cheers!

We camped for years in tents.  Love the RV.  We drive a Pleasureway on a Sprinter platform (Mercedes Diesel).  Gets 21 mpg.  Little, but we can go anywhere!  Thankful to be able travel and cook gluten-free.  It greatly reduces the worrying factor.  

 

Have a great weekend.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,459
    • Most Online (within 30 mins)
      7,748

    linda Jed
    Newest Member
    linda Jed
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      And the fact is, no two celiacs will necessarily respond the same to gluten exposure. Some are "silent" celiacs and don't experience obvious symptoms. But that doesn't mean no harm is being done to their gut. It just means it is subclinical. 
    • AlyO
      Thank you, Trents.  I appreciate your helpful and friendly reply. It seems more likely to be a bug.  It has been a pretty severe bought. I feel that I don’t have enough experience to know what signs my little one shows after exposure to gluten. 
    • trents
      Hannah24, be aware that if you are on a gluten free diet, you will invalidate any further testing for celiac disease (except genetics) and would need to go back to eating significant amounts of gluten for weeks or months to qualify for valid testing.
    • knitty kitty
      Hello, @Hannah24 Have you had a DNA test done?  Celiac Disease is genetic.  You must have at least one gene to develop celiac disease.  You don't have to be consuming gluten for a genetic test.   Anemia, diabetes and thiamine deficiency can cause false negatives.  Some lucky people are seronegative, but still have celiac disease.  Peripheral neuropathy, tingling in hands and feet are symptoms of vitamin deficiencies.  Vitamin C, Thiamine B1, Niacin B3, Pyridoxine B6, and Cobalamine B12 can each cause peripheral neuropathy.  These same vitamins are needed to produce blood cells.  Most undiagnosed Celiacs suffer from nutritional deficiencies. The DNA test would be helpful.
    • trents
      We do hear of cases of remission but they generally eventually revert back. I wouldn't push your luck.
×
×
  • Create New...