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I Had My Endoscopy Today!
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I'll know the results within a week, but he said everything looked normal... :/

 

And then he diagnosed me with acid reflux..is that a big symptom for celiac disease?

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I am glad it went well. :)

GERD is sometimes a symptom of celiac disease. I don't know how common it is. I am sure others will know more.

I hope your biopsy results are very clear cut and you'll know for certain whether it is celiac disease or NCGI. Best wishes.

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Ooops! I don't remember making this post ha, but I guess I have GERD and a hiatal hernia... unless those are the same?... does anyone know if THOSE can be linked to celiac?

 

Ohh and I am so happy with my doctor! He said they generally take 8-9 biopsies and hes like the head of a celiac organization or something, and he knows about non-celiac gluten sensitivity :)

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Ooops! I don't remember making this post ha, but I guess I have GERD and a hiatal hernia... unless those are the same?... does anyone know if THOSE can be linked to celiac?

Ohh and I am so happy with my doctor! He said they generally take 8-9 biopsies and hes like the head of a celiac organization or something, and he knows about non-celiac gluten sensitivity :)

Lol!! As someone who just had this same experience I have to laugh. Hard!! I totally requested and consumed a gigantic rootbeer float after my EGD and I have zero memory of it. Pity, that's an experience I'd rather remember!

So glad they took adequate samples, hopefully that means your results will be absolutely accurate. celiac disease or NCGS, I pray you have an answer soon!

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Lol!! As someone who just had this same experience I have to laugh. Hard!! I totally requested and consumed a gigantic rootbeer float after my EGD and I have zero memory of it. Pity, that's an experience I'd rather remember!

So glad they took adequate samples, hopefully that means your results will be absolutely accurate. celiac disease or NCGS, I pray you have an answer soon!

Lol! Yeahh my mom took me to a fast food place too... Don't remember much but i guess I ate a ton haha. How did yours go?!

 

Ohh and i slightly remember asking the nurse for apple juice, hahah. And right when I woke up I was like WTF? and then I like was trying to get out of the chair and someone had to stop me...

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when my daughter had her endoscopy, everything looked normal too.. biopsies confirmed celiac.  

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when my daughter had her endoscopy, everything looked normal too.. biopsies confirmed celiac.  

If this is my case I will be happy. Thank you for this info. Hope your daughter is doing well with her gluten free lifestyle!

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Lol! Yeahh my mom took me to a fast food place too... Don't remember much but i guess I ate a ton haha. How did yours go?!

 

Ohh and i slightly remember asking the nurse for apple juice, hahah. And right when I woke up I was like WTF? and then I like was trying to get out of the chair and someone had to stop me...

 

Yeah I don't remember much...procedure at 9, home by 1130 (according to my hubby) and I slept from 1200-430pm.  Then went back to sleep at 9pm. HAHA!

 

I also "looked normal" so hopefully that's good news.  Something about abnormal z-line, but I don't think that's too big of a deal.  Results might be in as early as Wednesday.  All that really matters right now is that I'm back the good life (gluten free).  Hooray!  

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Yeah I don't remember much...procedure at 9, home by 1130 (according to my hubby) and I slept from 1200-430pm.  Then went back to sleep at 9pm. HAHA!

 

I also "looked normal" so hopefully that's good news.  Something about abnormal z-line, but I don't think that's too big of a deal.  Results might be in as early as Wednesday.  All that really matters right now is that I'm back the good life (gluten free).  Hooray!  

Yay! I think I'll go get myself some good food tomorrow :)

 

Let me know your results!

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Hi taynichaf, I'm having my endoscopy on the 29th of this month and I'm getting really nervous about it, how did your endoscopy go? im going to have the sedative but im worried that I might wake up during the procedure and im thinking all kinds of things, its scaring me :( any words of advice would be great x also how did you feel after? did you feel okay or did your throat hurt after? Thanks :) x

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Hi taynichaf, I'm having my endoscopy on the 29th of this month and I'm getting really nervous about it, how did your endoscopy go? im going to have the sedative but im worried that I might wake up during the procedure and im thinking all kinds of things, its scaring me :( any words of advice would be great x also how did you feel after? did you feel okay or did your throat hurt after? Thanks :) x

Hi! Good luck! It's really nothing to worry about... I didn't think it was bad at all, but I wasn't that afraid to begin with. I was heavily sedated, and the worst part for me was putting the IV thingy in my hand because I hate needles. My throat didn't hurt that much at all, but they sprayed it with this numbing stuff. Once I was sedated I was knocked out right away lol. I woke up in a chair somewhere and it's all just really bury from there... I only remember little snip-its of people talking to me and everything else is just black. My memory was terrible, and I couldn't comprehend anything the nurse was telling me, lol. And I kept asking my mom the same stuff over and over... Sorry if this sounds kinda scary to you, but it's what happend to me! I went home and passed out and then I felt normalish when I woke up... Just a little out of it and I didn't have much of an appetite, but I never puked or anything.

 

If you're worried about waking up, let the nurses know that and they can give you reasurance or make sure to give you a large dose. After the procedure, you won't remember much either so it's not bad.

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Hi taynichaf, I'm having my endoscopy on the 29th of this month and I'm getting really nervous about it, how did your endoscopy go? im going to have the sedative but im worried that I might wake up during the procedure and im thinking all kinds of things, its scaring me :( any words of advice would be great x also how did you feel after? did you feel okay or did your throat hurt after? Thanks :) x

 

Miss-Marie, just to add my experience.  I had both a colonoscopy and endo done and oddly enough the colonoscopy didn't worry me but the endo was freaking me out.  And I was just outside the room as the previous patient was doing his endo without any sedative.  Believe me those choking sounds didn't help!  Anyway, they gave me a bit of sedative for the colonoscopy but I was awake and watching it on the screen the whole time.  Since my doc knew I was so worried for the endo, he gave me an additional amount and it put me to sleep.  I woke up in recovery when it was over.  No knowledge/memory of the procedure at all.  And I wasn't groggy or affected at all the rest of the day.  Left there with my hubby and didn't have any ill effects whatsoever.  My thoat never hurt at all either.  I actually wondered why they said I wouldn't be able to drive after the procedure if I had the sedative, because I felt perfectly normal when I woke up.

 

I honestly wouldn't be the least bit concerned to have to do it again.  So ask for the sedative and tell your doctor you're very nervous.  I'm sure it'll be a breeze!  Good luck!

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Thank you for your fast replies :)

taynichaf - I really hate needles too so that will probably be the worst part too for me lol, as long as I'll be sleeping when its all happening I should be okay, my main worry is that I'll wake up with a camera down my throat but I'm sure that wont happen, although once I was having a tooth removed and had to be sedated and I remember waking up when it was nearly finished, I'll try to be as calm as possible on the day and just hope that it all goes well. Okay I'll keep that in mind and ask the nurse to maybe give me a larger dose to keep me asleep, thanks :)

 

nosy parker - Ahh that sounds scary hearing the person before you choking, they must be so brave to go through an endoscopy awake! I'm glad to know you felt normal after because I've been worrying that I'm gonna be really dizzy or woozy for the day. I'm hoping my endoscopy will be not as bad as I'm thinking it will be, I'm sure I will be fine I just worry too much! :) 

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Results are in... Negative for celiac :/

 

Super disappointed because I'm still worried that they are missing something...

 

For my GERD, i'm supposed to be taking medicine or something and for my constipation I have to be eating high fiber... Example, wheat bread instead of white bread. I just really feel like doctors arnt listening to me....

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LOL  :P  You can get your fiber from fruits and vegetables like broccoli.  

 

Dates and peanuts have lots of fiber.

 

A past doctor recommended I eat Whole wheat bread to get more fiber and

it was after that my health started to fall apart.

Right now for my gluten challenge I'm eating white bread because the brown bread makes me ache even more.

 

I'm sorry to hear you didn't get the answers you were looking for. :(

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Results are in... Negative for celiac :/

 

Super disappointed because I'm still worried that they are missing something...

 

For my GERD, i'm supposed to be taking medicine or something and for my constipation I have to be eating high fiber... Example, wheat bread instead of white bread. I just really feel like doctors arnt listening to me....

Like I said on another one of your posts, get the test results. Get a copy of the labs and the pathology report and the procedure report. Ask some questions of the doctor. Sounds like you let him tell you you have GERD and a hernia and you don't seem to know what they are as you thought they were the same thing. You need to speak up and ask what that is and what the treatment is. Do they want to surgically repair the hernia? If not, what follow- up do they want to do for it?

I know you are young, but its your body and you need to speak up and ask questions and try to understand.

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so the more whole grain, Fiber One type of products I ate before going gluten free, the more stopped up I became, no matter how much water I drank.  My anxiety increased because I would get so upset over not going, and the snowball effect happened.  There were times I drank a whole bottle of magnesium citrate and not a thing happened :o Ex-lax gave me bad cramping, but no relief, and Ducolax worked but I became concerned because I would have to take 5 tablets to get things moving, and the max dose is supposed to be 3.  I don't do well with mixing thick fiber supplements in a glass, and Miralax was prescribed to me by my GP, but it didn't work well for me at all.  Psyllium did nothing for me.  I was jealous of friends who could eat a bran muffin and clean out their insides because it would plug me up more  :P

 

Sure enough on my first visit to the GI and talking about bloating and constipation, he suggested more fiber and water, but I said been there done that  :P luckily, he listened and I started getting tested and now with going gluten-free, regularity is returning!!  One thing I am very diligent with is my water intake.  I love water, and yes, I really do mean that!  I would much rather have water over soda or alcohol.  

 

Current routine-I wake up each morning, take a few Citrucel with water on an empty stomach, and that helps to get things moving.  Anxiety has greatly reduced going gluten-free, so that certainly helps as well!!

 

Fiber is needed, but you have to find the right fiber for you.  Personally, fiber from fruits and veggies agrees better with my system, but my hope is that someday I can get rid of the Citrucel, but for now it's needed  :)

 

Edit: I also got diagnosed with GERD and a hiatal hernia during my endoscopy.  I really hope you are able to find someplace to get the DGP test performed!  Also my GERD has gotten better going gluten-free.  I would suggest reading the book Why Stomach Acid is Good for You before taking powerful acid reducing drugs.  It seems to create more problems than it fixes.  My advice would be to try eating gluten-free first to see if it helps the GERD.  good luck!  http://www.amazon.com/Why-Stomach-Acid-Good-You/dp/0871319314/ref=sr_1_1?ie=UTF8&qid=1369960489&sr=8-1&keywords=why+stomach+acid+is+good+for+you

Edited by powerofpositivethinking
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so the more whole grain, Fiber One type of products I ate before going gluten free, the more stopped up I became, no matter how much water I drank.  My anxiety increased because I would get so upset over not going, and the snowball effect happened.  There were times I drank a whole bottle of magnesium citrate and not a thing happened :o Ex-lax gave me bad cramping, but no relief, and Ducolax worked but I became concerned because I would have to take 5 tablets to get things moving, and the max dose is supposed to be 3.  I don't do well with mixing thick fiber supplements in a glass, and Miralax was prescribed to me by my GP, but it didn't work well for me at all.  Psyllium did nothing for me.  I was jealous of friends who could eat a bran muffin and clean out their insides because it would plug me up more  :P

 

Sure enough on my first visit to the GI and talking about bloating and constipation, he suggested more fiber and water, but I said been there done that  :P luckily, he listened and I started getting tested and now with going gluten-free, regularity is returning!!  One thing I am very diligent with is my water intake.  I love water, and yes, I really do mean that!  I would much rather have water over soda or alcohol.  

 

Current routine-I wake up each morning, take a few Citrucel with water on an empty stomach, and that helps to get things moving.  Anxiety has greatly reduced going gluten-free, so that certainly helps as well!!

 

Fiber is needed, but you have to find the right fiber for you.  Personally, fiber from fruits and veggies agrees better with my system, but my hope is that someday I can get rid of the Citrucel, but for now it's needed  :)

 

Edit: I also got diagnosed with GERD and a hiatal hernia during my endoscopy.  I really hope you are able to find someplace to get the DGP test performed!  Also my GERD has gotten better going gluten-free.  I would suggest reading the book Why Stomach Acid is Good for You before taking powerful acid reducing drugs.  It seems to create more problems than it fixes.  My advice would be to try eating gluten-free first to see if it helps the GERD.  good luck!  http://www.amazon.com/Why-Stomach-Acid-Good-You/dp/0871319314/ref=sr_1_1?ie=UTF8&qid=1369960489&sr=8-1&keywords=why+stomach+acid+is+good+for+you

Grrr.. Well I got every test now EXCEPT the DGP... That was the only one they didnt have. But whateverrrr.

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Like I said on another one of your posts, get the test results. Get a copy of the labs and the pathology report and the procedure report. Ask some questions of the doctor. Sounds like you let him tell you you have GERD and a hernia and you don't seem to know what they are as you thought they were the same thing. You need to speak up and ask what that is and what the treatment is. Do they want to surgically repair the hernia? If not, what follow- up do they want to do for it?

I know you are young, but its your body and you need to speak up and ask questions and try to understand.

Alright I will. Thanks. And they tried to tell me about it but I was out of it.... So they told my mom and I guess she didnt do a very good job at telling me :/

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    • It sounds like you're doing great. That's amazing that your anxiety has decreased like that. You're obviously doing something really good for your health. With the other things I'm sure they will get better in time. After I gave up gluten I had a bad year but overall it got better. Things like anxiety and insomnia massively improved over time with being gluten free. However, going Paleo (which you are on your way to with the no dairy too) really helped my anxiety, as did running and self-taught acupressure. In particular I found processed gluten free foods were awful for my mood. I know you have to find your own way but I really want to encourage you to see how you feel without that if you haven't already. I also can't afford therapy but when I did have it, that helped too but just being well, gives you the chance to sort your own thoughts and feelings out even without a therapist. Good luck
    • Thank you so much guys. Reading that last response and those from forum members who seemed to be mind-bogglingly sensitive to gluten at times helps me feel like less of a freak  Perhaps worse than the symptoms themselves was my fear that I'm the only person on earth who has gone through this and that if it continues, I will end up with all of my friends and family washing their hands of me because it would look to them like I'm the only one with this and so I must be crazy. It's really good to hear that the sensitivity can go down too. I've been holding onto this idea through the tough times, reminding myself that I also had really bad hayfever for a few years, and asthma at a different time and they both got better.  It has been a whole month since I had a bad reaction to gluten. It has also been two weeks since I even had a small reaction and I'm feeling SO much better. I'm still going to take every precaution I can but this feels worlds away from how it was. At my most risk averse, I had a day on holiday where I only ate bananas and avocados because I could eat them without them having been touched by human hands, even my own! (This was straight after getting sicker and sicker and hunting down what it was that made me ill. I found the refill bottles of soap in the house where I was staying and read that they had wheat in them - not an airborne reaction I imagine but when I washed my hands to prepare food it was probably contaminating my food. Plus because I didn't speak the language, I couldn't be sure the new soap I bought was gluten free.) Now, I am still avoiding environments with lots of gluten and staying clear of all grains, with the exception of rice which I reintroduced using the food challenge method as directed by my dietician (since I understand that rice is, according to Dr Fasano, the lowest risk of gluten contamination of all the grains) and I am building my weight back up. My husband has been able to see also that the last time he cooked gluten in the house was the last time I got ill. So it is reassuring for him to see that the sacrifice he is making is making such a difference to me. I also took the advice about new cooking utensils - thanks! I have my fingers crossed for me. I want this better health to continue but right now I'm happy to know that there is a break in the clouds and to know that I can feel like me again. Good luck to everyone, sensitive or not, who gets into a bad place with managing their reactions. Hang on in there!        
    • I'm not sure I just had the endoscopy, and I've had a  songram. 
    • Thanks and I'm seeing a doctor in three months may have to make it sooner.    Thanks for all the replies.
    • Hey guys so question. I still am going through some of the motions to finally be diagnosed. I has a really bad case of acid reflux a few days ago and now i feel soo sick. Im still eating gluten because i got a negative biaopsy test but ive been told thag i more than likely still have it because its really hard to detect. Well i drank beer last night and had a poutine today stupid i know and now i feel soooo sick. And only felt really sick after the poutine. Now my question is can your symptoms get worse all of a sudden??  I have many other symptoms thaat read celiac deisease for most of my life. But since all doctors told me you have anxiety ibs and fibro at 28 years old. I just baiscally gave up and figured this was going to be my life feeling like crap for the rest of my life. Any thoughts??? Thanks guys. Sorry for the novel lol
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