Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

New Member From Mi.

w8in4dave

By w8in4dave
in Meet Up Room

Recommended Posts

w8in4dave Community Regular
w8in4dave
Posted

Hi everyone !! My name is Wendy , you can call me w8in :) I have just had a blood test yesterday for Celiac of course it is not back yet. But I have been struggling with symptoms for a very long time, and my Dr. Would just give me a pill or kinda sluff it off as a minor complaint. Then I was talking to my daughter because she was having issues and my other Daughter chimed in and said maby you have Celiac. I looked it up and called my Doctor, he ordered a blood test, they made a mistake on the blood test, so I went in and had another. and of course it is a holiday weekend! haha (my luck) but my Dr. still just doesn't think it is Celiac. After this blood test comes back I am going to go on a Gluten Free diet no matter what the results! A friend of mine said "You hope your Celiac?" I said I want to know!! I want to know! What is wrong with me!! It would be so easy to change my diet!! I'd rather do that than have to take pills!! I am so sorry this is so long ...... so now I am w8in4test :) I am glad I found this site!! TY :) 

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

Hello & Welcome

 

Doctors   at  times  drive  me insane.... Do you know  which  blood  panel or  tests  you  had  done? (The  last  time) I  understand  you  are  willig  to  accept  a  celiac  dx's ,  its  way better  dx's  than  the  big C..  Who  wants  drugs  that kill off  the liver, surgeries  that  change  our  lifestyle not  to mention  the  pain & healing...&  the  one  I  dislike  is  doctors  telling  us  its  all in your  head....

So I  agree  if  you must  have  a  illness  let  it be  celiac  or  gluten  sensitive,  we  can  control this  baby  by the  way  we  eat. It  isn't  always   convienient,   &  does  have  a learning  curve &  is  more  costly  but  the outcome  is  a  wonderful, full  healthy life....

Welcome  aboard

 

mamaw

Link to comment
Share on other sites
w8in4dave Community Regular
w8in4dave
  • Author
Posted

Hello & Welcome

 

Doctors   at  times  drive  me insane.... Do you know  which  blood  panel or  tests  you  had  done? (The  last  time) I  understand  you  are  willig  to  accept  a  celiac  dx's ,  its  way better  dx's  than  the  big C..  Who  wants  drugs  that kill off  the liver, surgeries  that  change  our  lifestyle not  to mention  the  pain & healing...&  the  one  I  dislike  is  doctors  telling  us  its  all in your  head....

So I  agree  if  you must  have  a  illness  let  it be  celiac  or  gluten  sensitive,  we  can  control this  baby  by the  way  we  eat. It  isn't  always   convienient,   &  does  have  a learning  curve &  is  more  costly  but  the outcome  is  a  wonderful, full  healthy life....

Welcome  aboard

 

mamaw

Thank you for the welcome! 

I do not know what test I had. All I know is they did one vial for the test. Then the place they sent it to called me and asked If I could come in and give more blood. So I did, They took 3 vials said they only needed two but it was a very complicated test so they took one more for good measure. They said what they were for, but it all sounded like German to me! I guess I should of had her write it down. I aslo wish I knew how long the labs took before I got an answer. Ohhh well patience is a virtue !! I have also started buying as much Organic as possible!! It is hard to buy everything Organic, but I have been doing the best I can. SO far :) I am looking forward to that "Full Healthy Life" :) 

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,212
    • Most Online (within 30 mins)
      7,748
    DaniellePaxton
    Newest Member
    DaniellePaxton
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Constant low back, abdominal and pelvic pain!

      By cristiana · Posted

      I think sometimes the pain described here can be a result of a sort of 'perfect storm' of contributing factors.  Recently I had an appalling bout of lower back pain, lower burning gut pain and what felt like cramps.  I then started to think about what could have caused it and I realised it was several things that had set it off: I'd been carrying heavy luggage (back strain); I had been sitting down in a car for too long and wearing a tight belt (I have pudendal nerve issues and sacroiliac issues and this exacerbates the pain), and I had bloating and burning pain in my colon caused by eating too much soy, latte and caffeine, I guess putting further pressure in the lower abdomen.  I had this same pain prior to my diagnosis and a couple of years post-diagnosis, I'd quite forgotten how unpleasant it was. 
    • cristiana
      Have this rash forming on the back of my legs. Looking for relief outside of going to the doctor.

      By cristiana · Posted

      HI @Kirbyqueen That's great news your insurance will be kicking in soon.  Sorry to see that you have been dealing with this for six months now, but I do hope you have managed to find some relief with some of the suggestions in the meantime. Perhaps come back and let us know what the doctor says. Cristiana
    • Scott Adams
      Trying to read my lab results

      By Scott Adams · Posted

      I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms? 
    • Kirbyqueen
      Have this rash forming on the back of my legs. Looking for relief outside of going to the doctor.

      By Kirbyqueen · Posted

      Still dealing with this rash on my legs. I've eliminated ringworm (through use of topical ointments). And I also know it's not shingles, as I've never had chickenpox before and I'm still fairly young. Through a lot of online research, I'm leaning more towards dermatitis herpetiformis, eczema, or psoriasis. I've actually got a doctor's appointment in May (finally got some insurance) and I'm going to bring it up then. I'm feeling really hopeful and excited to maybe be getting some relief soon.   Big thanks to everyone for the suggestions and positive thoughts!
    • trents
      Trying to read my lab results

      By trents · Posted

      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
×
×
  • Create New...