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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

New Member From Mi.
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3 posts in this topic

Hi everyone !! My name is Wendy , you can call me w8in :) I have just had a blood test yesterday for Celiac of course it is not back yet. But I have been struggling with symptoms for a very long time, and my Dr. Would just give me a pill or kinda sluff it off as a minor complaint. Then I was talking to my daughter because she was having issues and my other Daughter chimed in and said maby you have Celiac. I looked it up and called my Doctor, he ordered a blood test, they made a mistake on the blood test, so I went in and had another. and of course it is a holiday weekend! haha (my luck) but my Dr. still just doesn't think it is Celiac. After this blood test comes back I am going to go on a Gluten Free diet no matter what the results! A friend of mine said "You hope your Celiac?" I said I want to know!! I want to know! What is wrong with me!! It would be so easy to change my diet!! I'd rather do that than have to take pills!! I am so sorry this is so long ...... so now I am w8in4test :) I am glad I found this site!! TY :) 

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Hello & Welcome

 

Doctors   at  times  drive  me insane.... Do you know  which  blood  panel or  tests  you  had  done? (The  last  time) I  understand  you  are  willig  to  accept  a  celiac  dx's ,  its  way better  dx's  than  the  big C..  Who  wants  drugs  that kill off  the liver, surgeries  that  change  our  lifestyle not  to mention  the  pain & healing...&  the  one  I  dislike  is  doctors  telling  us  its  all in your  head....

So I  agree  if  you must  have  a  illness  let  it be  celiac  or  gluten  sensitive,  we  can  control this  baby  by the  way  we  eat. It  isn't  always   convienient,   &  does  have  a learning  curve &  is  more  costly  but  the outcome  is  a  wonderful, full  healthy life....

Welcome  aboard

 

mamaw

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Hello & Welcome

 

Doctors   at  times  drive  me insane.... Do you know  which  blood  panel or  tests  you  had  done? (The  last  time) I  understand  you  are  willig  to  accept  a  celiac  dx's ,  its  way better  dx's  than  the  big C..  Who  wants  drugs  that kill off  the liver, surgeries  that  change  our  lifestyle not  to mention  the  pain & healing...&  the  one  I  dislike  is  doctors  telling  us  its  all in your  head....

So I  agree  if  you must  have  a  illness  let  it be  celiac  or  gluten  sensitive,  we  can  control this  baby  by the  way  we  eat. It  isn't  always   convienient,   &  does  have  a learning  curve &  is  more  costly  but  the outcome  is  a  wonderful, full  healthy life....

Welcome  aboard

 

mamaw

Thank you for the welcome! 

I do not know what test I had. All I know is they did one vial for the test. Then the place they sent it to called me and asked If I could come in and give more blood. So I did, They took 3 vials said they only needed two but it was a very complicated test so they took one more for good measure. They said what they were for, but it all sounded like German to me! I guess I should of had her write it down. I aslo wish I knew how long the labs took before I got an answer. Ohhh well patience is a virtue !! I have also started buying as much Organic as possible!! It is hard to buy everything Organic, but I have been doing the best I can. SO far :) I am looking forward to that "Full Healthy Life" :) 

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    • celiac disease is psychosomatic
      after nearly 6 years gluten free, i still have some balance/anxiety/neuro issues.  they're the last to leave the symptom party, i'm afraid.  i attribute this to the years and years i went undiagnosed and untreated (25 years~! )  i don't have much faith in the medical field's intelligence or in their ethics. funny story:  my obgyn bill had a charge on it that my insurance denied - $25.00 for 'smoking cessation intermediate 5-8 min'  WHAAAAAT?!  (the doctor said it would be a good idea if i quit smoking.  i'm like 'no shit, sherlock')  called the billing office and told them i'm not paying it.  WHY?  1.  do you have any idea how much money i would owe my dad????!!!  2.  i don't smoke with my vagina.  they took off the charge
    • 9 year Old going through testing
      because they make more $$ treating symptoms   every time i see the new 'miracle' pills for 'ibs-c' and 'ibs-d' it just makes me crazy.  ibs is just a symptom..........  as are all these other things that can be reversed just by changing the diet.  but shhhh let's not talk about it, keep the patient ill and miserable, and keep that $$ rolling in.   and to leave a child ill and in pain is just deplorable.  i'm sorry for him.  go git 'em, mama!
    • Do I have Celiac?
      My IgG is 37.6.  B12, D3, and iron deficient.  Hashimoto's thyroid.  Do I have Celiac?  
    • Newbie Mom - How is my son feeling?
      Not really. She just got out of the hospital for the 2nd time. Upon discharge, they said she will continue to vomit. Makes it very hard to go to school. 
    • celiac disease is psychosomatic
      You are misunderstanding the term hidden gluten.  A food item, of which probiotics are not covered under, can legitimately have trace amounts of gluten and still be gluten free.  There is no test that can test down to zero, regardless of what you hear.  Most testing generally tests down to 5ppm and the vast majority........  most likely 99% of Celiac's, will not have an autoimmune reaction to the food.  I am an extremely sensitive, diagnosed Celiac and I eat some processed foods, from reputable companies, and I am doing phenomenal, 11 years gluten-free.  Lots and lots of other people have this experience also. This is not an example of hidden gluten. There can be food ingredients that may be made from a gluten component that may not be as easy to distinguish but if you learn label reading as you should, with time you will be easily able to identify what is safe or something that is questionable. Can it be daunting at first to learn all this new information?  Absolutely, but if you can read, you can learn. There are also many probiotics which are completely safe.  I have been taking them for 30 years and have never been glutened once from them.  The news reports (for what they are worth now) say that there was gluten discovered in probiotics.  That does not mean all probiotics are suspect. You can find out from the Gluten Free Watchdog which ones failed and which ones did not, then make your choice to buy.  Supplements are not covered under the food laws but again.....read those labels and check with manufacturers!
      https://www.csaceliacs.org/label_reading_101.jsp   This is a pretty good page that explains it well.  
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