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Is Coeliac Disease The Only Thing At Play?

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Posted 25 May 2013 - 12:42 PM

So initially I felt fantastic going gluten free but then I had to eat gluten in preparation for an endoscopy. I thought that I would go back to feeling amazing as soon as I stopped eating gluten but it's been about 2 and a half months and it's still bad. I've also had bloody stool which apparently is not a symptom of Coeliac Disease but my doctor seems to think that it is just a hemorroid.


I want to know if anyone knows any other conditions that could be at play here because I'd rather try to fix it now rather than waiting another six months, not feeling any better.


By the way: I had blood tests done and I am not anemic, nor do I have a thyroid problem.


Would appreciate any advice/personal experience. Thank you :)

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    "The past is the past...I've got places to be."

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Posted 25 May 2013 - 02:04 PM

Are you eating simple whole foods?  Processed foods -- gluten-free or not can often be tough on the healing digestive system.


Dairy can also be tough until healing happens.


A food/symptom log can be very helpful in sorting out possible problem foods you are having during transition -- if a food (other than gluten) is bothering you...remove it for a while and then try it again after a week or more.


Hang in there :)

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Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS


ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


Celiac Mindwarp

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Posted 26 May 2013 - 12:57 AM

As Lisa said, I also struggled for a few months after my gluten challenge.

I now have a very clean diet, and identified several food intolerances. I feel better than I have for 20 years.

Hang in there, keep reading and asking questions.

Welcome to the board :)
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- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

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