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      READ FIRST: Super Sensitive Celiacs Disclaimer   09/23/2015

      This section of the forum is devoted to those who have responses to gluten beyond the experience of the majority of celiacs. It should not be construed as representative of the symptoms you are likely to encounter or precautions you need to take. Only those with extreme reactions need go to the lengths discussed here. Many people with newly diagnosed celiac disease have a condition known as leaky gut syndrome, which can lead to the development of sensitivity to other foods until the gut is healed - which may take as long as one to three years. At that time they are often able to reincorporate into their diet foods to which they have formerly been sensitive. Leaky gut syndrome leads many people to believe they are being exposed to gluten when they are in fact reacting to other foods.
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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Super Sensitive Infant
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4 posts in this topic

My son is 11 months old and is super sensitive  His celiac was noticed before he even tried gluten in person. He can detect miniscule amounts in my breast milk which has been a struggle. He also has DH which is a great indicator when he has had a bad food reaction. My question to the super sensitive people is do you have any problems with other grains? My son can't do any corn or soy derivatives without having DH flare ups. He also can't have millet, sorghum, rice, amaranth, coffee or legumes.

 

Any suggestions? Is this something he will get better about? I know that we can clear his skin totally when he is gluten, corn, soy, and grain free completely. He has no allergies and has been tested for every kind.    

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As a super sensitive, I am sure to buy grains in the whole form so that I can sort through them and remove gluten grains.  After sorting, I wash with soap.  I am sure to rinse very well.  Even at that I tend to react, so right now I am eating rice from Thailand where they don't have much in the way of gluten grains.  I still react to that unwashed, but washed I can handle it.  

 

 

Gluten free grains can be contaminated.   http://www.glutenfreedietitian.com/newsletter/contamination-of-naturally-guten-free-grains/

 

I do the same thing with coffee.  Coffee can be adulterated with barley. http://www.usp.org/food-ingredients/food-fraud-database

 

Do you have a gluten free household?  Have you checked toiletries for gluten?

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My son is 11 months old and is super sensitive  His celiac was noticed before he even tried gluten in person. He can detect miniscule amounts in my breast milk which has been a struggle. He also has DH which is a great indicator when he has had a bad food reaction. My question to the super sensitive people is do you have any problems with other grains? My son can't do any corn or soy derivatives without having DH flare ups. He also can't have millet, sorghum, rice, amaranth, coffee or legumes.

 

Any suggestions? Is this something he will get better about? I know that we can clear his skin totally when he is gluten, corn, soy, and grain free completely. He has no allergies and has been tested for every kind.    

From what I have extensively read about Celiac Disease, you cannot trigger for it unless gluten has been introduced into your diet and you are eating it. Has your son been tested for Celiac?  11 months old is young to render a positive diagnosis.  Most doctors won't even test for it at that age.  How do you know he can't have all the other grains mentioned?  

 

Allergy testing is notoriously unreliable in a child so young.  He may be allergic and not Celiac yet still test negative on allergy testing.  Was he officially diagnosed with DH?

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I'm just re- reading this and this struck me - corn and soy do not cause DH. DH is a manifestation of Celiac Disease. I'm guessing you haven't had this " DH" biopsied to see if it is DH?

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