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Gluten And Lactose Free Since 2001 (Celiac Disease)
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Hi everyone! I'm new to this forum but I thought it would finally be a good idea to find more people out in the world to talk about having Celiac disease with. I've had it since I was 9 years old. Ill be 21 this year. So who out there has good tips on eating gluten free but in a not so expensive way. So many brands out there are terribly expensive but they have come a long way since when I was diagnosed, there was about 2 brands I knew of. Now there are so many companies coming out with gluten free items, they have it on commercials, movies, magazines! Being Lactose intolerant is also pretty difficult to deal with at the same time. I can still eat a small portion but I will get gassy and that's never good! haha so anyways, since I was diagnosed, I have always wanted to make it easier for people to eat gluten free. anyone who has never had a food allergy will never understand how hard it is to go to sports meets and not be able to eat pizza or subs like everyone else. I always had to carry a lunch box around with yogurt or fruit instead because I was allergic to all the good food! slowly restaurants started to carry gluten free menus and it made life that much easier. MY dream since then has been to open my own restaurant that is dedicated to people with Celiac Disease or even just gluten intolerant people. Anyone have any thoughts on that? what would you like to see served here? would your friends who dont eat gluten free join you?

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Hi there and welcome to the forum.

I tend to get as much fresh food as I can, and the prices are comparable to the rest of my gluten eating family that way. I just found the gluten free products didn't suit me, because of other food intolerances. I avoid dairy too! I mostly carry a lunchbox.

Have a good read around, try out the baking thread for food ideas, and ask more questions.

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Just want to say welcome and I would LOVE to eat in your restaurant!

 

It would be so freakin' great to eat out in a safe, 100 percent un-contaminated place. I know my non-gluten-free friends would go there too just so we could all enjoy a meal together like the old days, sigh. There are so many good, fresh dishes that anyone would like. Just make sure you serve wine too and I'll be there LOL...

 

You've been at this forever, you must be a real pro.

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      DH is celiac disease that appears on the skin (gluten triggered).  It does not appear when you are consuming dairy, which sounds like a separate issue for you.   A DH biopsy requires active lesions (new/fresh) from consuming gluten.  So, if you want to be tested via a skin biopsy you must go back on gluten.  Finding a dermatologist who knows exactly how to biopsy for DH is often difficult.  Be sure your Derm is knowledable and has biopsied for DH before. Why no endoscopy for now?  I bet your GI  knows that your insurance will deny the endoscopy.  After all, you tested negative to the blood panel.  Your GI should not even ordered the blood panel knowing that you had been gluten free for months.  You have to be consuming gluten daily for 8 to 12 weeks for the blood test to be accurate.   Did you ever test positive?  Why did your primary diagnose you?  Having the gene just means you can develop celiac disease.  Some 30% of the population carries the genes.  The gene test should only be used to help rule out celiac disease.  
    • How effective is HD skin biopsy after being gluten free for a year
      No one can say exactly how long you might be able to get a positive dh biopsy after having been gluten free as long as you have been. The Chicago Celiac Disease Center says this: http://www.cureceliacdisease.org/faq/im-scheduled-to-have-a-skin-biopsy-to-screen-for-celiac-disease-should-i-maintain-a-gluten-containing-diet-similar-to-those-who-are-being-screened-via-blood-or-intestinal-biopsy/ http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ You said you had a flare of the plaque psoriasis -- that is NOT dh so why do you think the dh biopsy will show positive? Testing positive for the celiac genes does not mean you have celiac disease. 30+% of the population have the celiac genes but only very, very small fraction of those people do or will present with celiac disease. The gene tests are only used to rule OUT celiac NOT to diagnose it. Frankly, I can understand why your GI does not put any stock in your Primary doc's thinking you have celiac disease. A positive celiac gene and the boils in your armpits which the GI never saw and were never biopsied for dh but they resolved on a gluten free diet and so did your plaque psoriasis. That's all the GI has to go on. I don't know why you are pushing an endoscopy. If you've been eating strictly gluten free then an endoscopic biopsy for celiac will be negative.  Your PCP should have done a celiac blood panel on you back when you were still eating gluten rather than dx you based on the celiac gene you tested positive for.
    • How effective is HD skin biopsy after being gluten free for a year
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