Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Jewels50

Recommended Posts

Jewels50 Apprentice

Recently, I went to a Five Guys and Fries.  I let them know at the register of my "allergy".  I actually have Celiac Disease.  I watched, as I usually do, as they cooked and prepared the food.  There was one employee who, for whatever reasons, would not stay in her station.  She was all over the place.  She'd touch the buns and then use the same gloved hands to reach in the bag, pull out the fries and put them in the "dedicated" fryer.  I asked the employee to please change her gloves after touching the buns, which she did, but stopped doing after she thought I wasn't paying attention.  I chose not to eat my meal.

 

Yes, I called Five Guys 1-800 number and spoke with a person there.  I got an e-mail from the general manager (?) who seemed genuinely concerned BUT he's busy with 11 Five Guys and a couple of other entities.  He offered to "send me a gift OR refund the price of my meal if I still had the receipt."  Really?!?  Wow.  No, just train and educate your employees!

 

Here is the response I received from Five Guys on FaceBook:

 

Open Original Shared Link

Hi Julie,

Thanks for reaching out. I'm sorry to hear about your recent experience and I apologize on behalf of the staff at the Morehead City location. Though we wish we could prevent cross contamination, this is possible. When someone writes in to us, we are sure to highlight that our rolls, malt vinegar and fry sauce contain gluten and although we do our best to only toast the rolls on a separate grill, there is always a chance for cross contamination. Our fry sauce is only served in Utah. Our French fries are just potatoes that are soaked in water, then cooked in peanut oil. This fryer is dedicated and nothing else is fried in this oil.

Again, I'm sorry about your recent experience and hope you can give us another chance.

Thanks,

Kenneth

 

As it was pointed out in another thread, fast food restaurants are best left as off limits to those of us with Celiac Disease.  I thought that Five Guys was "different" with their dedicated fryers, but after my experience, I will not take a chance by eating there again. 

 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfkikamonster Newbie

I just thought I'd write in with a little counterpoint here. We all have to make our own decisions but what you described is exactly why I am willing to occasionally eat at places like Five Guys. I can watch everything they do and I am not afraid to refuse food or carefully explain why and how I need them to remake it. I have never had to ask for a refund, and while they may grumble about me when I leave I also don't get sick.

Also, Five Guys in particular varies wildly. We have one near us that has someone who declares an allergy alert and they all spring into action freeing one person up to make my meal so that they don't have to keep changing gloves. Another I have to watch like hawk because they have put a bun out for mine. (And I have to get them to replace the foil and change their gloves.. )

Needless to say I reward the good location with my business.. Which results in them getting the business of my friends too usually.

None of this is to blame you for your decision, which I probably would have made in your shoes, but just to provide a counterpoint that not all is necessarily hopeless everywhere and forever. :-)

Link to comment
Share on other sites
Jewels50 Apprentice

I just thought I'd write in with a little counterpoint here. We all have to make our own decisions but what you described is exactly why I am willing to occasionally eat at places like Five Guys. I can watch everything they do and I am not afraid to refuse food or carefully explain why and how I need them to remake it. I have never had to ask for a refund, and while they may grumble about me when I leave I also don't get sick.

Also, Five Guys in particular varies wildly. We have one near us that has someone who declares an allergy alert and they all spring into action freeing one person up to make my meal so that they don't have to keep changing gloves. Another I have to watch like hawk because they have put a bun out for mine. (And I have to get them to replace the foil and change their gloves.. )

Needless to say I reward the good location with my business.. Which results in them getting the business of my friends too usually.

None of this is to blame you for your decision, which I probably would have made in your shoes, but just to provide a counterpoint that not all is necessarily hopeless everywhere and forever. :-)

I understand your counterpoint and that is one of the reasons that I made the conscious decision to eat at Five Guys. Until my most recent experience. In spite of my telling the cashier of my "allergy", in spite of telling the employee doing the cross contaminating, THIS particular Five Guys restaurant employees were obviously not properly educated and/or trained.

And the same person/manager runs 11 more. : (. Which ones and are the employees of those being trained and educated similar to the one I had the bad experience with?

Cross contamination is a big issue for those of us with Celiac disease. And handling the buns (putting them on the grill) and then reaching into the bag of uncooked french fries with the same gloves is a source of cross contamination for the fryer and it's entire contents. It didn't stop there, she wrapped the burgers with buns, handled the condiments and placed the uncooked burgers on their dedicated grill. Everything in the area IS cross contaminated unless it is thoroughly cleaned.

Can fast food chains really be "gluten free"? It seems that some are jumping on the gluten free band wagon without really taking the time to make sure that is actually happening by educating and training employees BEFORE they start working. Also, how can they possibly make sure that employees are actually implementing the education and training while working? All it takes is one untrained employee handling the buns and then putting fries in the fryer.

There is a thread on here about dedicated fryers. Well worth the read.

Link to comment
Share on other sites
karichelle Newbie

No restaurant that is serving gluten containing products can TRULY be gluten free -- there will always be a chance for cross contamination.

Link to comment
Share on other sites
mbrookes Community Regular

I, too, will stand up for 5Guys. My local one is all I can comment on. When I say "I have a gluten allergy" The person at the front yells "Allergy alert". Every employee changes gloves and only one person touches my food. May I add, I have never had a reaction and have never seen any sign of a bad attitude.

Link to comment
Share on other sites
karichelle Newbie

Five Guys gets mystery shopped quite often, and they pay a firm to do this because they care about quality and certain procedures being followed in ALL of their restaurants. Corporate is legitimately concerned about the customer experience at their restaurants.

Link to comment
Share on other sites
larry mac Enthusiast

At the risk of bringing grief on my head, I'd like to express an opinion.

 

I'm well aware of the "heebie jeebies" one can get in an eating establishment, bordering on feeling like a panic attack is imminent. Once you get that "unsafe" feeling, and just know that you're gonna get glutened if you eat there, it's impossible to ignore it. 

 

However, for me, I don't think there would be enough gluten molecules transferred from the glove to the entire grease and fries filled fryer to contaminate a few fries. If that's all I was worried about, I'd gladly just minimize my fries intake, in order to enjoy a tasty gluten free cheeseburger. Full disclosure, I'm not super sensitive. So there's that to consider. I have gotten deathly ill several times. So I'm pretty careful, and hardly ever eat out. I am partial to a good burger though.

 

best regards, lm


 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Nacina's topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    2. - Nacina posted a topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    3. - trents replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.

    4. - Fluka66 replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.

    5. - Moodiefoodie replied to Moodiefoodie's topic in Related Issues & Disorders
      9

      Joint swelling when ill even on gluten-free diet


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,064
    • Most Online (within 30 mins)
      7,748

    Nacina
    Newest Member
    Nacina
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
    • Nacina
      Hello, I am a 45 year old mom, who was diagnosed at 29 with Celiac. My now 14 year old son was diagnosed just before his 4th birthday. Needless to say, we are old pros with the diet. He was experiencing some issues, overall health took a major plummet a year ago, and through a bit of work, was diagnosed with EOE. Tried diet alone, but his follow up endoscopy didn't show the improvements his DR. wanted to see, so I tried the medication. (Steroid). He became extremely backed up, and they had him taking Miralax daily. His health plummeted. He is a straight A honor's 8th grader who plays club soccer very competitively. His health continued to decline and at 13 had a colonoscopy and another upper gi. (He was still compacted even with the prep). I finally pulled him off all meds and mira lax, after reading much negative literature online, and put him on a gut detox diet and took him to a nutrition response dr. Finally things have improved. However...over a year later and he is having relapse stomach pain, debilitating stomach pain. Missing a day of school a week, to three this week. This is where we downward spiral with him. He says it doesn't feel the same as when he has gotten backed up before. He is eating prunes, taking his supplements, drinking water...all of the things. Yet, he is feeling horrible. Pain is abdomen, headache, lethargy, diarrhea . He is on a strict gluten dairy, egg free diet. He has adapted well in regards to diet. But I feel like we are missing something here. He is too active, too outgoing to be feeling sick all of the time. His Bilirubin is constantly high. His white blood count always runs slightly low. His vitamin D was very low last time he ran tests, (last month) when he was sick for a week. His celiac markers show negative, so it isn't that. His last endoscopy showed no Eosinaphils in his esophagus.  I have taken him to multiple Ped. Gastro specialists. They run tests, and we get zero answers. I meticulously go through labs, hoping to make some sense and maybe catch something. Any thoughts or ideas would greatly be appreciated. 
    • trents
      But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo  the "gluten challenge" before testing but you need to understand that the testing may be a waste of time if you don't. What are you going to do if it is negative for celiac disease? Are you going to go back to merrily eating wheat/barley/rye products while living in pain and destroying your health? You will be in a conundrum. Do I or do I not? And you will likely have a difficult time being consistent with your diet. Celiac disease causes inflammation to the small bowel villous lining when gluten containing grains are consumed. This inflammation produces certain antibodies that can be detected in the blood after they reach a certain level, which takes weeks or months after the onset of the disease. If gluten is stopped or drastically reduced, the inflammation begins to decrease and so do the antibodies. Before long, their low levels are not detectable by testing and the antibody blood tests done for diagnosing celiac disease will be negative. Over time, this inflammation wears down the billions of microscopic, finger-like projections that make up the lining and form the nutrient absorbing layer of the small bowel where all the nutrition in our food is absorbed. As the villi bet worn down, vitamin and mineral deficiencies typically develop because absorption is compromised. An endoscopy with biopsy of the small bowel lining to microscopically examine this damage is usually the second stage of celiac disease diagnosis. However, when people cut out gluten or cut back on it significantly ahead of time before the biopsy is done, the villous lining has already experienced some healing and the microscopic examination may be negative or inconclusive. I'm not trying to tell you what to do I just want you to understand what the consequences of going gluten free ahead of testing are as far as test results go so that you will either not waste your time in having the tests done or will be prepared for negative test results and the impact that will have on your dietary decisions. And, who are these "consultants" you keep talking about and what are their qualifications? You are in the unenviable position that many who joint this forum have found themselves in. Namely, having begun a gluten free diet before getting a proper diagnosis but unwilling to enter into the gluten challenge for valid testing because of the severity of the symptoms it would cause them.
    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
    • Moodiefoodie
      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
×
×
  • Create New...