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Eating Gluten Free Makes Me Starving!
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28 posts in this topic

And btw, I will get those things that you say, once I get a job. Thanks so much :)

In the interim, eat proteins and fibers and vegetables. A little fruit. Try to stay away from sugar - and if you do coat it in fat (full fat ice cream).

Eat BEFORE you get hungry. Don't skip meals, always include a protein with every snack and meal.

That's how most handle hypoglycemia. You'll notice when you get it right.

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Ads by Google:

not sure anyone said this but...nuts and seeds! Protein Fat and Fiber! Larabars might help too, give you the idea you are eating a candy bar but it's all healthy and gluten-free.

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I'm not sure if I have this right but...

 

You think you're celiac but don't have an actual diagnosis?

 

You're currently having weight gain issues and are eating gluten.

 

You lose lots of weight when you eat gluten free.

 

You're anxious and don't want to talk to your mom about it.

 

1. If YOU think you're reacting to gluten and are currently experiencing weight gain issues, stop eating gluten.  The anxiety should start to solve itself over time.  Doesn't happen overnight.  Its a process.

 

2.  You are young and should experience intestinal healing if you have villous atrophy.  This will help you get the nutrients your body needs.  The long term effects of being gluten free are AMAZING if you are allergic to gluten.

 

3.  Address the weight loss bridge when you arrive to it.  My previous post is just one of many examples available for what you can do to cram calories and protein into your diet if you need them.  When I went gluten-free at first I lost LOADS of weight and had to pack calories for awhile to get it back up.  

 

4.  Don't let this process consume you and define you or your anxiety will continue.  Live every day that God gives you.  Don't ruin it on "Oh my God I accidentally let a piece of bread touch my finger".  If it happens, wash your hand and move on.  Don't sweat the small stuff.  You're going to have trial and error, slip-ups, we're human, do what you can do.

 

Unless you are having some seriously major issues you really don't need a bunch of doctors, tests, and appointments to help yourself.  However, over the long term, if you are celiac having the actual diagnosis is helpful to have for various reasons as you go to college or move into the workforce.  For example, if you're traveling for work, they may make extra accommodations for your travel dining if you have an allergy.  It's also important for your family physician to know if you are celiac over the long term because it could affect how aggressive he is in treating certain symptoms.

 

So...  If you're celiac, at some point, somehow, your doctor needs to know.  If your parents have insurance and if you are still covered on it make up an excuse to go to the doc for your sinuses or whatever and while you are there insist on a celiac blood test.  If you just go gluten free, start doing fine, and want the diagnosis in the future you'll have to do the gluten challenge and be forced to eat it in order to make the test work accurately.  It can't detect it if its not in your body.  And by then you could have healed enough that your body lets its guard down and you have a major reaction to it, which would not be fun.

 

My two cents...

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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