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Thoughts On Hoda

today show

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23 replies to this topic

#16 GottaSki

 
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Posted 02 June 2013 - 07:12 AM

 

 

The phrase "ignorance is bliss" is what came to mind after watching Hoda and Kathie Lee discuss what they think of men who have to eat gluten-free.  For many who have to follow the gluten-free diet, it is not a choice, but a medical necessity, myself included.  Instead of dissecting the segment and pointing out everything wrong with Hoda and Kathie Lee's comments, I choose to educate.  As an elementary teacher, it's in my nature.

 

 

I love this!!!!

 

Thank you for sharing :)


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


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#17 Brandiwine

 
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Posted 02 June 2013 - 08:29 AM

What is it about shows making Celiacs out to be weaklings?! She saying a Celiac can't put away a steak?! ( not this Celiac cause I'm Vegan which she also makes a comment about in one if her videos where she says we should stay home and eat our pre-prepared meals) she acts like a man with Celiac is cutting his food with pinkies up!!! Unbelievable at the ignorance of this women! At one point they say she wants a "caveman" that's right at her level of intelligence!!
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Vegetarian, Gluten Free diet since 03/2013, sensitivity to raw onions, soy, allergic to Cinnamon


#18 Fire Fairy

 
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Posted 02 June 2013 - 10:00 AM

I made a petition but I'm not sure it's safe to link it here and I don't want to get blocked from here! ;) If it's ok someone let me know and I'll post it. If not it's on the petition site title "Today Show Coverage of Celiac Disease and Gluten Intolerance" it's not perfect but I tried. :)

 

This is what I wrote on the petition I also just sent it to the page powerofpositivethinking linked.

 

Dear producers of the Today Show, The Celiac and Gluten Intolerant Community has been deeply hurt by the opinions expressed by your on air team. In the case of Hoda Kotb not only did she say gluten-free men were not attractive, in her apology she called us "The Gluten People" which struck our already offended community as derogatory. The problem is lack of education. While Celiac disease and Gluten Intolerance are more widely known today than 5 years ago that knowledge doesn't seem to have spread to your program. 1 in 133 people have Celiac disease. Some people are silent Celiacs and don't realize Gluten a protein found it wheat, barley, rye, and spelt is quietly destroying their intestines. Some Celiacs can feel the pain but are still wrongly diagnosed. The more people are educated the better chance Celiacs are diagnosed before permanent potentially fatal damage is done. This disease can kill slowly and painfully. It is not a laughing matter. Especially for the children affected. Please consider these children with Celiac disease must be 100% gluten free. This includes hidden gluten. Hidden gluten might be for example an additive used as a filler. These children must be protected from cross contamination. Parents of non-Celiac children don't understand that fact. Shows that promote the idea it is just a fad cause parents of non-Celiac children to be unaware that feeding a Celiac child a regular cookie could put the child in the Emergency room. Mocking Celiacs on your program can cause the children who watch to mock their Celiac classmates. A child with an Autoimmune disease has enough problems without adults encouraging children to mock them for being ill.

Celiac disease is a life long condition. Celiacs can not cheat on their diet without serious repercussions.
We would like your program to treat this as a serious topic and not a fad diet. We would like to see you interview a Doctor who knows that Celiac Disease is a disease. That would be the greatest apology you could give.

 

 

PS on the note to the Today Show E-mail I added an explanation that calling us "The Gluten People" is derogatory in the same way saying "Those People" in regards to an ethnic group is derogatory.


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If you over-salt a dish while you are cooking, that's too bad. Please recite with me the real woman's motto: 'I made it, you will eat it and I don't care how bad it tastes!'-unknown

#19 Fire Fairy

 
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Posted 02 June 2013 - 10:01 AM

wow  :o  pure ignorance, and so sad.  I've never cared for them.  it's supposed to be a news show, and it's like it's a girls night with magazines and wine.  you can send comments here to the Today Show http://www.today.com...y/#.Uatd72Q_9U8

 

 

I went to town on my response, and tried to not belittle them, but lay out the info.  enjoy  :P

 

The phrase "ignorance is bliss" is what came to mind after watching Hoda and Kathie Lee discuss what they think of men who have to eat gluten-free.  For many who have to follow the gluten-free diet, it is not a choice, but a medical necessity, myself included.  Instead of dissecting the segment and pointing out everything wrong with Hoda and Kathie Lee's comments, I choose to educate.  As an elementary teacher, it's in my nature.

 

First, there is such thing as a wheat allergy, but that is completely different than celiac disease and non-celiac gluten sensitivity, moving forward these will be referred to as celiac disease and NCGS.  A wheat allergy is an anaphylaxis reaction.  It is possible to have both a wheat allergy and celiac disease/NCGS, but they are completely different entities.  An anaphylaxis reaction is immediate, and may involve swelling of the throat.  celiac disease/NCGS have reactions that can begin anywhere from 30 minutes to several days after eating gluten.  Every time a person with celiac disease/NCGS eats gluten it triggers a reaction.  For individuals with celiac disease, it means antibodies being produced against gluten.

 

With antibody production, over time celiac disease can lead to vitamin and mineral deficiencies since gluten damages the villi of the small intestines.  Villi are small, finger-like projections that line the small intestines and are essential to absorbing nutrients.  When these begin to be damaged, the body is not able to get nutrients from food, and the only way to stop this damage is to remove ALL gluten from a patient's diet.  In addition, when these villi tips are blunted and damaged, the enzyme lactase, which is produced at the tips of the villi, can no longer break down lactose, which is why many with celiac disease/NCGS are unable to have and digest dairy products.

 

Then there is the whole issue of cross contamination in a restaurant.  It is not as easy as asking the server if the item has gluten in it, trust me, I wish it was that easy!  If a gluten free item is prepared in the same area, with the same utensils, same pans as gluten items, cross contamination probability is very high.  Some restaurants in the US, have their staff go through preparation courses on how to prepare food safely for those with celiac disease/NCGS.

 

With the Today Show being based in New York, you have access to some of the best doctors regarding celiac disease/NCGS.  Dr. Peter Green at the Celiac Disease Center at Columbia University and Dr. Alessio Fasano in Boston.  The View has invited Dr. Green on their show. 

 

Currently 97% of those with celiac disease are undiagnosed.  No longer are the days when celiac disease means a patient is emaciated with diarrhea, but now they can also be constipated and obese.  Please use your leverage in the media to educate your viewers about celiac disease/NCGS, instead of Hoda using us as the target of her insensitive remarks. Thank you, and I look forward to seeing what NBC does to create tolerance for those with celiac disease and NCGS.

Excellent I'll go visit that page as well.


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If you over-salt a dish while you are cooking, that's too bad. Please recite with me the real woman's motto: 'I made it, you will eat it and I don't care how bad it tastes!'-unknown

#20 Ksee

 
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Posted 02 June 2013 - 02:24 PM

I'm not taking up for anyone's ignorance so please don't take this wrong. There are people who take things to the extreme and without any understanding of nutrition or disease think gluten is another word for wheat processing in things like bread, cookies, cakes and so forth. 

These people put themselves on a "gluten free" diet because they believe it is natural and healthy without any symptoms or diagnosis. Gluten Free is a fad diet for some people. I'm not the only one to of run into this am I? These people don't do us any favors for increasing awareness or understanding.

Have you ever had a health professional look at you sideways when you said something about celiac or gluten intolerance? It's like they want to roll their eyes at you? I have had to explain that I wasn't into fad diets and if I were I would pick one that didn't require me to give up my pasta :)

I think this is the result, our disease is being minimized and reduced to the perception of overly picky squeamish people by the public. Hoda's ignorance is still ignorant but she's not the only one.


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#21 Fire Fairy

 
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Posted 03 June 2013 - 02:54 PM

I know she's not the only one she just happens to be one that has a forum that our community might be able to reach and get a little education out there. We can hope anyway.

 

I totally know what you mean about the Dr looking at you sideways, I'm going with my mother tomorrow to try to talk her Dr into running the blood test. I suggested it before and was told there were more important issues and we would look into that later. Sigh


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If you over-salt a dish while you are cooking, that's too bad. Please recite with me the real woman's motto: 'I made it, you will eat it and I don't care how bad it tastes!'-unknown

#22 Lisa

 
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Posted 03 June 2013 - 04:42 PM

The best think they could do on the Hoda and Kathy Lee Show is to have Joy Baurer on the show, from the Today Show.  As in the past, she truly knows her stuff and is knowledgable and very much aware of the current issues with Celiac Disease, diet and marketing.

 

I corresponded with her about a year or so ago on a segment she did....to follow up on the mess of a segment Dr. Snyderman did on Celiac.  She was responsive and wrote me a lovely reply in appreciation.

 

And on Hoda, well....Don't we all know a Hoda.  They don't want to date one, have one out to dinner, much less cook for one so picky.  And as someone already said, they don't want to invite us because they don't want to make us feel uncomfortable when we just don't "fit it in".  Well, those people are not my friends, and I can just as easily change the channel in the morning ...and I do.  As disappointed as I am, Hoda does not change the barometer in my life.  Nor should she yours. ;)

 

She expressed her opinion, and is entitled to that, just as we are here on this forum.  She's not a convert.  I would throw my efforts around to Joy Bauer, should you choose.  Joy will make a difference, in her proper way with her little bitty self.

 

....jmho


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Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#23 killernj13

 
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Posted 04 June 2013 - 09:04 AM

WOW - that was no apology IMO.

 

I stopped watching the Today Show for the way they fired Anne Curry and for Savanah Guthrie's insensitive comments about celiac disease over a year ago. She rolled her eyes and called celiac disease a trendy disease in a segment on gluten free diets.


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#24 cap6

 
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Posted 04 June 2013 - 02:03 PM

Hmmm....  I never watch those shows and guess I won't after reading all of this!  One day their ignorance will grab them by their >>>!!! :)


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