Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

A Story And A Question! Testing Symptoms
0

1 post in this topic

Hey guys, this is my first time posting on this Forum so i'd figure I would first tell my story so you get some background on my situation to better assist me with my question!

 

I'm 24 years old, male that has tried to be gluten free for about 4 months. I eat extremely healthy. I never got tested for celiac or any gluten allergy, I never had the money for the test or to see any doctors. I'm currently in school to become a dietitian, so I felt up to the challenge to fix myself. It all started july of 2012 when I was noticing my stools where getting wierd and weren't normal logs anymore. alot of diarrhea and problems. So, like any college student I was like maybe it's the drinking, or some unhealthy food I was eating. So I just started to cut foods out and eatting super clean; but nothing was really fixing it. and it was just getting worse; I would get horrible pressure in my stomach/small intestine, this pressure wouldn't go away. and I would start getting dizzy sometimes.

 

Anyway, fast forwarding In January of 2013 I met someone who was gluten free and after talking to them I was like, I guess I'll give it a shot. By this time I was already eating extremely healthy since I was doing everything possible to fix this, so It wasn't that hard to just start cutting out wheat and gluten. Within a week of going gluten free, all my symptoms went away. The pressure in my stomach even went away and slowly my stools started to become fuller. Within a month I felt stronger and healthier. So, I was like maybe I found out what fixed it!

 

So for the past 4 months I kept up with this diet; Wasn't nearly as I thought. But, sometimes I would still have problems here and there but in general it was alot better. So randomly, 4 days ago I was eating this new gluten free soup that I wanted to try and the pressure came back within 15 mins of eating it, full on as if I just ate a piece of bread or something. No idea what happened. So confused, tons of gas and all this other crap. So, after a day it went away; and I was thinking what the hell was that since it didn't have any wheat or gluten ingredients in it, to be honest, it didn't have much of anything. So, in the back of my head I always realized that when I cut out gluten I also at the same time cut out all lactose from my diet. I actually drank lactose milk because that's just what we had. So, I was like, "maybe I just had a lactose problem this whole time and not gluten". (mind you the soup didn't have any milk in it; I was just freaking out, haha) With this I tried a small piece of bread with one of my meals at like 6pm and waited for any symptoms to occur. Suprisingly, nothing happened.

 

The next morning I actually had one of the fullest stools I have ever had. Basicly this gave me no help and I was now more confused. I continuted with my day and completely forgot about the bread that I ate last night and went to class eating my normal gluten free meals. Around 12:00 pm I was eating a normal salad and into half way of finishing it the pressure came back; but it felt like just gas; It would come and go within a second to a min. When I finished my salad and continuted my classes my stomach was having a hard time digesting something. I was having massive gas during class; and I was worried that I was going to have one of my IBS attacks, which is what I use to call it when i didn't eat gluten free. I toughened up and made it all the way back home before getting nauseous and having to run for the bathroom. Needless to say this was not a normal stool. Finishing my day with a little upset stomach, I went to bed completely stressed out and had no idea what triggered that event considering that if it was the bread that would have been 18 hours since I digested it. As I said before in the past if I by accident digested something that was bad I would know within 30 mins tops. I'm incredibly good shape and have a very fast metabolism.

 

In conclusion, I know this story is super long but I would appreicate it so much if someone could maybe shed some light on this situation. I'm open to answering any questions you may have. I'm a body builder so I know extactly what goes into my body and when. I write everything down and know the extact amounts of everything. I can be really precise on my diet if someone needs any information. Just to add, this morning, I didn't have a great stool either,  but it was okay. my stomach felt a tiny bit upset after eating gluten free oats for a few seconds, but it's been almost 2 hours now and i'm feeling healthy and well.

 

ps. I'm surpised I wrote this much haha. Thanks again so much to anyone that helps!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,338
    • Total Posts
      917,381
  • Topics

  • Posts

    • Could this possibly be related to celiac or a gluten intolerance?
      Welcome, @ModernLifeIsWar! Celiac has over 300 symptoms, but it looks like you have some symptoms that appear a lot in those diagnosed with celiac. I suggest you take these symptoms to your doctor and ask for a GI consult and to get the full blod panel to test for celiac disease. The gold standard is an endoscope, where 4 or more biopsies of the intestines are taken. The caveat is that you must be on a diet with gluten for all tests to be accurate, and you must continue eating gluten until all testing is done.  So, if it were me, I would start eating gluten again and get that referral.  However, you need to make the decision that is best or you. 
    • Could this possibly be related to celiac or a gluten intolerance?
      I don't have any real major stomach issues, however I've had a diet for years very high in gluten consisting of tons of junk food (pizza, cookies, cereal, donuts, etc..).  A few symptoms I have noticed over the years have been: -Migraines (very frequent) -Large increase in eye floaters -Very bad sinus congestion -Very bad anxiety -Semi frequent bouts of diarrhea/runny bowel movements. Not all the time, but it certainly happens more than I feel is normal.   However, in terms of stomach pain I haven't noticed much. I do get very bloated sometimes however, mainly just contributed this to my crappy diet. Anyways, since the beginning of April I've been having a lot of neurological issues and after reading more into gluten intolerance I'm wondering if it couldn't be associated: -Full body tremors ranging from hands, arms, legs, and core. (i.e. I shake a lot when doing stuff with my hands, if I try to do sit ups my whole body will shake, etc..). I've had minor hand tremors in the past but this problem has recently blown to a whole new level -Muscle spasms all over and mild cramping -tingling feelings randomly throughout my  body in all parts including face and head -Shortness of breath -Racing heart rate when doing physical activity (i.e. walking upstairs and I'm a fairly active person) -Minor issues with balance and coordination -Brain fog   I'm going to see a neurologist in 3 weeks, but I decided to give gluten free a try as of two days ago. I've also been taking a lot of important vitamins and nutrients (b12, d, b complex, fish oil, magnesium, etc..). I'd be interested to know if anyone here has experienced similar symptoms (most notably tremors and muscle spasms) and had success switching to gluten free. I've seen anecdotal cases posted, so I'm hoping that maybe this is my issue. Another thing to note is my younger sister has very bad stomach issues. She hasn't seen a Dr about it and can't follow a diet to save her life, but she commonly complains of pain, gas, bloating, nasty bowel movements, etc... after eating out. So I think there is a possible genetic factor here. What would be the best Dr to seek out in helping me diagnose such a thing? Also is it normal to have stomach issues AFTER starting gluten free? Today is my third day and I've had 2 bouts of diarrhea and very loud stomach growling. Possibly from switching from a diet full of sugar and gluten to one with significantly less and gluten free?
    • Weird Reaction
      Hi Cristiana, You are quite right, there could be something wrong with the batch. I have often wondered this myself when I've had symptoms. A lot of manufacturers recall products when they find contamination issues, I often wonder though, how many products 'sneak' under the radar and no-one knows for sure; it could be the reason why so many of us wonder what we did to get 'glutened'. 
    • 9 year Old going through testing
      Thank you everyone. I have scheduled a second opinion. He last biopsie came back and he is lactose intolerant.     
    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,472
    • Most Online
      1,763

    Newest Member
    ModernLifeIsWar
    Joined