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My Test Came Back


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30 replies to this topic

#1 w8in4dave

 
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Posted 31 May 2013 - 05:17 AM

My test came back negative , I was shocked to find this out!! I really cannot believe it! So I have decided to just go Gluten Free!! I know I have gone Gluten free for 3 days and OMG the difference was amazing!! I know it seems odd that 3 days would make me feel so wonderful but it did!! So I decided that if my test came back negative I'd go gluten free, I don't need the Dr. To tell me to go gluten-free , I need me to take care of myself! Thats all!! Just take care of myself!! It just makes sense to me!! I used to do the Atkins diet, was told it wasn't good for me!! I quit a few years ago , and lo and behold I started having problems. Now mind you I don't have some of the problems alot of you have but I have problems! And the more I thought about it! The more it dawned on me! I was eating meat and fresh fruits and veggies and Atkins! Bingo!! SO back I go eating the way I did before!! I'd like to thank this forum for helping me!! I know I am new and have to have every thing I say approved my a mod. But just reading everything you all have to say is a great help!! It sure made me think!! And now I have an answer!! TY so very much!! 


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Recovering Gluten Eater 

DX'd June 17th 2013


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#2 Deaminated Marcus

 
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Posted 31 May 2013 - 06:00 AM

Best of luck with your diet improvements and keep us informed about your health progress.


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#3 nvsmom

 
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Posted 31 May 2013 - 07:47 AM

I hope the symptoms of your NCGI continue to improve as time goes by.  :)  You have a great attitude about starting the gluten-free diet - I'm sure that will help you immensely.  Check the boards for recipes and more tips on recovery if you need them.

 

Good luck!  :)


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Nicole Posted Image

"Acceptance is the key to happiness."

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Hypothyroid - August, 2012

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#4 gatita

 
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Posted 31 May 2013 - 09:29 AM

Yep, welcome to the club! You have a great attitude, and I hope you stay involved with these boards, they are SO helpful.


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Diagnosed with wheat hates me 4/13


#5 GFinDC

 
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Posted 31 May 2013 - 09:36 AM

Congrats!  Figuring out the issue yourself is just as valid as a doctor doing it IMHO.  Most celiacs are undiagnosed or mis-diagnosed with a different condition.  The medical establishment doesn't have a great track record with diagnosiing celiac disease.  Kind of a lousy one in fact.


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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#6 w8in4dave

 
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Posted 31 May 2013 - 12:07 PM

Thank you so very much!! I am glad you all "Think" I have a good attitude , this is like day 2 of my changing habits!! We will see how my attitude is in a couple of weeks  :wacko: LOL! Really was hard today !! I went to a friends house and they keep offering me food!! Want some toast? Want some muffins? Want some chips? No no and no thanks! I just told them any carbs I eat have to be from Natural sources ... Like potatoes and rice, They are elderly and I was not going to go into Celiac with them. SO I stayed there quite a while and didn't eat 1 piece of Gluten!! :) not one drop!! I didn't even have a cup of tea!! 

 

Now to get a pic up :) 


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Recovering Gluten Eater 

DX'd June 17th 2013


#7 w8in4dave

 
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Posted 31 May 2013 - 12:12 PM

By the way I am the one on the right of my profile pic. That is the pic my daughter and I took on Mothers day :) She is also going to be tested for Celiac.


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DX'd June 17th 2013


#8 surviormom

 
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Posted 31 May 2013 - 01:44 PM

I think you are making a smart move.  My test today said no celiac sprue identified, that I am a NCGI ( actually I think the word used was Sensitivity but I think they are the same)  Explained to me that, if I continued to eat Gluten products I could end up being Celiac.  I have not been eating Gluten products for the past year, only occasional incidents.  Well.  I do not need a diagnosis.  I just will never the touch the stuff again, not intentionally anyhow.  Same plan for my kids,

 

So, good for you.


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Gluten Free 2012 - Dairy Free 2012 - Acid Reflux Diet 2013

Chronic Gastritis 2013 - Peptic Duodenitis 2013 - Hiatal Hernia 2013 - C-Diff 2013 - Endometriosis 2013 - Uterine Fibroids 2013

Patellar Tendonitis 2013 - Arthritis 2014 - NCGI 2014 - Erosive Esophagitis 2014 - Barretts 2014


I have a long list of physical ailments that were being grouped into age/gender by doctors.

Began Gluten Free and Casein Free after an Allergy Test trying to find answers to health problems that the doctors just were not answering well enough. Looking back through history, I have a lifetime of allergies and gastro issues.


Learn from yesterday, Live for today, and Hope for tomorrow. The important thing is not to stop questioning.

Albert Einstein

#9 nvsmom

 
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Posted 31 May 2013 - 01:50 PM

Thank you so very much!! I am glad you all "Think" I have a good attitude , this is like day 2 of my changing habits!! We will see how my attitude is in a couple of weeks  :wacko: LOL! Really was hard today !! I went to a friends house and they keep offering me food!! Want some toast? Want some muffins? Want some chips? No no and no thanks! I just told them any carbs I eat have to be from Natural sources ... Like potatoes and rice, They are elderly and I was not going to go into Celiac with them. SO I stayed there quite a while and didn't eat 1 piece of Gluten!! :) not one drop!! I didn't even have a cup of tea!! 

 

Now to get a pic up :)

Good for you!  :) I usually try to bring some munchies when I visit, and let people fuss over my drinks (some of us just like to fuss) and then a visit goes smoothly.

 

Don't be surprised if you start feeling a bit worse for a week or so, many of us go through a withdrawal that makes us tired, grumpy and headachey.  Hopefully it won't hit you but if it does, know that it doesn't last.

 

p.s. You and your daughter look so much alike. Pretty girl.  I'm glad she is getting checked too.


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Nicole Posted Image

"Acceptance is the key to happiness."

ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012

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#10 w8in4dave

 
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Posted 07 June 2013 - 05:26 AM

TY everyone!! My daughters test came back negative also!! Thats ok she has the same attitude as I do !! She will be fine! Thank you for the nice complements!! Sorry I didn't get back here sooner! I am still figuring this place out :) ... (Lost the thread) hahaha anyway!! I have felt great!! I cannot believe the energy I have had! Taking walks lost weight! My goodness!! I was in a 14 now an 8! The bloating is gone!! I cannot believe it! If I'd of known way back then!! OMG! I didn't know it would just disappear !! 

This board is just wonderful!! I appreciate everyones post!! Thank you so very much!! Now I seen a gluten free pizza posted on FB I have got to go check it out!! :) Have a great weekend everyone!! 


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Recovering Gluten Eater 

DX'd June 17th 2013


#11 kareng

 
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Posted 07 June 2013 - 08:20 AM

! Taking walks lost weight! My goodness!! I was in a 14 now an 8! The bloating is gone!!

 

 

In 7 days?  That's a lot of bloating!


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#12 w8in4dave

 
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Posted 07 June 2013 - 04:33 PM

In 7 days?  That's a lot of bloating!

Absolutely !! It is!! it was all in my gut!! I knew something was wrong!! My pants would sag on my bottom but be tight on my gut!! I took myself off and 1 week!! Wow!! Now I don't know what I ate yesterday! But something had me a lil bloated!! I was even a lil bloated today from what ever it was!! I think I made hubbs some noodles and out of habit I tasted them to see if they were done. That is the ONLY thing I can think of!! Some times old habits are hard to break!! When I realized I did that I was like OMG what did I do? Then realized how many times I did it .... I have to break those tasting to see if something is done habit!! And stirring with the same spoon habit!! 


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DX'd June 17th 2013


#13 w8in4dave

 
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Posted 07 June 2013 - 04:36 PM

And amazingly enuf!! My gut does not hurt as much!! OMG I was walking around in pain all the time!!! I told the Dr. my gut hurts all the time!! He basically blew me off... Now right now it hurts a bit. but nothing like it did! I mean really it is nothing to complain about now!


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#14 Ciel121

 
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Posted 07 June 2013 - 04:56 PM

  It's exciting, isn't it? I remember that first week on my elimination diet...ah. I told the doctor it felt like my stomach and abdomen had simply disappeared. I swear I had to look down to see if I still had an abdomen because I felt like a floating head. :-) Great feeling. Congrats to you! Stay with it.

  I was lucky and my test came back positive, but my dad refused to go to the doctor to get tested and just went gluten-free. I kind of wish I had more testing done. All they did was a blood test. :-( I know there is genetic testing and the endoscopy, which I never actually had. I'm so excited to go to the Celiac Center at Columbia University at the end of the month. I have learned that it is very important to find a doctor who is an expert on Gluten Intolerance and Celiac disease. Were you lucky enough to find a doctor like that?

   I also recommend reading Gluten-Free Girl by Shauna James Ahern. She has a great attitude and some suggestions on how to cope. Love that book.


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#15 taynichaf

 
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Posted 07 June 2013 - 05:11 PM

My test came back negative , I was shocked to find this out!! I really cannot believe it! So I have decided to just go Gluten Free!! I know I have gone Gluten free for 3 days and OMG the difference was amazing!! I know it seems odd that 3 days would make me feel so wonderful but it did!! So I decided that if my test came back negative I'd go gluten free, I don't need the Dr. To tell me to go gluten-free , I need me to take care of myself! Thats all!! Just take care of myself!! It just makes sense to me!! I used to do the Atkins diet, was told it wasn't good for me!! I quit a few years ago , and lo and behold I started having problems. Now mind you I don't have some of the problems alot of you have but I have problems! And the more I thought about it! The more it dawned on me! I was eating meat and fresh fruits and veggies and Atkins! Bingo!! SO back I go eating the way I did before!! I'd like to thank this forum for helping me!! I know I am new and have to have every thing I say approved my a mod. But just reading everything you all have to say is a great help!! It sure made me think!! And now I have an answer!! TY so very much!! 

My tests were all negative too! And I could see a huge difference in myself within days as well :) Good luck on the diet!! :)


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