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Celiac And Multiple Intolerances


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15 replies to this topic

#1 klisja

 
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Posted 01 June 2013 - 04:47 PM

Howdy

 

Just curious, what other intolerances are you having? If so, how long before you could (if you could) reintroduce a certain food?

 

klisja


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#2 Lesx2

 
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Posted 01 June 2013 - 10:02 PM

- nightshades
- dairy, including alternates almond, rice milk, etc ( unless baked in something)
- eggs ( unless baked in something)
- lots of vegetables -especially green ones
- nuts, except for an occasional couple of almonds
-and I think my latest might be items iodine content and or salt.

Have not been able to reintroduce anything - going on 13 years now since diagnosed.

Will be curious what others have to say and any ideas/ suggestions. The refrig and pantry are the enemy I have to plow throgh when hunger hits.
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#3 GottaSki

 
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Posted 02 June 2013 - 06:25 AM

Welcome klisja!

 

I removed everything except meat, fish and select fruits and vegies over four years post celiac diagnosis.  See my signature for the complete list.

 

This past November I finally made the connection to Histamine Intolerance (HIT) due to the damage in my small intestine (the enzymes that regulate histamine in the body are created in the mucosal lining of the small intestine.)  Since I have removed all histamine containing or histamine inducing foods my health has improved greatly.

 

So it has now been 6 months since the HIT discovery and I can now eat very small amounts of the lectin foods I removed nearly two years ago -- if I overdo it I pay dearly.  For now I'm taking it very slow and sticking to my safe foods, but am very hopeful I will get many healthful foods back.

 

Oh I did get Almonds back last Fall -- that was a wonderful day as they make a great snack and can be ground into so many yummy treats!


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#4 bartfull

 
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Posted 02 June 2013 - 12:42 PM

Corn. I temporarily got just corn starch back, but lost it again after a glutening.

 

White potatoes. I don't know if I had a problem with other nightshades because I never ate them. Just recently got white potatoes back. I may try tomato sauce sometime soon. I'd love to try eggplant but I have NEVER even seen one in any of the stores or farmers markets here! :blink:

 

Salicylates. If I go easy I can eat small amounts of sweet potato and also broccoli, but if I eat too much I will get sick. I wish SO much that I could have blueberries, but they are extremely high in sals. :(

 

Oh yeah, it's been two years gluten-free for me. I'm hoping to get corn starch back again someday so I can eat gluten-free bread again, but to be honest, corn cause so much pain I'm afraid to try again.


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gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#5 klisja

 
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Posted 02 June 2013 - 01:37 PM

Thank you GottaSki :)

 

As sad as it is I am glad I am not alone :) Tests for gluten intolarance come back negative but I can't eat food with gluten in it, except rolled oats (not the quick cooking ones). Can't eat corn either or potato flour.

 

I can't eat fruits and vegetables, legumes, nuts, seeds, almonds, spices (just salt) but I can eat dairy.

 

I am hoping someday I can add some fruits and veggies to my list, tired of eating rice and meats all the time :huh:

 

Klisja


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#6 GottaSki

 
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Posted 02 June 2013 - 02:46 PM

Thank you GottaSki :)

 

As sad as it is I am glad I am not alone :) Tests for gluten intolarance come back negative but I can't eat food with gluten in it, except rolled oats (not the quick cooking ones). Can't eat corn either or potato flour.

 

I can't eat fruits and vegetables, legumes, nuts, seeds, almonds, spices (just salt) but I can eat dairy.

 

I am hoping someday I can add some fruits and veggies to my list, tired of eating rice and meats all the time :huh:

 

Klisja

 

You can't eat any fruits or vegies?

 

I can't eat citrus, pineapple, banana, mango or many berries -- but i do okay with apples, pears and peaches.

 

I can't eat nightshades, spinach or pumpkin -- but can eat sweet potato, yams, all squash except pumpkin, brocolli, asparagus, cauliflower, etc.

 

Keep trying :)


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#7 GottaSki

 
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Posted 02 June 2013 - 03:10 PM

ps...carrots??

 

I can eat lightly steamed vegies, but cannot do raw.


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#8 klisja

 
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Posted 03 June 2013 - 10:10 AM

You can't eat any fruits or vegies?

 

I can't eat citrus, pineapple, banana, mango or many berries -- but i do okay with apples, pears and peaches.

 

I can't eat nightshades, spinach or pumpkin -- but can eat sweet potato, yams, all squash except pumpkin, brocolli, asparagus, cauliflower, etc.

 

Keep trying :)

 

Not at the moment no :unsure: My colon is really sensitive and I have OAS, I react to spices and fruits. I react to kiwi, citrus, berries, mango (I think), apples and I don't know about the rest. I get really sick from eating bananas, nightshades, barley and rye.

 

ps...carrots??

 

I can eat lightly steamed vegies, but cannot do raw.

 

 Not even carrots, vegetables give me diarrhea. Maby when my colon is better :) I hope so!


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#9 GottaSki

 
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Posted 03 June 2013 - 11:06 AM

Not at the moment no :unsure: My colon is really sensitive and I have OAS, I react to spices and fruits. I react to kiwi, citrus, berries, mango (I think), apples and I don't know about the rest. I get really sick from eating bananas, nightshades, barley and rye.

 

 

 Not even carrots, vegetables give me diarrhea. Maby when my colon is better :) I hope so!

 

I hope so too...and I thought I was restricted!!!!

 

Heal up soon :)


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#10 klisja

 
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Posted 03 June 2013 - 03:14 PM

I hope so too...and I thought I was restricted!!!!

 

Heal up soon :)

 

Thank you :D


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#11 seraphim

 
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Posted 03 June 2013 - 06:46 PM

Dairy. Even the butter hates me. Possibly salicylates. Possibly nightshades, though potato doesn't SEEM to bother me.


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#12 designerstubble

 
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Posted 04 June 2013 - 04:41 AM

I'm interested to know when you all say you are intolerant...
What symptoms do you get???
Just that I have continuing loose bowels (not really diarrhea so much i think) ... all I eat is fruit and veg... Would you guys cut something out if it gave you loose bowels???
Scary thought for me, I'd basically have bugger all left to eat.
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Diagnosed Celiac Oct 2012 (Blood and Biopsy)
Gluten free / Dairy free / Caffeine / Almost sugar free / Tobacco free 2012. Corn free 2013
Vegetarian since 1986 / Asthmatic since 1990 / Migraines since 1998

 

Symptoms: Classical GI symptoms. Fibromyalgia. Odd pains. Bone aches. Severe headaches. Severe depression. Anxiety. Diagnosed with severe anaemia. Severe Vit D deficiency. Boderline Folate & B12 Defiency.

 

Since being gluten free... initially felt better for a month, still suffer with loose bowels, am currently struggling with many more allergies and intolerances to foods, such as dairy, egg, celery, oranges, tomatoes, quinoa, seeds,... Pressure hives (from Feb 2013) / Having bad leg aches during periods (June 2013)

(Marked in bold, these problems have been resolved)


#13 GottaSki

 
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Posted 04 June 2013 - 05:53 AM

My issue has always been the opposite -- can't go at all -- sometimes for over a week

 

But when I talk of intolerances - my symptoms are all over the place depending on which food -- from mild itching to brain fog to full anaphylactic reaction -- for me -- my reactions became much stronger after I had been gluten-free for some time.  Now it seems I can tolerate small portions of some things -- I've had a rough week so will not be trialing anything for at least a week, probably two.


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#14 bartfull

 
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Posted 04 June 2013 - 07:48 AM

My strongest symptom is psoriasis. All of these (corn, soy, and salicylates) make it flare badly. When I can avoid them (and gluten of course) for a long time, it completely heals. I get "loose" from all of them, but gluten seems to be the only thing that gives me "Get out of the way! Emergency!" D.


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gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#15 klisja

 
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Posted 04 June 2013 - 11:07 AM

I'm interested to know when you all say you are intolerant...
What symptoms do you get???
Just that I have continuing loose bowels (not really diarrhea so much i think) ... all I eat is fruit and veg... Would you guys cut something out if it gave you loose bowels???
Scary thought for me, I'd basically have bugger all left to eat.

 

It depends on what I eat:

swelling of the lips (that is mostly by fruit, herbs, peppercorns): loose bowel with mucus and just feeling uncomfortable (vegetables, rye, barley, bananas), white wheat products get me really tired and stupid;  tingling feeling all over (corn, rose pepper). nose running - not sure, urticaria - not sure, headace (soy sauce)

 

Maby I should look into salicylate sensitivity, the list looks alot like mine and maby I can add the ones that are not on the list :)


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