Ok, well I'm new to all this. I've been looking in to Celiac due to a whole range of symptoms:
Chronic constipation [I've gone more than 21 days without going-had problems for at least 14 years]
Vomiting [As a kid I had a 'nervous stomach' and threw up a lot randomly but never had a fever or ongoing sickness. Still do it now sometimes.]
Hypothyroidism [I asked my endo about testing for my antibodies but she said she was pretty sure they'd come back positive anyway so I pretty much have Hashimoto's – not as concrete as I'd like but...]
Horrible gas and bloating [I've been keeping an eye on symptoms and food and last night my stomach went from 24.5 inches to 29 inches. Very uncomfortable. I also happen to burp and they are bad. It's embarrassing and nothing helps much.]
Vitamin D deficiency and borderline calcium [This was awhile back but I've been bad about taking vitamins...and I take a lot.]
Diaherra [I don't think I have a motility issue but I did have a ten day period about 3 months ago. It was bad and nothing would stop it.]
horrible fatigue, tons of cavities, nausea, vomiting-occasionally undigested food, back pain, acid reflux, PCOS, anxiety, depression, brain fog, panic attacks, dry skin and nails that crack and bleed, super pale skin, always cold, dizziness/car sickness/vertigo
So, now that you know all my symptoms, and if you're still reading...I finally went to the gastro for the first time today. I think there was some miscommunication by language barriers but he did have me do a blood test. I think it was the full celiac work up...maybe? He's also having me do an endoscopy, a colonoscopy, an xray this Thursday, and he said something about doing a marker test.
Before all of this though he gave me a sheet and told me to follow a low-fiber diet. But it looks almost completely gluten free. If the blood test comes back negative like it does a lot....by the time I do the endoscopy there could be nothing there to see. Not even sure if he'd still be looking for Celiac if the blood test was negative.
Thanks for reading this book. I guess my question is: "According to my symptoms, does this sound like celiac? Furthermore, how much did you have to fight for a diagnosis?"