Okay I have Celiac disease and I think there is a great likleyhood my mother does as well. To be honest listing all the things that have gone wrong with her health since I've been alive (39 years) is like writing a poster for Celiac symptoms and complication. Most recently she went in to have cataract surgery in November and either during or immediately after surgery (unknown or at least unacknowledged at the time) she had a mild stroke. We found out about the stroke after she went to her new DO in March for weakness. She is finding it difficult to stand/walk and is often very dizzy. The DO first noticed she had a small mass in her right breast which became her immediate focus. It was a very tiny cancer and the Dr's alternated between saying it was malignant and benign but either way they insisted it must come out immediately. They also assured her this had nothing to do with the weakness. They did a lumpectomy and sent her in for an MRI of the brain to make sure the weakness wasn't brain cancer. MRI came back showing she had had a stroke a few months earlier. Now before we could do anything else including physical therapy and X-ray therapy for the affected breast she developed shingles! She was finally allowed after another two weeks to begin X-ray therapy. The oncologists are panicd because she has been getting the lowest doses possible and she is getting weaker and Mom is telling them she wont survive the treatments. The Oncologist suggested she could have an unusual case of a rare autoimmune disease called Myastenia Gravis. It usually shows itself through weakness in the eyes and her eyes look fine. So Monday the oncologist insisted her DO has to get her in to a Neurologist now! He also sent her for another MRI. We went to her DO yesterday and after a bit of poo pooing the oncologists panic the results arrived at the DO's office. There is new damage to my mom's brain. It is not a stroke but they don't have any idea what it is! The DO ordered full bloodwork (including a celiac panel at my insistence) and told us to come back in 2 weeks and by then she will have found mom a neurologist. Now when Mom went for her X-ray therapy the nurse at the oncologist said that would never do and she now has another appointment to talk to the Oncologist today.
All this to ask two things 1) The DO said that the results of the Celiac panel could come back false positive because mom is immune compromised by the X-ray therapy. Is that true?
2) Anyone have any thoughts on my mom's situation? Mom is getting very tired of not knowing what is wrong and she used to a sitter, she sat with mostly dementia patients, she's getting rather scared and so am I. Right now she is mentally on the ball it is physically she is falling apart but with it being brain damage.....she also going crazy not being able to do anything. Her arms and more so her legs are so weak she can't hardly get to the bathroom and it's only a couple feet away.
They should get the blood work back today but I don't know if they will call us with the results or not.