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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Nasty Rash, Other Skin Sx's, Dh? Pic
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18 posts in this topic

71gz2u.jpg

 

 

My daughter gets 3 different types of skin rashes when she is glutoned, the most frequent is eczema, the other is what I think might be DH.  The next is one that just stumps me.  But anyway, here is the best pic I can get from her last reaction- it is a mix of the DH-ish rash and the eczema.  

 

What do you think?

 

Please let me know if the url doesn't work.

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Is  it  insanely itchy?

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Oh yes.  The brighter, darker red spot you see is where she had already scratched it to bleeding.  We usually have to put anti-bacterial cream on it because she scratches to the point of bleeding and deep scratches that get all scabby.  That picture was taken approximately 20minutes after we started her on a gluten challenge after being gluten-free for 6 months.

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Oh yes. The brighter, darker red spot you see is where she had already scratched it to bleeding. We usually have to put anti-bacterial cream on it because she scratches to the point of bleeding and deep scratches that get all scabby. That picture was taken approximately 20minutes after we started her on a gluten challenge after being gluten-free for 6 months.

I'd go by how it acts, especially if it is sensitive to iodine. I've seen dh look very different, person to person.

Does she get relief from antihistamines?

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I'd go by how it acts, especially if it is sensitive to iodine. I've seen dh look very different, person to person.

Does she get relief from antihistamines?

 

Honestly, it is hard to tell.  Benadryl makes her sleep, so there is that...  We use the steroid (which we are stopping) for the eczema, and I think that helps the itch on both rashes.  

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Honestly, it is hard to tell.  Benadryl makes her sleep, so there is that...  We use the steroid (which we are stopping) for the eczema, and I think that helps the itch on both rashes.  

 There are two classes of antihistamines. Some people only respond to one. It's worthwhile to see if she does respond. Antihistamines can work in two ways - by addressing an allergy or by suppressing the immune system. They do help me if I'm in an autoimmune flare. They don't fix it, but they do help. It's a cheat, but a useful one. Use this chart to figure out which types she's tried.

 

http://chronichives.com/useful-information/drug-information/

 

There's also this recent article about using antihistamines. They work to an extent, largely unknown.

 

http://celiacdisease.about.com/od/GluteningRecovery/f/Benadryl-Glutening-Symptoms.htm

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Regardless of what each rash is ~~~ it is obvious that if she reacts like that to gluten 20 min. after ingesting it then she definitely has a big problem with gluten. Steroid creams or oral steroids will make a dh biopsy a false negative just so you know.

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Honestly, it is hard to tell. Benadryl makes her sleep, so there is that... We use the steroid (which we are stopping) for the eczema, and I think that helps the itch on both rashes.

If you can't accurately test for dh or celiac because she's been gluten-free - there is little reason to stop the steroids (unless you want her off).

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Prickly, she said the daughter is doing a gluten challenge but I don't know if it's for testing purposes or for their own knowledge. If it's for testing purposes for a dx then I would say to get to the doc now & see if he will dx her based on response b/c I sure would hate to see that little girl suffer for weeks or months doing a challenge.

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Prickly, she said the daughter is doing a gluten challenge but I don't know if it's for testing purposes or for their own knowledge. If it's for testing purposes for a dx then I would say to get to the doc now & see if he will dx her based on response b/c I sure would hate to see that little girl suffer for weeks or months doing a challenge.

She has another thread....no challenge. ER visit.

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Yes, we are unable to do a gluten challenge- bad, bad reaction, the above picture was only a portion of it.  That was 20 minutes after 2 slices of bread.  That was almost 3 weeks ago now and it has largely cleared up.  I just don't want to make her go through another doctor and a skin plug if I don't have to :(  If someone on here looked at it and said "absolutely not, that looks nothing like DH,"  I'd have something to think about.  

 

Prickly- I want to talk to the GI about possibly trying another gluten challenge....but with far less gluten foods.  Maybe a cracker a day?  Her reactions seem to be proportional with her exposure.  Eczema first, then DH, "wheat belly," temperature, throwing up, mood swings, etc. all for major exposure.  

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She has another thread....no challenge. ER visit.

Ah. Thank you. Oh MY! Poor, poor baby!!!!!

 

Okay, for my part I say; absolutely, that could be dh!

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My daughter gets 3 different types of skin rashes when she is glutoned, the most frequent is eczema, the other is what I think might be DH.  The next is one that just stumps me.  But anyway, here is the best pic I can get from her last reaction- it is a mix of the DH-ish rash and the eczema.  

 

 

How do you tell that part of the rash is not DH?  I see different types of rashes and am trying to learn more.  Thanks

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My daughter gets 3 different types of skin rashes when she is glutoned, the most frequent is eczema, the other is what I think might be DH.  The next is one that just stumps me.  But anyway, here is the best pic I can get from her last reaction- it is a mix of the DH-ish rash and the eczema.  

 

 

How do you tell that part of the rash is not DH?  I see different types of rashes and am trying to learn more.  Thanks

 

 

Well, this picture is a little hard to tell because it is so "angry" red.  But, the eczema is scaly, not as bright red, and looks more like a bad case of dry skin.  She has it a lot more often and it is spread in specific places that she always gets it.  Back, legs, elbows, in the diaper area if it is really bad.  We use hydracortisone cream on it and it is a noticeable difference when we do.

The DH is mostly in the "diaper area", but I just noticed 4 other places that popped up yesterday and today on the backs of her knees and the insides of her arms.  It is more dotted, bright red, and forms blisters almost right away.  It is SUPER itchy and she complains that it hurts.  Hydracortisone doesn't work very well on treating the DH itself, but helps with the itch.  We ultimately end up treating with anti-bacterial cream because she ends up scratching deep into the lesions.  It takes FOREVER to heal.

 

The third is new.  It has only happened recently, and it was the last rash to show up- not occurring until sometime after she went to bed after the ER visit from attempting a gluten challenge.  It consisted of 3 bumps on her legs in different spots, about the size of a dime or nickel.  They just sort of looked like bug bites from afar, but when you got up close, you could actually see her pulse in them!!!  They would go white and then back red with her pulse.  When you felt them, they were hard, and had a big knot under the skin.  They took quite a while to go away as well.

 

When the rashes intermix, like the above picture, it is really hard to tell the difference.  We generally just throw the book at it.  We use the hydracortisone all over, then use the anti-bacterial cream anywhere there is broken skin.  She typically gets a slather of thick diaper cream in her girly parts and bum so that we aren't putting steroids on her... (*ahem*)... parts.  It probably doesn't matter, but it makes me feel better and keeps her pH from getting thrown off and ending up with a UTI or something.

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Well, this picture is a little hard to tell because it is so "angry" red.  But, the eczema is scaly, not as bright red, and looks more like a bad case of dry skin.  She has it a lot more often and it is spread in specific places that she always gets it.  Back, legs, elbows, in the diaper area if it is really bad.  We use hydracortisone cream on it and it is a noticeable difference when we do.

The DH is mostly in the "diaper area", but I just noticed 4 other places that popped up yesterday and today on the backs of her knees and the insides of her arms.  It is more dotted, bright red, and forms blisters almost right away.  It is SUPER itchy and she complains that it hurts.  Hydracortisone doesn't work very well on treating the DH itself, but helps with the itch.  We ultimately end up treating with anti-bacterial cream because she ends up scratching deep into the lesions.  It takes FOREVER to heal.

 

The third is new.  It has only happened recently, and it was the last rash to show up- not occurring until sometime after she went to bed after the ER visit from attempting a gluten challenge.  It consisted of 3 bumps on her legs in different spots, about the size of a dime or nickel.  They just sort of looked like bug bites from afar, but when you got up close, you could actually see her pulse in them!!!  They would go white and then back red with her pulse.  When you felt them, they were hard, and had a big knot under the skin.  They took quite a while to go away as well.

 

When the rashes intermix, like the above picture, it is really hard to tell the difference.  We generally just throw the book at it.  We use the hydracortisone all over, then use the anti-bacterial cream anywhere there is broken skin.  She typically gets a slather of thick diaper cream in her girly parts and bum so that we aren't putting steroids on her... (*ahem*)... parts.  It probably doesn't matter, but it makes me feel better and keeps her pH from getting thrown off and ending up with a UTI or something.

 

 

Thanks for your reply.  About the blisters.  Do they all actually have liquid in them?  I have what looks like a small blister but when I scratch it, the top skin comes off.  Now on my feet, the blister swells and I release the fluid with a sterile needle, apply alcohol, ointment and put on white socks until they heal.  Most of my rash has been broken open and bleeds.  I have a DH dx but I'm not certain it is correct.  I did read in that first document that there are different forms of the rash.  I'm miserable!  Took myself off of Dapsone and not itching quite as badly.  I may have been having a Dapsone rash.   :mellow: 

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Thanks for your reply.  About the blisters.  Do they all actually have liquid in them?  I have what looks like a small blister but when I scratch it, the top skin comes off.  Now on my feet, the blister swells and I release the fluid with a sterile needle, apply alcohol, ointment and put on white socks until they heal.  Most of my rash has been broken open and bleeds.  I have a DH dx but I'm not certain it is correct.  I did read in that first document that there are different forms of the rash.  I'm miserable!  Took myself off of Dapsone and not itching quite as badly.  I may have been having a Dapsone rash.   :mellow: 

 

They look like they do, but she either scratches them open almost right away, or won't let us get close enough to know for sure.  

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Well, this picture is a little hard to tell because it is so "angry" red.  But, the eczema is scaly, not as bright red, and looks more like a bad case of dry skin.  She has it a lot more often and it is spread in specific places that she always gets it.  Back, legs, elbows, in the diaper area if it is really bad.  We use hydracortisone cream on it and it is a noticeable difference when we do.

The DH is mostly in the "diaper area", but I just noticed 4 other places that popped up yesterday and today on the backs of her knees and the insides of her arms.  It is more dotted, bright red, and forms blisters almost right away.  It is SUPER itchy and she complains that it hurts.  Hydracortisone doesn't work very well on treating the DH itself, but helps with the itch.  We ultimately end up treating with anti-bacterial cream because she ends up scratching deep into the lesions.  It takes FOREVER to heal.

 

The third is new.  It has only happened recently, and it was the last rash to show up- not occurring until sometime after she went to bed after the ER visit from attempting a gluten challenge.  It consisted of 3 bumps on her legs in different spots, about the size of a dime or nickel.  They just sort of looked like bug bites from afar, but when you got up close, you could actually see her pulse in them!!!  They would go white and then back red with her pulse.  When you felt them, they were hard, and had a big knot under the skin.  They took quite a while to go away as well.

 

When the rashes intermix, like the above picture, it is really hard to tell the difference.  We generally just throw the book at it.  We use the hydracortisone all over, then use the anti-bacterial cream anywhere there is broken skin.  She typically gets a slather of thick diaper cream in her girly parts and bum so that we aren't putting steroids on her... (*ahem*)... parts.  It probably doesn't matter, but it makes me feel better and keeps her pH from getting thrown off and ending up with a UTI or something.

All of these various descriptions sound familiar to my skin conditions.  I have not had a positive diagnosis of DH, but I know that is what I have based on all my research.   I get the watery filled blisters, the hive like eruptions, and the hard lumps under the skin which are very painful.  All of the m take a long time to heal.  Most of my eruptions eventually create a crater or divet which seems to eat thru the skin from the inside out.  I have to scratch the tops off.  It feels better as the fluid oozes out but it also leaves scars as it heals.  I have decided I will live with the scars if scratching makes them feel better.  I have been gluten free for almost 3 years but I have always had some degree of breakout in that time.  To backtrack I'm sure this has been building under my skin since I was a child so it will take a long time to get rid of all the deposits.  I am 61 and I remember going to the doctor in my teens when I had my first skin breakout which was ALL over my scalp.  He gave me a green bottle of medicated shampoo which did not help.  Thru the years I have seen dermatologists, taken allergy shots for 20 yrs, taken prednisone, numerous other things.  No one ever suggested celiac, it was all too new then.  At age 57 I made the connection talking to a celiac diagnosed colleague of mine. I don't know that this helps you any but I know what you are going thru & at least you don't have to wait until age 57 to find out what you might do to get relief.   I use multiple moisturizing creams to help, recently I found applying menthol in muscle type creams seems to help with the pain.

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Thanks for your reply about your daughter.  I have posted just this morning with a ? of DH.

 

I do have blood relatives with Celiac and one cousin does have the scalp breakout.  I am the only one that has this horrible rash.  My cousin did not have a positive blood test but had a endoscopy that showed the villi damage and she had anemia and iron def.  I had tested the same way . . .  (sigh)  just ready to heal.

 

My rash right now is varied.  I feel liquid coming out of lesions when scratched.  I too feel a relief when the skin comes off the lesion but they bleed and are pitted horribly.  I have some very small blistery places that do not bleed but wow, do they itch.  

 

You may want to read my new post.  Hey . . . I've got to have relief and after reading and seeing the Candida skin rash, I'm not going to argue with this new doctor.  

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