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Nasty Rash, Other Skin Sx's, Dh? Pic


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17 replies to this topic

#1 wmramsel

 
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Posted 05 June 2013 - 07:57 AM

71gz2u.jpg

 

 

My daughter gets 3 different types of skin rashes when she is glutoned, the most frequent is eczema, the other is what I think might be DH.  The next is one that just stumps me.  But anyway, here is the best pic I can get from her last reaction- it is a mix of the DH-ish rash and the eczema.  

 

What do you think?

 

Please let me know if the url doesn't work.


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#2 mamaw

 
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Posted 05 June 2013 - 08:50 AM

Is  it  insanely itchy?


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#3 wmramsel

 
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Posted 05 June 2013 - 08:56 AM

Oh yes.  The brighter, darker red spot you see is where she had already scratched it to bleeding.  We usually have to put anti-bacterial cream on it because she scratches to the point of bleeding and deep scratches that get all scabby.  That picture was taken approximately 20minutes after we started her on a gluten challenge after being gluten-free for 6 months.


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#4 pricklypear1971

 
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Posted 05 June 2013 - 08:59 AM

Oh yes. The brighter, darker red spot you see is where she had already scratched it to bleeding. We usually have to put anti-bacterial cream on it because she scratches to the point of bleeding and deep scratches that get all scabby. That picture was taken approximately 20minutes after we started her on a gluten challenge after being gluten-free for 6 months.


I'd go by how it acts, especially if it is sensitive to iodine. I've seen dh look very different, person to person.

Does she get relief from antihistamines?
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Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#5 wmramsel

 
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Posted 05 June 2013 - 09:04 AM

I'd go by how it acts, especially if it is sensitive to iodine. I've seen dh look very different, person to person.

Does she get relief from antihistamines?

 

Honestly, it is hard to tell.  Benadryl makes her sleep, so there is that...  We use the steroid (which we are stopping) for the eczema, and I think that helps the itch on both rashes.  


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#6 pricklypear1971

 
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Posted 05 June 2013 - 09:12 AM

Honestly, it is hard to tell.  Benadryl makes her sleep, so there is that...  We use the steroid (which we are stopping) for the eczema, and I think that helps the itch on both rashes.  

 There are two classes of antihistamines. Some people only respond to one. It's worthwhile to see if she does respond. Antihistamines can work in two ways - by addressing an allergy or by suppressing the immune system. They do help me if I'm in an autoimmune flare. They don't fix it, but they do help. It's a cheat, but a useful one. Use this chart to figure out which types she's tried.

 

http://chronichives....ug-information/

 

There's also this recent article about using antihistamines. They work to an extent, largely unknown.

 

http://celiacdisease...ng-Symptoms.htm


  • 1
Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#7 squirmingitch

 
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Posted 05 June 2013 - 10:24 AM

Regardless of what each rash is ~~~ it is obvious that if she reacts like that to gluten 20 min. after ingesting it then she definitely has a big problem with gluten. Steroid creams or oral steroids will make a dh biopsy a false negative just so you know.


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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#8 pricklypear1971

 
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Posted 05 June 2013 - 10:26 AM

Honestly, it is hard to tell. Benadryl makes her sleep, so there is that... We use the steroid (which we are stopping) for the eczema, and I think that helps the itch on both rashes.


If you can't accurately test for dh or celiac because she's been gluten-free - there is little reason to stop the steroids (unless you want her off).
  • 0
Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#9 squirmingitch

 
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Posted 05 June 2013 - 11:19 AM

Prickly, she said the daughter is doing a gluten challenge but I don't know if it's for testing purposes or for their own knowledge. If it's for testing purposes for a dx then I would say to get to the doc now & see if he will dx her based on response b/c I sure would hate to see that little girl suffer for weeks or months doing a challenge.


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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#10 pricklypear1971

 
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Posted 05 June 2013 - 11:54 AM

Prickly, she said the daughter is doing a gluten challenge but I don't know if it's for testing purposes or for their own knowledge. If it's for testing purposes for a dx then I would say to get to the doc now & see if he will dx her based on response b/c I sure would hate to see that little girl suffer for weeks or months doing a challenge.


She has another thread....no challenge. ER visit.
  • 0
Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#11 wmramsel

 
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Posted 05 June 2013 - 02:44 PM

Yes, we are unable to do a gluten challenge- bad, bad reaction, the above picture was only a portion of it.  That was 20 minutes after 2 slices of bread.  That was almost 3 weeks ago now and it has largely cleared up.  I just don't want to make her go through another doctor and a skin plug if I don't have to :(  If someone on here looked at it and said "absolutely not, that looks nothing like DH,"  I'd have something to think about.  

 

Prickly- I want to talk to the GI about possibly trying another gluten challenge....but with far less gluten foods.  Maybe a cracker a day?  Her reactions seem to be proportional with her exposure.  Eczema first, then DH, "wheat belly," temperature, throwing up, mood swings, etc. all for major exposure.  


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#12 squirmingitch

 
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Posted 05 June 2013 - 04:03 PM

She has another thread....no challenge. ER visit.

Ah. Thank you. Oh MY! Poor, poor baby!!!!!

 

Okay, for my part I say; absolutely, that could be dh!


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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#13 sisterlynr

 
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Posted 06 June 2013 - 11:48 PM

My daughter gets 3 different types of skin rashes when she is glutoned, the most frequent is eczema, the other is what I think might be DH.  The next is one that just stumps me.  But anyway, here is the best pic I can get from her last reaction- it is a mix of the DH-ish rash and the eczema.  

 

 

How do you tell that part of the rash is not DH?  I see different types of rashes and am trying to learn more.  Thanks


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Misdiagnosed DH symptoms for 30 years in the form of blisters on shoulders, scalp, sole of foot and lower back.
Type II Diabetes 1995  /   Fatty liver biopsy 2001  ~ Diagnosed with NH Lymphoma in 2007 metastasized to bones & Stage IV by 2008 Chemotherapy in 2008 ~ Breakout of rash from scalp to sole of feet. February 28, 2012 until present
Iron deficiency anemia - July of 2012  /  
Osteoarthritis. September 2012  2012 Rash was diagnosed as Eczema, Grover's Disease, Folliculitis per biopsies of the lesions. September 2012   Started Dapsone and Gluten-Free diet on October 20, 2012 ~ Diag DH 2012.  Not taking Dapsone due to sulfa reaction.  Biopsy in July 2013 indicates Lupus but my doctors do not agree on cause of rash for various reasons.  

 

~Lyn~


#14 wmramsel

 
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Posted 07 June 2013 - 05:41 PM

My daughter gets 3 different types of skin rashes when she is glutoned, the most frequent is eczema, the other is what I think might be DH.  The next is one that just stumps me.  But anyway, here is the best pic I can get from her last reaction- it is a mix of the DH-ish rash and the eczema.  

 

 

How do you tell that part of the rash is not DH?  I see different types of rashes and am trying to learn more.  Thanks

 

 

Well, this picture is a little hard to tell because it is so "angry" red.  But, the eczema is scaly, not as bright red, and looks more like a bad case of dry skin.  She has it a lot more often and it is spread in specific places that she always gets it.  Back, legs, elbows, in the diaper area if it is really bad.  We use hydracortisone cream on it and it is a noticeable difference when we do.

The DH is mostly in the "diaper area", but I just noticed 4 other places that popped up yesterday and today on the backs of her knees and the insides of her arms.  It is more dotted, bright red, and forms blisters almost right away.  It is SUPER itchy and she complains that it hurts.  Hydracortisone doesn't work very well on treating the DH itself, but helps with the itch.  We ultimately end up treating with anti-bacterial cream because she ends up scratching deep into the lesions.  It takes FOREVER to heal.

 

The third is new.  It has only happened recently, and it was the last rash to show up- not occurring until sometime after she went to bed after the ER visit from attempting a gluten challenge.  It consisted of 3 bumps on her legs in different spots, about the size of a dime or nickel.  They just sort of looked like bug bites from afar, but when you got up close, you could actually see her pulse in them!!!  They would go white and then back red with her pulse.  When you felt them, they were hard, and had a big knot under the skin.  They took quite a while to go away as well.

 

When the rashes intermix, like the above picture, it is really hard to tell the difference.  We generally just throw the book at it.  We use the hydracortisone all over, then use the anti-bacterial cream anywhere there is broken skin.  She typically gets a slather of thick diaper cream in her girly parts and bum so that we aren't putting steroids on her... (*ahem*)... parts.  It probably doesn't matter, but it makes me feel better and keeps her pH from getting thrown off and ending up with a UTI or something.


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#15 sisterlynr

 
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Posted 09 June 2013 - 10:36 PM

Well, this picture is a little hard to tell because it is so "angry" red.  But, the eczema is scaly, not as bright red, and looks more like a bad case of dry skin.  She has it a lot more often and it is spread in specific places that she always gets it.  Back, legs, elbows, in the diaper area if it is really bad.  We use hydracortisone cream on it and it is a noticeable difference when we do.

The DH is mostly in the "diaper area", but I just noticed 4 other places that popped up yesterday and today on the backs of her knees and the insides of her arms.  It is more dotted, bright red, and forms blisters almost right away.  It is SUPER itchy and she complains that it hurts.  Hydracortisone doesn't work very well on treating the DH itself, but helps with the itch.  We ultimately end up treating with anti-bacterial cream because she ends up scratching deep into the lesions.  It takes FOREVER to heal.

 

The third is new.  It has only happened recently, and it was the last rash to show up- not occurring until sometime after she went to bed after the ER visit from attempting a gluten challenge.  It consisted of 3 bumps on her legs in different spots, about the size of a dime or nickel.  They just sort of looked like bug bites from afar, but when you got up close, you could actually see her pulse in them!!!  They would go white and then back red with her pulse.  When you felt them, they were hard, and had a big knot under the skin.  They took quite a while to go away as well.

 

When the rashes intermix, like the above picture, it is really hard to tell the difference.  We generally just throw the book at it.  We use the hydracortisone all over, then use the anti-bacterial cream anywhere there is broken skin.  She typically gets a slather of thick diaper cream in her girly parts and bum so that we aren't putting steroids on her... (*ahem*)... parts.  It probably doesn't matter, but it makes me feel better and keeps her pH from getting thrown off and ending up with a UTI or something.

 

 

Thanks for your reply.  About the blisters.  Do they all actually have liquid in them?  I have what looks like a small blister but when I scratch it, the top skin comes off.  Now on my feet, the blister swells and I release the fluid with a sterile needle, apply alcohol, ointment and put on white socks until they heal.  Most of my rash has been broken open and bleeds.  I have a DH dx but I'm not certain it is correct.  I did read in that first document that there are different forms of the rash.  I'm miserable!  Took myself off of Dapsone and not itching quite as badly.  I may have been having a Dapsone rash.   :mellow: 


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Misdiagnosed DH symptoms for 30 years in the form of blisters on shoulders, scalp, sole of foot and lower back.
Type II Diabetes 1995  /   Fatty liver biopsy 2001  ~ Diagnosed with NH Lymphoma in 2007 metastasized to bones & Stage IV by 2008 Chemotherapy in 2008 ~ Breakout of rash from scalp to sole of feet. February 28, 2012 until present
Iron deficiency anemia - July of 2012  /  
Osteoarthritis. September 2012  2012 Rash was diagnosed as Eczema, Grover's Disease, Folliculitis per biopsies of the lesions. September 2012   Started Dapsone and Gluten-Free diet on October 20, 2012 ~ Diag DH 2012.  Not taking Dapsone due to sulfa reaction.  Biopsy in July 2013 indicates Lupus but my doctors do not agree on cause of rash for various reasons.  

 

~Lyn~





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