Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Elimination Diet


HumanDecency

Recommended Posts

HumanDecency Contributor

So, I have been browsing around elimination diets and I really think I need structure. Such as: add ingredient 1 after so many days and document how you feel. 

 

But I have been browsing all these different elimination diets and they are vary. Does anyone have a good resource for celiac elimination diets? 

 

Thanks, as always, for your help.

 

Jesse

 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

here is what I did for one month about 6 months after DX,,,,just to "clear the decks" so to speak.

It is called the Failsafe diet (google it but here is the explanation

 

"The FAILSAFE diet is a diet designed to be free of additives, low in salicylates, amines and flavour enhancers. It is Open Original Shared Link‘s term for the low-chemical exclusion diet formulated by Open Original Shared Link in Australia. It is Open Original Shared Link.

 

 

In a nutshell, it looks like this:

 

Failsafe Diet

NO tea, fruit or veg juices, wine, CORN, lunch meats, gum, mints, fruit-flavored candy or sorbets, sherbets, pickles, vinegar or fermented foods.

No chicken. NO dried fruits, berries, or citrus.

 

What is allowed:

 

White rice , brown rice

Peeled white potatoes

green beans

brussels sprouts

cabbage

celery

chives, coriander, garlic

leeks, green scallions

iceberg lettuce

peeled pears

bananas

lime

rutabaga

small individual canned pears in syrup

organic butter

goat milk/cheese

buffalo milk/ cheese

Dairy: mozzarella, sour cream, plain yogurt, farmer's cheese/cottage cheese, plain cream cheese

ricotta cheese, milk

eggs

fresh, unroasted cashews

pecans

hazelnuts

sunflower seeds

beef

veal

lamb

fish

white sugar

maple syrup

Lyle's golden syrup

carob, cocoa

homemade caramel

Oils: canola, safflower (but not olive)

decaf instant coffee

water

 

Then, I added ONE food protein each week. ONE gluten-free grain the following weeks....etc. and took notes.

 

I found I still had some problems, but it was BECAUSE I WAS STILL HEALING MY GUT!

 

The so-called 4 day rotation diet..is not long enough for any delayed reaction to occur or clear from the body

This Failsafe Diet is a proven medical allergen diet..

 

 

now that you have read the list.....still want to do it? :)

Link to comment
Share on other sites
dilettantesteph Collaborator

I do elimination dieting to check items for cc.  My level of sensitivity is lower than the amount allowed in gluten-free food, so that label isn't necessarily safe for me.  I have noticed that it can take a week or so for a reaction to be noticeable.  I try to only add one thing per week. If something bothers me, sometimes I need to wait a couple of weeks to recover before i can try another item.  When I am having a reaction and don't know the cause, I may eliminate more quickly because I want to get better ASAP.

Link to comment
Share on other sites
ravenwoodglass Mentor

I was diagnosed in large part due to a elderly but very savvy allergist who first tested for true allergies. He then had me do an in depth review of what I usually ate and formulated a starting point with only 5 foods, no spices other than salt and only water and the one juice that was part of the five foods. For me he choose all foods I rarely ate and really didn't care for much as he said those would be likely to be least reactive for me. He formulated the starting point so that I would be sure to have enough calories, protein and vitamins. My five foods were turkey, sweet potatoes, peas, pineapple and cranberry juice. Once my symptoms resolved, which took a couple weeks, I was allowed to add in one food per week in a pure of a form as possible. Since intolerance reactions are often delayed he would only let me keep a food in after I had consumed it 3 times a day for a full week with no reaction. 3 days after I added cream of wheat back in the results were severe. He then referred me back to my GI for official confirmation of celiac.

It isn't always easy to find an allergist who will also deal with intolerances but for me the search was well worth it.

Link to comment
Share on other sites
Kate79 Apprentice

I did the Whole30 diet for a couple of months.  It eliminates all added sugars, all grain products, all processed oils, dairy, legumes and alcohol.  Basically, you just eat fruits, vegetables, meat, fish, eggs and nuts for a month.  They've got a stricter version that also eliminates nuts and eggs, and nightshades.  I just started the re-introduction phase by adding corn over the weekend - they have you add something back for 1-2 days, see how you feel, and then try the next thing for 1-2 days.  I felt pretty good on the diet - good sleep, fewer problems with seasonal allergies, etc.  I think a lot of it was lowering my sugar, yeast and alcohol intake, and eliminating cross contamination from 'gluten free' processed foods, as I'm pretty sensitive.

 

They've got a website and book - I didn't bother to read the book; the website has pretty much all the info you need, as well as a good forum.

Link to comment
Share on other sites
HumanDecency Contributor

Thanks. Everyone I will check these out and report back.

Link to comment
Share on other sites
HumanDecency Contributor

Might I ask what kind of reactions you were seeing? I'm in a difficult place when trying to consider what is expected with my healing process and what is a negative reaction. I don't quite know my body well enough yet and was not diagnosed for years... so I just kind of grew accustom to feeling lousy since the doctor's were not sure of my problem.

 

 

I was diagnosed in large part due to a elderly but very savvy allergist who first tested for true allergies. He then had me do an in depth review of what I usually ate and formulated a starting point with only 5 foods, no spices other than salt and only water and the one juice that was part of the five foods. For me he choose all foods I rarely ate and really didn't care for much as he said those would be likely to be least reactive for me. He formulated the starting point so that I would be sure to have enough calories, protein and vitamins. My five foods were turkey, sweet potatoes, peas, pineapple and cranberry juice. Once my symptoms resolved, which took a couple weeks, I was allowed to add in one food per week in a pure of a form as possible. Since intolerance reactions are often delayed he would only let me keep a food in after I had consumed it 3 times a day for a full week with no reaction. 3 days after I added cream of wheat back in the results were severe. He then referred me back to my GI for official confirmation of celiac.

It isn't always easy to find an allergist who will also deal with intolerances but for me the search was well worth it.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Might I ask what kind of reactions you were seeing? I'm in a difficult place when trying to consider what is expected with my healing process and what is a negative reaction. I don't quite know my body well enough yet and was not diagnosed for years... so I just kind of grew accustom to feeling lousy since the doctor's were not sure of my problem.

In the elimination diet phase of my diagnosis the largest reaction I recognized was a return of extremely painful D that happened both during the day and would wake me in the middle of the night. I also got a worsening of my ataxia problems and migraines reappeared. .

After I had healed for a couple months gluten free other symptoms like overwhelming short term depression and muscle and bone pain became more obvious when I was accidentally glutened.  I did have to heal a bit for those symptoms to resolve and didn't even realize they were celiac related until they disappeared gluten free.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,503
    • Most Online (within 30 mins)
      7,748

    PBunny39
    Newest Member
    PBunny39
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • powerofpositivethinking
      I haven't been on this forum for a long time, but it was absolutely wonderful during the diagnostic process!  My path for celiac disease diagnosis was the following: -Had normal IgA level, and my only serology positive test was the DGP IgG -Deficiencies in both Vitamins D and K that did not increase at first despite massive supplementation -Diagnosis of fat malabsorption both total and neutral -Diagnosis of severe exocrine pancreatic insufficiency (EPI) -Testing was completed to rule out causes of EPI, and the only one not ruled out was celiac. -Both traditional endoscopy and pill capsule endoscopy yielded negative results for biopsy confirmation, but my GI doctor said that both procedures simply could have missed the damaged spots. -EPI and fat malabsorption resolved after taking Creon for 6 months since my EPI was caused by celiac -23 and Me said I don't have either of the two prominent genes for celiac disease   Remember that you might not have 'textbook' symptoms, but you still may have celiac disease.   Also, I am SO incredibly grateful for this site for all the learning it has allowed me to do. I have a senior dog, and these last few weeks with her were very scary! After two hospital stays, she finally received an IBD diagnosis after having gastroenteritis and pancreatitis. I know that celiac disease is not IBD, however, through reading this site, I learned more about it. I was relieved when I found out she had IBD and not cancer this past Wednesday. I know IBD can be managed thanks to what I've learned here!  So celiac.com, not only did you help me, but you helped my pup too! Thank you ❤️  
    • SuzanneL
      It was tTG IGG that was flagged high. I'm not sure about the other stuff. I'm still eating my normal stuff. 
    • cristiana
      Thank you for your post, @Nedast, and welcome to the forum. It is interesting to read of your experiences. Although I've not had TMJ, from time to time I have had a bit of mild pain in my jaw, sharp stabbing pains and tingling in my face which appears to have been caused by issues with my trigeminal nerve.  I read that sometimes a damaged trigeminal nerve in coeliacs can heal after adopting a gluten free diet.  I try to keep out of cold winds or wear a scarf over my face when it is cold and windy, those conditions tend to be my 'trigger' but I do think that staying clear of gluten has helped.  Also, sleeping with a rolled up towel under my neck is a tip I picked up online, again, that seems to bring benefits. Thank you again for your input - living with this sort of pain can be very hard, so it is good to be able to share advice.
    • Julie Riordan
      I am going to France in two weeks and then to Portugal in May   Thanks for your reply 
    • Nedast
      I made an account just to reply to this topic. My story resembles yours in so many ways that it is truly amazing. I also suddenly became lactose intolerant, went a little under 10 years attributing all my symtoms to different body parts, never thinking it was something systemic until much later. I had the same mental problems - anxiety, depression, fatigue, etc. In fact, the only real difference in our story is that I was never formally diagnosed. When I discovered that my myriad symtoms, that had been continuous and worsening for years, all rapidly subsided upon cessation of consuming gluten, I immediately took it upon myself to cut gluten out of my diet completely. I live in America, and had lost my health insurance within the year prior to my discovery, so I could not get tested, and I will never willingly or knowingly consume gluten again, which I would have to do in order to get tested now that I have insurance again. But that is not the point of this reply. I also had extreme TMJ pain that began within months of getting my wisdom teeth out at - you guessed it - 17 years old. I was in and out of doctors for my various symptoms for about 5 years before I gave up, but during that time I had also kept getting reffered to different kinds of doctors that had their own, different solutions to my TMJ issue, an issue which I only recently discovered was related to my other symptoms. I began with physical therapy, and the physical therapist eventually broke down at me after many months, raising her voice at me and saying that there was nothing she could do for me. After that saga, I saw a plastic surgeon at the request of my GP, who he knew personally. This palstic surgeon began using botox injections to stop my spasming jaw muscles, and he managed to get it covered by my insurace in 2011, which was harder to do back then. This helped the pain tremendously, but did not solve the underlying problem, and I had to get repeat injections every three months. After a couple of years, this began to lose effectiveness, and I needed treatments more often than my insurance would cover. The surgeon did a scan on the joint and saw slight damage to the tissues. He then got approved by insurance to do a small surgery on the massseter (jaw) muscle - making an incision, and then splicing tissue into the muscle to stop the spasming. It worked amazingly, but about three months later it had stopped working. I was on the verge of seeing the top oral surgeon in our city, but instead of operating on me, he referred me to a unique group of dentists who focus on the TMJ and its biomechanical relationship to teeth occlusion (i.e. how the teeth fit together). This is what your dentist did, and what he did to you was boderline if not outright malpractice. There is a dental field that specializes in doing this kind of dental work, and it takes many years of extra schooling (and a lot of money invested into education) to be able to modify teeth occusion in this manner. Just based on the way you describe your dentist doing this, I can tell he was not qualified to do this to you. Dentists who are qualified and engage in this practice take many measurments of your head, mouth, teeth, etc., they take laboratory molds of your teeth, and they then make a complete, life-size model of your skull and teeth to help them guide their work on you. They then have a lab construct, and give you what is called a "bite splint." It looks and feels like a retainer, but its function is entirely different. This is essentially a literal splint for the TMJ that situates on the teeth. The splint is progressively modified once or twice per week, over several months, in order to slowly move the joint to its correct position. The muscles spasm less, stress is taken off the joint, as the joint slowly moves back into its proper position. The pain reduces each month, each week, sometimes even each day you go in for a visit. The joint has to be moved in this manner with the splint BEFORE the modification to the teeth begins. They then add to your tooth structure with small bits of composite, to keep the joint in its proper place after it has been sucessfully repositioned. Subtracting from your teeth, by grinding down bits of your natural tooth structure, is done very conservatively, if they have to do it at all. This process worked for me - after six months, my face, jaw, neck all felt normal, and I had no more pain - a feeling I had not had in a long time. It also made my face look better. I had not realized the true extent that the spasming muscles and the joint derangement had effected the shape of my face. The pain began to return after a few months, but nowhere near where it had been before. This immense reduction in pain lasted for a little over two years. The treatment still ultimately failed, but it is not their fault, and it is still the treatment that has given me the most relief to this day. Later on, I even went about three years with very, very good pain reduction, before the joint severely destabilized again. This field of dentistry is the last line treatment for TMJ issues before oral surgery on the TMJ. There aren't as many denists around who practice this anymore, and the practice is currently shrinking due to dentists opting for less espensive, additional educations in things like professional whitening, which have a broader marketability. Getting this treatment is also very expensive if not covered by insurance (in America at least). My first time was covered by insurance, second time was not, though the dentist took pity on me due to the nature of my case and charged like a quarter of usual pricing. Most cases seen by these dentists are complete successes, and the patient never has to come back again. But occasionally they get a case that is not a success, and I was one of those cases. A little over a year ago, I began seeing the second dentist who keeps my TMJ stable in this manner. The first dentist retired, and then died sadly. A shame too, because he was a truly amazing, knowledgable guy who really wanted to help people. The new dentist began to get suspicious when my joint failed to stay stable after I was finished with the bite splint and his modifications, so he did another scan on me. This is ten years after the first scan (remember, I said the surgeon saw "slight" damage to the tissue on the first scan). This new scan revealed that I now no longer have cartilage in the joint, on both sides - complete degeneration of the soft tissues and some damage to the bone. The dentist sat me down and had a talk with me after these results came in, and said that when he sees damage like this in cases like mine, that the damage to the joint is most likely autoimmune, and that, in his experinece, it is usually autoimmune. He has sent patients with cases like mine to Mayo Clinic. He said he will continue to see me as long as the treatment continues to offer me relief, but also said that I will probably have to see a dentist for this type of treatment for the rest of my life. He is not currently recommending surgery due to my young age and the fact that the treatment he provides manages my symptoms pretty well. I still see this dentist today, and probably will see this kind of dental specialist for the rest of my life, since they have helped with this issue the most. I did not inform him that I am 100% sure that I have celiac disease (due to my complete symptom remission upon gluten cessation). I didn't inform him because I thought it would be inappropriate due to not having a formal diagnosis. I was disappointed, because I had believed I had caught it BEFORE it had done permanent damage to my body. I had never suspected that my TMJ issues may be related to my other symptoms, and that the damage would end up complete and permanent. Luckily, I caught it about 6 months after my other joints started hurting, and they stopped hurting right after I went gluten free, and haven't hurt since. I of course did the necessary research after the results of the second scan, and found out that the TMJ is the most commonly involved joint in autoimmune disease of the intestines, and if mutliple joints are effected, it is usually the first one effected. This makes complete sense, since the TMJ is the most closely related joint to the intestines, and literally controls the opening that allows food passage into your intestines. I am here to tell you, that if anyone says there is no potential relationship between TMJ issues and celiac disease, they are absolutely wrong. Just google TMJ and Celiac disease, and read the scientific articles you find. Research on issues regarding the TMJ is relatively sparse, but you will find the association you're looking for validated.
×
×
  • Create New...