Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Second Guessing My Gluten Problem...


taynichaf

Recommended Posts

taynichaf Contributor

I've only been gluten for about a week now...but ask the other times I tried going gluten free I would feel starving and very sleepy...now I'm still just my normal exhausted self..my arm is like limp just from holding some clothes.. How long did it take you to feel better?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Salax Contributor

At least a good 6 months gluten free and casien free before I started really feeling better. Slowly but surely it gets better the longer your off it.

Link to comment
Share on other sites
gatita Enthusiast

Eight months for me. And sooo worth it. But boy, it was a bumpy ride! Hang in there!!

Link to comment
Share on other sites
taynichaf Contributor

how did you know to go casein free?? Is that just lactose?

Link to comment
Share on other sites
nvsmom Community Regular

For me, it took a few weeks for some GI symptoms and migraines to improve. For other symptoms like fatigue, and pain.... well, I'm one year in and still waiting.  LOL :rolleyes:

 

You'll probably need to give it until Xmas, or even longer, before all your symptoms clear up.

 

I went entirely dairy free in my second month gluten-free (I believe). Once I was gluten-free, it became much easier to notice how dairy gave me stomach aches so that made it simpler. Someone also mentioned how dairy can contribute to acne, and that was further incentive to drop it.  i just had icecream twice last week and I did not get a stomach ache from it (yeah!) but my skin is acting up again (boo!), so from this I am guessing that I am no longer lactose intolerant (after 1 year gluten-free) but my body doesn't lile something in the dairy so I get spots.  I'll stay mostly dairy free.

Link to comment
Share on other sites
Ksee Rookie

I came off gluten, not convinced it was my problem, but after only a few days my digestive problems had improved so much it came clear. I can't say when these problems started, they were so insidious. It was only with partial relief I realized how much pain I had been in.

I am learning as I go along what symptoms may be due to gluten but I would imagine, depending on the damage, some problems will take longer and some may be permanent. 

There is no reason now to cry over the past, so I try not to think about what my life could of been if someone had recognized this before my autoimmune pituitary destruction, and damage to my eyes, among other problems. 

To answer your question, how long depends on how sick you were I suppose. 

Make sure to write all this down so you can remind yourself later how much you don't want to have to do it again.

Link to comment
Share on other sites
taynichaf Contributor

For me, it took a few weeks for some GI symptoms and migraines to improve. For other symptoms like fatigue, and pain.... well, I'm one year in and still waiting.  LOL :rolleyes:

 

You'll probably need to give it until Xmas, or even longer, before all your symptoms clear up.

 

I went entirely dairy free in my second month gluten-free (I believe). Once I was gluten-free, it became much easier to notice how dairy gave me stomach aches so that made it simpler. Someone also mentioned how dairy can contribute to acne, and that was further incentive to drop it.  i just had icecream twice last week and I did not get a stomach ache from it (yeah!) but my skin is acting up again (boo!), so from this I am guessing that I am no longer lactose intolerant (after 1 year gluten-free) but my body doesn't lile something in the dairy so I get spots.  I'll stay mostly dairy free.

I noticed dairy gives me stomach aches too! I'm going to go dairy free for awhile starting now... ha.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



taynichaf Contributor

Thanks for the replies! I was actually only gluten free for 4 days when i posted this :} Some symptoms are slowly improving though.. I just want this depression completely gone!... NOW! But i'm trying to be patient..

Link to comment
Share on other sites
nvsmom Community Regular

My mood felt worse (withdrawal) before it felt better. Days 4-20 were my worst. Hang in there if it doesn't get better this month.

Link to comment
Share on other sites
Fire Fairy Enthusiast

I was already depressed prior to the first month so my MD put me on an anti-depressant the same day he told me to go gluten free once it managed to get absorbed I was a lot better. It still sucked though because I was diagnosed at the start of November and had to deal with telling the family at family get togethers, which in my family revolve around food.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,088
    • Most Online (within 30 mins)
      7,748

    Aventine
    Newest Member
    Aventine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
    • knitty kitty
      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
    • Anmol
      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
    • Tanner L
      Constantly! I don't want everything to cost as much as a KIND bar, as great as they are.  Happy most of the info is available to us to make smart decisions for our health, just need to do a little more research. 
×
×
  • Create New...