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Second Guessing My Gluten Problem...
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10 posts in this topic

I've only been gluten for about a week now...but ask the other times I tried going gluten free I would feel starving and very sleepy...now I'm still just my normal exhausted self..my arm is like limp just from holding some clothes.. How long did it take you to feel better?

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At least a good 6 months gluten free and casien free before I started really feeling better. Slowly but surely it gets better the longer your off it.

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Eight months for me. And sooo worth it. But boy, it was a bumpy ride! Hang in there!!

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how did you know to go casein free?? Is that just lactose?

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For me, it took a few weeks for some GI symptoms and migraines to improve. For other symptoms like fatigue, and pain.... well, I'm one year in and still waiting.  LOL :rolleyes:

 

You'll probably need to give it until Xmas, or even longer, before all your symptoms clear up.

 

I went entirely dairy free in my second month gluten-free (I believe). Once I was gluten-free, it became much easier to notice how dairy gave me stomach aches so that made it simpler. Someone also mentioned how dairy can contribute to acne, and that was further incentive to drop it.  i just had icecream twice last week and I did not get a stomach ache from it (yeah!) but my skin is acting up again (boo!), so from this I am guessing that I am no longer lactose intolerant (after 1 year gluten-free) but my body doesn't lile something in the dairy so I get spots.  I'll stay mostly dairy free.

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I came off gluten, not convinced it was my problem, but after only a few days my digestive problems had improved so much it came clear. I can't say when these problems started, they were so insidious. It was only with partial relief I realized how much pain I had been in.

I am learning as I go along what symptoms may be due to gluten but I would imagine, depending on the damage, some problems will take longer and some may be permanent. 

There is no reason now to cry over the past, so I try not to think about what my life could of been if someone had recognized this before my autoimmune pituitary destruction, and damage to my eyes, among other problems. 

To answer your question, how long depends on how sick you were I suppose. 

Make sure to write all this down so you can remind yourself later how much you don't want to have to do it again.

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For me, it took a few weeks for some GI symptoms and migraines to improve. For other symptoms like fatigue, and pain.... well, I'm one year in and still waiting.  LOL :rolleyes:

 

You'll probably need to give it until Xmas, or even longer, before all your symptoms clear up.

 

I went entirely dairy free in my second month gluten-free (I believe). Once I was gluten-free, it became much easier to notice how dairy gave me stomach aches so that made it simpler. Someone also mentioned how dairy can contribute to acne, and that was further incentive to drop it.  i just had icecream twice last week and I did not get a stomach ache from it (yeah!) but my skin is acting up again (boo!), so from this I am guessing that I am no longer lactose intolerant (after 1 year gluten-free) but my body doesn't lile something in the dairy so I get spots.  I'll stay mostly dairy free.

I noticed dairy gives me stomach aches too! I'm going to go dairy free for awhile starting now... ha.

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Thanks for the replies! I was actually only gluten free for 4 days when i posted this :} Some symptoms are slowly improving though.. I just want this depression completely gone!... NOW! But i'm trying to be patient..

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My mood felt worse (withdrawal) before it felt better. Days 4-20 were my worst. Hang in there if it doesn't get better this month.

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I was already depressed prior to the first month so my MD put me on an anti-depressant the same day he told me to go gluten free once it managed to get absorbed I was a lot better. It still sucked though because I was diagnosed at the start of November and had to deal with telling the family at family get togethers, which in my family revolve around food.

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    • I_would_widen_the_search_to_your_whole_environment.....Carefully_consider_what_else_was_different_when_you_felt_better.
    • Thanks a lot for your advice and the link. I will surely check upon GCED. But, doesn't a negative HTTG (can't do IgA ttg as IgA deficiency) result mean that I am not exposed to gluten ? 
    • Thank you for going through my long post and responding. I have been both dairy and gluten-free free for 10 months now. Yes, even I was worried about other food allergies. I mentioned it to my GI doc and asked if I need food allergy test to eliminate other allergens. He said, food allergy tests give a lot of false positives and are not accurate. He said: not everything is because of food allergy and it's refractory celiac which is causing issues as the jejunum biopsy, done recently, is showing villous flattening.

      My doubt: 1. If I have so much damage in my small intestine (villous flattening) then how was I keeping fine for 6-7 months ( eating eggs, soy, rice and meat) - was constantly losing weight though - but was able to work out regularly - not much fatigue. 2. If it is other food allergens ( out of mentioned allergens, I take eggs, soy chunks, almonds only) why does it happen only few times and not always - I keep well for 7-8 days and then fall sick again - this without any change in diet.  
    • Oh, Trish at the GlutenFreeWatchDog tested Planter's honey roasted peanuts three years ago.  The can did not state gluten-free, but showed no gluten ingrediants (per Kraft policy).  Test result: less than 5 part per million which is pretty much gluten-free.  
    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
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