Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


Photo
- - - - -

Could It Be Celiacs?

pre diagnosis symptoms

  • Please log in to reply

2 replies to this topic

#1 Amaytrain

 
Amaytrain

    New Community Member

  • Members
  • Pip
  • 1 posts
 

Posted 06 June 2013 - 06:51 PM

Hello:

My name is Amanda. I'm so glad I found this site. Recently I've been going through a bought of extreme stress... Anyway, even more scarier is my health, which looking back now are issues I've had my whole life. I haven't had my period since March so of course I went to the gyno and he found a mass on my ovaries (not cancerous). However he said some of my symptoms couldn't be cause my the mass and suggested that I may have Celiacs and told me to find a good gastro. Here are my symptoms: canker soars (had my whole life) trouble gaining weight (I've had my whole life) tingling in my hands and feet, odd rashes that are extremely itchy on my elbows (I've had my whole life on and off), headaches (I've had my whole life), either I'm constipated so bad I have to take massive amounts of laxatives to go, or I have diarrhea so bad I can't stay out of the bathroom... I've always had irregular "movements" but the past few months its been so bad. I'm in my twenties and I've actually gone in my sleep and in my pants at work while I was running to the bathroom (how embarrassing). I notice the enamel on my teeth is starting to wear away a little bit, my belly is so bloated it looks like in pregnant but I can rarely release anything, when I do it is so foul I have to leave the room. I've lost 14 pounds since March. After I do go to the bathroom I'm so fatigued and exhausted all I can do is lay down for a couple hours... When I go through the spells of diarrhea I can't seem to hold any food in my system and its like water when I go and the color of clay. I'm constantly exhausted lately its awful... I either have no appetite at all or can't stop eating because I'm soooo hungry! I just feel so frail! I've never really been diagnosed with any sort of disease before besides anemia. I also am so irritable and have such bad mood swings lately, sometimes all I can do is cry and I notice I lose my patience with my daughters so much easier lately. Sometimes all I can do is cry. I am so fed up I look anorexic and like a little boy I am so skinny and I am in my mid twenties with two babies. I also get nauseated after I eat. My husband noticed a huge difference in me too, especially my weight. I might also add I have a neural tube defect in my spine (which my doc assured me is not related to these symptoms). Since he suggested Celiacs I've done a bit of research and it seems a lot of the symptoms at there... However they have come and gone my entire life it just seems very prominent now. I wanted to get some feedback from someone who actually has Celiacs Disease and see if they an relate at all and try and figure out if its possible and worth going to get tested. Please excuse all of the typos I am on my phone!
  • 0

Celiac.com Sponsor:

#2 powerofpositivethinking

 
powerofpositivethinking

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 636 posts
 

Posted 06 June 2013 - 07:01 PM

welcome  :)

 

based on what you wrote, I think you should definitely get yourself tested!  remember for testing to be valid, you MUST continue to eat gluten until all testing is complete.  first you should request a complete celiac panel, which consists of:

DGP iga/igg

ttg iga/igg

EMA

Total iga serum-this is a control test to make sure you produce enough iga antibodies to validate your other iga results

 

you should be able to request this test through your PCP before you even go to the GI.  

 

check out this link:

http://www.curecelia...or-to-diagnosis

 

anemia is related to celiac.

 

go get yourself tested, and remember to continue to eat gluten until ALL testing is complete.  also remember to request copies of all test results, so that you can review them too.

 

good luck!

Hello:

My name is Amanda. I'm so glad I found this site. Recently I've been going through a bought of extreme stress... Anyway, even more scarier is my health, which looking back now are issues I've had my whole life. I haven't had my period since March so of course I went to the gyno and he found a mass on my ovaries (not cancerous). However he said some of my symptoms couldn't be cause my the mass and suggested that I may have Celiacs and told me to find a good gastro. Here are my symptoms: canker soars (had my whole life) trouble gaining weight (I've had my whole life) tingling in my hands and feet, odd rashes that are extremely itchy on my elbows (I've had my whole life on and off), headaches (I've had my whole life), either I'm constipated so bad I have to take massive amounts of laxatives to go, or I have diarrhea so bad I can't stay out of the bathroom... I've always had irregular "movements" but the past few months its been so bad. I'm in my twenties and I've actually gone in my sleep and in my pants at work while I was running to the bathroom (how embarrassing). I notice the enamel on my teeth is starting to wear away a little bit, my belly is so bloated it looks like in pregnant but I can rarely release anything, when I do it is so foul I have to leave the room. I've lost 14 pounds since March. After I do go to the bathroom I'm so fatigued and exhausted all I can do is lay down for a couple hours... When I go through the spells of diarrhea I can't seem to hold any food in my system and its like water when I go and the color of clay. I'm constantly exhausted lately its awful... I either have no appetite at all or can't stop eating because I'm soooo hungry! I just feel so frail! I've never really been diagnosed with any sort of disease before besides anemia. I also am so irritable and have such bad mood swings lately, sometimes all I can do is cry and I notice I lose my patience with my daughters so much easier lately. Sometimes all I can do is cry. I am so fed up I look anorexic and like a little boy I am so skinny and I am in my mid twenties with two babies. I also get nauseated after I eat. My husband noticed a huge difference in me too, especially my weight. I might also add I have a neural tube defect in my spine (which my doc assured me is not related to these symptoms). Since he suggested Celiacs I've done a bit of research and it seems a lot of the symptoms at there... However they have come and gone my entire life it just seems very prominent now. I wanted to get some feedback from someone who actually has Celiacs Disease and see if they an relate at all and try and figure out if its possible and worth going to get tested. Please excuse all of the typos I am on my phone!


  • 0

Diagnosed with celiac disease, but my fat malabsoption, EPI and Vitamin K deficiency have finally cleared themselves up do to the help from Creon!

Thankful for all the help I've received from members on this board!

Happy to have answers  :) 


#3 nvsmom

 
nvsmom

    Moderator

  • Moderators
  • PipPipPipPipPipPip
  • 3,601 posts
 

Posted 06 June 2013 - 07:06 PM

Oh yes! Your symptoms definitely fit. They are actually quite classic symptoms. I think it wouldbe worth your while to get tested. Plus there is a genetic link to celiac so you will want to have your kids tested, and repeat the testing every few years if they continue to eat gluten.

The celiac panel is:
DGP IgA and DGP IgG
TTG IgA and tTG IgG
Total serum IgA
EMA IgA
AGA IgA and AGA IgG (these are older and less frequently used tests)

You must be eating gluten in the weeks prior to testing for an accurate test. If all tests are negative, it is possible that you have Non-Celiac Gluten Intolerance/sensitivity (NCGI) which is also treated with a gluten-free diet.

You might want to request nutrients be checked as celiacs are usually low in ferritin, iron, potassium, calcium, D and B's. Thyroid problems are in more than 1/10 celiacs too so you might want to check TSH (should be near a 1),freeT3 and free T4 (should be in the 50-75% range of your labs normal reference range), and TPO Ab.

When you go to the doctor, bring your list of symptoms and examples of how it affects your life. Everyday examples seem to help doctors understand our symptoms better.

Best wishes. I hope you find answers and feel well soon.

Edited to says "oops", P of P was faster....ditto everything she said. :)
  • 0
Nicole Posted Image

"Acceptance is the key to happiness."

ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012

CANADIAN

Celiac.com - Celiac Disease Board Moderator





0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: