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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

3 Year Old With Unusual Symptoms
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4 posts in this topic

Hi there,

 

I have just been offered a celiac test by my gp for my 3 year old but I'm sceptical she that she is suffering from this as she seems to not have the main symptoms - anyway here goes...

 

Since infancy she has had trouble pooping - more recently up to a week or longer without going and extreme pain when she does - sometimes taking another week to get it out (crying and lying on the couch for a week) She has a raised bumpy rash on her upper arms and cheeks but it is not too visible as it has only a little redness - it is not sore or itchy at all for her. She has been moody and cries a lot which is not her normal character. She has started to lose weight but is still withing the 50% percentile (was just above, now a little under). anyway after watching her get worse over the last 12 months I finally put her on a 10 day elimination diet (sugar, eggs, dairy & gluten) not 100% but 99% or enough to see if it was food causing the issue, she had instant improvement and has been the dear wee girl we used to know. She poops every 2nd day now (unformed but not fatty).

I reintroduced everything and only got a reaction from wholegrain bread - within 1 hour she was crying and had an allergy ring on her backside. - Took her to DR to get advice on how to figure out if it was wheat, additives etc and she suggested Celiac. Her cousin has the gene but no one actually has it in the family (although there are a few sensitives)

 

Does this sound like Celiac to anyone - she suggested I let her eat whatever for the next two weeks including gluten every day until we get a blood test - started today and her rash is back and she has been very easily upset  for about 90 minutes after each meal - then fine again

 

part 2 is that I am breastfeeding a 7 month old right now who is showing the same poop every 10 days, gassy symptoms his sister did at that age (although not as bad) - should I go gluten free as well - I have heard of developmental problems occurring and I'd rather not take a wait and see approach.  I doubt very much I would show positive to celiac disease as I have zero tummy trouble although... I do have ADD and endometriosis which I understand is linked.

 

 

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Constipation is a pretty common symptom. It was one of my main symptoms too. My mom has told me that as an infant, I used to have to strain and cry. Changes in mood are a main symptom in childhood celiacs too. I think getting her testing is worth a try, especially after she had a positive reaction to a (mostly) gluten-free diet. I think that shows that she either has celiac disease or Non-Celiac Gluten Intolerance/sensitivity (NCGI). NCGI has no diagnostic blood tests so you would need to try a 100% gluten-free trial and look for positive results... after she is done testing though, keep eating gluten until then.

 

The full celiac panel is:

  • DGP IgA and DGP IgG (great test for detecting celiac disease in young children)
  • tTG IgA and tTG IgG
  • EMA IgA (detects advanced disease and is often negative in children)
  • total serum IgA (a control test)
  • AGA IgA and AGA IgG (older and less frequently used tests)

And as I said before, she could have NCGI if her celiac tests are negative, in which case she will need a strict gluten-free diet in order to feel well.

 

If you suspect problems in your 7 month old, you might want to get her and yourself tested... although I'm not sure if they test that young and if there is enough gluten in her diet for accurate results. Because celiac is genetic, you and their dad should also get tested. You might as well test before going gluten-free, just so you know if celiac disease is an issue for you.

 

Good luck and welcome to the board.  :)

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I can't address the issues with the children, but I can tell you that I had no intestinal symptoms.  I have thyroiditis and iron deficiency anemia (Doc caught it during a routine physical).   There are four kinds of celiac and one of them without symptoms.  I think my source is either University of Chicago or UC San Diego.  You should get checked, if anything, to prevent other problems from developing.  

 

 

Good luck!  

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Thanks so much - just crossing fingers Dr is being dramatic!

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    • Newbie: mother to coeliac kids
      If uncooked, he might have difficulty digesting them because eating ANYTHING with a Marsh Stage 4 gut is bound to hurt.    If pickled, he might be reacting to any of the ingrediants even though they could be gluten free.   Often, celiacs develop several food intolerances.  Lactose intolerance is the most common.   I'd recommend keeping a food diary and well-cooked stews, soups for a few days or weeks until his symptoms improve.   Good Luck!  
    • Newbie: mother to coeliac kids
      Research indicates that the celiac disease blood test results do not necessarily correlate with intestinal damage.  My blood tests were "barely positive" yet I had a Marsh Stage 3B (moderate to severe damage).   But that's not important.  Your boy's health is more important!   I can see why he is suffering so much.  The good news is that he should feel well much faster because he is young.  My heart goes out to you and your family!  
    • Newbie: mother to coeliac kids
      Sorry, but I would have to remind you and those who are newbies, that a whole foods, well-cooked diet is probably best.  Avoid all processed foods.  If you have severe intestinal damage, the villi tips are so damaged (or non-existent) that they can not release all the necessary enzymes, etc. to help a person digest and absorb food well or barely!!!  Many celiacs are lactose intolerant until healing occurs (for life if you are genetically lactose intolerant like many Asians, for example).  Many celiacs have developed additional foods intolerances, so it is recommended that you keep a food and symptom journal.   Some folks might be corn intolerant and other might have issues with nightshades (like potatoes).  Others might have issues with even a good veggie like cauliflower.  I personally can not digest cauliflower after a good glutening for some unknown wacky reason.  What I am trying to say, is that everyone has to figure it out on their own because we all have different issues related to celiac damage.  Lactose intolerance is the most common and a good place to start especially with SEVERE intestinal damage like Marsh Stage 4.   
    • need advice
      Welcome!  The only way to find out if you have celiac disease is to get tested.  Here are the tests that your GP can order for you: http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/diagnosing-celiac-disease/screening/ THIS IS IMPORTANT!  YOU MUST BE CONSUMING GLUTEN DAILY FOR THE BLOOD TESTS TO BE ACCURATE.  THIS ALSO INCLUDES THE ENDOSCOPY (BIOPSIES) WHICH ARE DONE BY A GI.   Anxiety can be a symptom for celiac disease.  Please do some more research so that you can get a proper diagnosis.  Can you go gluten free?  Sure.  That's what my hubby did 15 years ago per the very poor advice of my allergist and his GP.   Twelve years later, I was diagnosed.  Weird, huh?  Anyway, hubby will tell you that I get way more support.  He get's a lot of eye rolling.  Plus, our kid (and my folks and siblings) get screened every few years because I have a diagnosis.  My kid gets tested every couple of years even without symptoms because you can be symptom free and still have celiac disease.  celiac disease is genetic.   It is an autoimmune disorder triggered by gluten.  It is the only autoimmune disorder that is triggered by something known.  If you have RA, MS or Lupus, for example, doctors do not know what actually triggers these other autoimmune disorders.   So, Keep researching.  
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