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Just Diagnose Celiac What Vitamins And Supplements Do I Need?
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I was just diagnose by a biopsy that I have Celiac, still waiting on blood work.  I started Gluten free diet and still in sever pain, no energy, don't have watery diarrhea but lose bowel movements, feel totally run down, have thrush in my mouth, not to mention totally overwhelmed.  I am totally confused on what vitamins and supplements I should take. What is the difference between probiotics and digestive enzymes and why and how should I take them? I also have microscopic colitis.  So I am fighting a double whammy right now with both my small and large intestines.  Any advice will be greatly appreciated.  

 

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I was just diagnose by a biopsy that I have Celiac, still waiting on blood work.  I started Gluten free diet and still in sever pain, no energy, don't have watery diarrhea but lose bowel movements, feel totally run down, have thrush in my mouth, not to mention totally overwhelmed.  I am totally confused on what vitamins and supplements I should take. What is the difference between probiotics and digestive enzymes and why and how should I take them? I also have microscopic colitis.  So I am fighting a double whammy right now with both my small and large intestines.  Any advice will be greatly appreciated.  

 

 

Wow,  Please do work on it to get well.  IF you can do or have done a nutrient test you can find out some exact things that you are needing.  Do get  quality supplements.  I get mine through my health care professionals.

 

Probiotic:   Adds good bacteria that live in the intestines.  Yougart contains these bacteria.  There are many varities and each can have its own advantages.

 

Enzymes:  My health practitioner told me that the villi in the small intestine tell the pancreas when to fire.  When the villi is damaged, they fail to do this.  An enzyme supplement can help break down the food.  The damage to the villi is reversible, so you may not need to take the enzymes for ever.

 

Get Better soon

 

Diana

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Wow,  Please do work on it to get well.  IF you can do or have done a nutrient test you can find out some exact things that you are needing.  Do get  quality supplements.  I get mine through my health care professionals.

 

Probiotic:   Adds good bacteria that live in the intestines.  Yougart contains these bacteria.  There are many varities and each can have its own advantages.

 

Enzymes:  My health practitioner told me that the villi in the small intestine tell the pancreas when to fire.  When the villi is damaged, they fail to do this.  An enzyme supplement can help break down the food.  The damage to the villi is reversible, so you may not need to take the enzymes for ever.

 

Get Better soon

 

Diana

Thank you Diana, this info really helps clear things up. 

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We all seem to start a bit overwhelmed, but work out of it eventually.  Irish heart wrote a thread for Newbies incase you have yet to see it.  http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/?hl=%2Birishheart+%2Bnewbie#entry833862  I am still in the healing process.

 

Note:  there may be still some unanswered questions in the original post.  Also welcome Niese!

 

Diana

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L-Glutaminase is a supplement that helps repair muscle tissue and as such, it helps repair the small intestine. It might be something to look into.

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L-Glutaminase is a supplement that helps repair muscle tissue and as such, it helps repair the small intestine. It might be something to look into.

I did start L-Glutaminase a few days ago but seems like every time I take it my stomach burns for awhile afterwards. 

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Wow,  Please do work on it to get well.  IF you can do or have done a nutrient test you can find out some exact things that you are needing.  Do get  quality supplements.  I get mine through my health care professionals.

 

Probiotic:   Adds good bacteria that live in the intestines.  Yougart contains these bacteria.  There are many varities and each can have its own advantages.

 

Enzymes:  My health practitioner told me that the villi in the small intestine tell the pancreas when to fire.  When the villi is damaged, they fail to do this.  An enzyme supplement can help break down the food.  The damage to the villi is reversible, so you may not need to take the enzymes for ever.

 

Get Better soon

 

Diana

My hubby bought me a probiotic and on the bottle it states enzymes for digestive health.  He swears this one pill is both probiotic and digestive enzymes.  I am still confused on these two. Can it be in one pill or is it two separate things that I need?

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ioI did start L-Glutaminase a few days ago but seems like every time I take it my stomach burns for awhile afterwards. 

I think you're trying to do too much too soon.  My advice is to slow down.  Just adhere to the gluten-free diet.  Focus on that.  Because you have issues with Thrush, take probiotics.  Right now, I take Trunature that's dairy and soy free from Costco.  It's cheap.  After any courses of antibotics, I take Bio-K+ which dairy free versions and it's in liquid form.  It's not cheap, but it's what my doctor prescribes and it can be purchased in most health food stores or Whole Foods/Sprouts, etc.  

 

I take L-Glutamine now, but I waited for about six weeks of being gluten-free, just to let my system calm down.  I also didn't start taking iron supplements until then either (as they can be hard to digest) -- I have iron deficiency anemia.  Sometimes it's best to start something slowly, like every other day to build up a dosage that's right for you.  

 

Has your doctor prescribed anything for your thrush?  

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My hubby bought me a probiotic and on the bottle it states enzymes for digestive health.  He swears this one pill is both probiotic and digestive enzymes.  I am still confused on these two. Can it be in one pill or is it two separate things that I need?

My probiotic is taken on an empty stomach.  Whereas my enzymes are taken before a meal.  They are separate.  They are different things.  I know they have capsules that are time release, so I can't say for sure whether it might be possible to release each when or where they are needed.

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    • Thank you so much guys. Reading that last response and those from forum members who seemed to be mind-bogglingly sensitive to gluten at times helps me feel like less of a freak  Perhaps worse than the symptoms themselves was my fear that I'm the only person on earth who has gone through this and that if it continues, I will end up with all of my friends and family washing their hands of me because it would look to them like I'm the only one with this and so I must be crazy. It's really good to hear that the sensitivity can go down too. I've been holding onto this idea through the tough times, reminding myself that I also had really bad hayfever for a few years, and asthma at a different time and they both got better.  It has been a whole month since I had a bad reaction to gluten. It has also been two weeks since I even had a small reaction and I'm feeling SO much better. I'm still going to take every precaution I can but this feels worlds away from how it was. At my most risk averse, I had a day on holiday where I only ate bananas and avocados because I could eat them without them having been touched by human hands, even my own! (This was straight after getting sicker and sicker and hunting down what it was that made me ill. I found the refill bottles of soap in the house where I was staying and read that they had wheat in them - not an airborne reaction I imagine but when I washed my hands to prepare food it was probably contaminating my food. Plus because I didn't speak the language, I couldn't be sure the new soap I bought was gluten free.) Now, I am still avoiding environments with lots of gluten and staying clear of all grains, with the exception of rice which I reintroduced using the food challenge method as directed by my dietician (since I understand that rice is, according to Dr Fasano, the lowest risk of gluten contamination of all the grains) and I am building my weight back up. My husband has been able to see also that the last time he cooked gluten in the house was the last time I got ill. So it is reassuring for him to see that the sacrifice he is making is making such a difference to me. I also took the advice about new cooking utensils - thanks! I have my fingers crossed for me. I want this better health to continue but right now I'm happy to know that there is a break in the clouds and to know that I can feel like me again. Good luck to everyone, sensitive or not, who gets into a bad place with managing their reactions. Hang on in there!        
    • I'm not sure I just had the endoscopy, and I've had a  songram. 
    • Thanks and I'm seeing a doctor in three months may have to make it sooner.    Thanks for all the replies.
    • Hey guys so question. I still am going through some of the motions to finally be diagnosed. I has a really bad case of acid reflux a few days ago and now i feel soo sick. Im still eating gluten because i got a negative biaopsy test but ive been told thag i more than likely still have it because its really hard to detect. Well i drank beer last night and had a poutine today stupid i know and now i feel soooo sick. And only felt really sick after the poutine. Now my question is can your symptoms get worse all of a sudden??  I have many other symptoms thaat read celiac deisease for most of my life. But since all doctors told me you have anxiety ibs and fibro at 28 years old. I just baiscally gave up and figured this was going to be my life feeling like crap for the rest of my life. Any thoughts??? Thanks guys. Sorry for the novel lol
    • A negative result from a biopsy that is. 
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