Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Celiacs Diagnosed As Anxiety
0

11 posts in this topic

My 9 year old daughter has been diagnosed with General Anxiety Disorder. She has been very anxious and was having a very difficult time at school. After weeks of trying zoloft, therapy appts and a modified school schedule we finally had some blood work done. Everything was normal except for her tTG was over 100. Is it likely she has Celiacs? Has anyone else experienced major anxiety as a symptom? Thanks!

0

Share this post


Link to post
Share on other sites


Ads by Google:

We were told that my daughter had abdominal migranes due to anxiety. This was at age 3, and she'd been complaining of stomach pain since she learned to talk. I never bought the abdominal migrane idea - it was obvious to me that her anxiety/fussiness was the RESULT of the pain, not the cause. We knew the problem was food-related, but we could never quite figure it out. Once the doctor got it in her head that she had no physical problem, there was nothing we could say to change her mind. When I expressed skepticism at the abdominal migranes diagnosis, the doctor's response was that MY anxiety about my child's health must be rubbing off on my daughter! It was truly exasperating. We were in a total catch-22. Needless to say, we found another doctor.

Now, at age 4, she just tested positive for tTG-IgA, DGP-IgA, and DGP-IgG. Both of her IgA numbers were in the mid-60s. She's having an endoscopy in a few days to confirm, but from what the nurse said on the phone it sounds like the pediatric GI doctor is clearly expecting her biopsy to be positive. Extreme irritability and clinginess has been one of my daughter's main symptoms since infancy. I can certainly see how someone would interpret that as anxiety.

If the tTG was the only test run, perhaps there could be another explanation. But with your daughter's number over 100, celiac sure seems likely. I hope they are able to investigate further soon and give you a clear diagnosis! If it is celiac, it would be so good to find our now so you can get her feeling better.

0

Share this post


Link to post
Share on other sites

Yes, anxiety has been an issue for my whole life.  It has also been an issue for the family I grew up in and the family I am mother too.  I hope she will soon have a definitive diagnosis and feel better.

 

Diana

0

Share this post


Link to post
Share on other sites

Anxiety..... of course she has anxiety. Wouldn't you be anxious if your life caused you pain? If no one seemed to notice how hard you tried or listened to you? 

However treating a symptom (alone) isn't going to help and neither is the doctor's condescension. As a parent, straighten you back, raise you chin look straight in that doctor's eye.

Tell him/her to either pay attention or you will be finding someone with the compassion due your daughter.

Say it in an even tone without raising your voice.

Don't let your gaze waver.

Do let your daughter see you stand up for her in a positive way.

Then be prepared to either discuss the situation or find another doctor but either way your daughter will know someone has her back.  Keep letting her know that and the anxiety should start getting better.

It might help to talk to a grief councilor too. It's not going to be easy to learn how to be different from the other kids since she has already been traumatized but you are on the right track now. 

Good luck, tell her we are all cheering for her :)

Edited by Ksee
2

Share this post


Link to post
Share on other sites

Thanks for the feedback.  Oddly the anxiety seems to be her only symptom, she rarely complains about stomach pain or cramping.  The doctor felt that the high tTG may be a false positive but she referred us to a GI to be sure.  I think I will ask them to run another blood panel first to see if the level remains high. 

0

Share this post


Link to post
Share on other sites




Thanks for the feedback.  Oddly the anxiety seems to be her only symptom, she rarely complains about stomach pain or cramping.  The doctor felt that the high tTG may be a false positive but she referred us to a GI to be sure.  I think I will ask them to run another blood panel first to see if the level remains high. 

Good idea. Other conditions can cause the high ttg.

0

Share this post


Link to post
Share on other sites

My 9 year old daughter has been diagnosed with General Anxiety Disorder. She has been very anxious and was having a very difficult time at school. After weeks of trying zoloft, therapy appts and a modified school schedule we finally had some blood work done. Everything was normal except for her tTG was over 100. Is it likely she has Celiacs? Has anyone else experienced major anxiety as a symptom? Thanks!

I'm sorry, I over-reacted. I was thinking about being in the third grade with anxiety issues. It is so hard to be in the third grade but this has to be intolerable for your poor baby. I'm sure you are suffering as much as she is having to watch her struggle. 

In one way you are lucky, many doctors don't recognize anxiety in children and don't treat it thinking they will grow out of it. I know you don't feel lucky with treatment not going well yet.

I have a sister with major anxiety problems. She went undiagnosed most her life and paralyzed in fear. I'm sure I projected my anger from that with my response. I guess my feeling helpless to do anything for her just came out.

It's no fault of yours though. Again, I'm sorry for reacting that way.

0

Share this post


Link to post
Share on other sites

My son got diagnosed with anxiety right around that age.  At age 10 he got diagnosed with celiac disease and the anxiety went away.  It comes back when he gets glutened.  I often wonder how he would have suffered if he hadn't gotten that celiac disease diagnosis.  We are very fortunate that he has a well informed pediatrician.

 

Anxiety was his only noticeable symptom until he started vomiting several times a day which led to the celiac disease diagnosis.  Looking back I can see other symptoms, but nothing brought us to the doctor.

 

I hope that you get things settled with your daughter soon.  It is hard to watch your child suffer.

2

Share this post


Link to post
Share on other sites

my anxiety has gotten much better going gluten free!  I think it's smart to ask for another blood test, but when you do, insist on a complete celiac panel if it has not already been done.

 

that consists of:

DGP iga/igg

TTG iga/igg

EMA

total iga serum-this is a control test that makes sure enough iga is produced to validate the other iga results

 

in addition, here is a link to some other known causes of high ttg:

http://www.cureceliacdisease.org/archives/faq/after-going-gluten-free-can-a-positive-ttg-mean-anything-other-than-gluten-present-in-my-diet

 

 

greenbeanie, would it be worth it to send your previous doctor a letter of your daughter's experiences after you left that office and her diagnosis?  yes, it might be a little smug and provide some validation, however she should know for the future that if a celiac panel would have been run, it would have provided an answer much sooner.  glad that you're getting some answers now  :)

We were told that my daughter had abdominal migranes due to anxiety. This was at age 3, and she'd been complaining of stomach pain since she learned to talk. I never bought the abdominal migrane idea - it was obvious to me that her anxiety/fussiness was the RESULT of the pain, not the cause. We knew the problem was food-related, but we could never quite figure it out. Once the doctor got it in her head that she had no physical problem, there was nothing we could say to change her mind. When I expressed skepticism at the abdominal migranes diagnosis, the doctor's response was that MY anxiety about my child's health must be rubbing off on my daughter! It was truly exasperating. We were in a total catch-22. Needless to say, we found another doctor.

 

0

Share this post


Link to post
Share on other sites

Does brain fog and anxiety run rise together?  I think mine does.  I am thinking these are neurological troubles and hard to talk about and define until one discovers what it is like without them.  I mentioned that because of the comment that she had little other symptoms.  I think the fog, fatigue, and anxiety were my hardest symptoms.

0

Share this post


Link to post
Share on other sites

Ksee, no worries. I didn't take your post as rude. This has been a frustrating process, trying to get psych treatment and countless hours in emergency rooms and therapy apps. All this time we were treating her mental/emotional symptoms and never even considered this could be a physical condition. I'm anxious to get her blood work redone so we can begin getting her gluten free and hopefully feeling better. I'm a bit relieved that some others experienced only the anxiety as well, it gives me hope that perhaps this is a physical condition that we can treat. Thank you all for your help!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,684
    • Total Posts
      921,744
  • Topics

  • Posts

    • I would suggest you test your daughter through a doctor. The Enterolab tests are not recognized as accurate or reliable by the medical profession. See this link from the Chicago Celiac Disease Center: http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/
    • Sorry.  Something is wonky with either my connection or celiac.com! Your results are not specific...borderline.    That is why your PCP should refer you to a GI for further celiac blood tests and a possible endoscopy.  I recognize the lab report form.  Kaiser?  If so, a PCP can not order a full celiac panel.  Only a GI can do so.  Why bother?  Because if you test like me, the TTG tests are always negative.  Request the EMA and the DGPS test via a GI.   Do not be fooled by a lack of abdominal symptoms.  I was only anemic -- no abdominal issues at all.  Constipation is a symptom.  Your PCP is thinking is just historical Classic celiac disease symptoms.   Please email your doctor for the referral if you think you might have celiac disease and want a solid answer.    
    • Hello, I have frequent canker sores (roughly comes back every couple of months). Some blood test results are as following. Component Your Value Standard Range TISSUE TRANSGLUTAMINASE IgG 0.31 Index <=0.90 Index Tissue transglutaminase IgA 0.96 Index <=0.90 Index My doctor said that result is unspecific, and I unlikely have celiac disease, since I do not have other abdominal symptoms. For reference, I do have frequent constipation, excessive gas, frequent canker sore, etc. Do you think an upper endoscopy is recommended? I am a little hesitate considering the risk of this procedure and the fact that my symptoms are not that bad. I appreciate all suggestions.  
    • Hello, I see you posted this a long while ago, and perhaps--I hope-- it's no longer a matter of concern, but I thought I'd mention that shortly before I was diagnosed for celiac's, I had distinct yellow blotches on the corners of my eyelids toward my nose. Some months after I had stopped eating gluten, the yellow gradually went away, and--as it just reappeared now several years later, I googled the issue again.  I am only speculating here, but I do believe it is related to liver problems, which, in turn, are related to celiac's. I don't think liver function tests cover all aspects of liver health. I say this because when I was pregnant I developed a temporary liver condition called interhepatic colestasis of pregnancy (ICP), but my liver function tests had been fine. (The condition is diagnosed based on bile levels in the blood, not on liver function). I discovered upon some research that (of course!) ICP  can be associated with celiac's disease.  My hunch is this-- that celiac's presents two problems to the liver: 1) the malabsorption of nutrients--esp. Vit. K2-- that are vital liver health; 2) since gluten registers as a toxin to the immune system (I think?), perhaps the liver gets overloaded processing so much toxic material. Or perhaps there's some other reason. At any rate, poor liver health and celiac's do seem to be linked, according to a few articles I've found. Anyway, hope your problems are resolved now.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,687
    • Most Online
      3,093

    Newest Member
    Jessie.Cait
    Joined