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What Are Your "glutened" Symptoms?


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92 replies to this topic

#1 LauraZ

 
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Posted 12 October 2005 - 07:36 PM

Over this past summer, both of my daughters and I have discovered we are gluten-intolerant, even though we all test negative for celiac disease. We all express our intolerance a little differently -- I through my skin, my youngest daughter through her energy level, and my oldest daughter through her gut.

Skin and energy level are fairly easy to continue with a regular life, but when my oldest gets "glutened," it will wipe her out for 2-3 days with stomach upset, maybe some diarrhea. We have been pretty good at avoiding everything, but there is an occasional slip-up.

I was wondering how other people react to getting glutened. I know there is probably a wide variety of responses. I'm just curious if the 2-3 day range of being out sick is about average. Also, if your stomach is affected, is there anything you do to help it? We've been using heat and Alka-Seltzer Gold (recommended by a nutritionist), which helps a little.

Thanks!
Laura
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gluten-free 7/27/05

"Good judgment comes from experience. Experience comes from bad judgment."

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#2 burdee

 
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Posted 12 October 2005 - 07:51 PM

We discussed that question at our celiac support group meeting last night! My symptoms of being 'glutened' are both typical and atypical. I get bloating, gas and excruciating abdominal pain which feels like bits of broken glass are stuck in my intestines. I also get extreme fatigue, but that's easier to handle (with rest) than those excruciating pains. I drink very strong herbal peppermint tea to relax the cramping pains, take hot showers directing the water spray on painful area, or walk. My gluten symptoms can last 7-10 days even after the initial contamination. 2-4 hours after I eat anything I feel pain in the damaged areas. Fortunately I have not been 'glutened' for over a year. My most recent contamination was from dairy (I also have casein and soy intolerances) 2 months ago. You might also enjoy reading the topic "100 (or more) things to do when you're glutened".
BURDEE
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Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D and T3 thyroid supplement to maintain immunity.


#3 Drew

 
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Posted 12 October 2005 - 08:20 PM

I was wondering how other people react to getting glutened.

<{POST_SNAPBACK}>


Hi there. This is sort of a fun question to answer since no one else really wants to hear about this stuff haha.

My symtpoms from gluten contamination are: Searing ( burning ) gut pains, sharp twinges in the gut, pain in the joints, back pain, extreme fatigue, sores on my skin ( appearing that day or within 3 days ), grouchiness, D. I am sure I am forgetting some. This misery can last 3 days to a week or so depending on the level of poisoning.

My gluten-free ( diagnosed by Enterolab ) gets migraines, depression, lethargy, and some skin sores as well as D. Symptoms last a duration that is proportionate to the amount of gluten ingested. She has gotten 8+ days of migraines from one incident.

I hope this helps
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#4 cornbread

 
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Posted 12 October 2005 - 09:06 PM

From the tiniest amount of gluten or casein (I once got glutened after a beer drinker sipped from my wine glass!), I experience the following symptoms that now last about 5 days (used to be 2, then 3...)

- bloating
- acne on face/back/chest
- chronic fatigue (tripping over my feet, dropping things) that no amount of sleep will fix
- severe brain fog (can't hold a conversation, feel like I'm living in a bubble)
- depression
- irritability
- non-stop hunger and cravings for high carb things (as if my body is asking for gluten)
- excema on hands/feet
- waves of nausea

The brain fog/depression/irritability/fatigue lasts for a solid 5 days, the skin conditions take a few weeks to subside fully.
:rolleyes:

If I've had a bigger amount of gluten (ie: not cross-contamination, an actual dish that contained some gluten) then within about 10 mins of eating it my heart will begin racing, I will get severe stomach cramps and back ache, and I will feel like I can't get a full lungful of air, like someone is crushing me in a vice grip! Thankfully these days I only usually get glutened via cross-contamination, which *usually* doesn't trigger the stomach problems. Never the less, I am pretty much useless for those 5 days. Plus I try and stay out of people's way cos I am soooo irritable!! ;) :lol:
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#5 jenvan

 
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Posted 13 October 2005 - 05:12 AM

constipation, brain fog, severe fatigue, muscle pain --can last for a few days or two weeks, depending...
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#6 KaitiUSA

 
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Posted 13 October 2005 - 05:35 AM

I am very sensitive to the smallest amount and I feel it right away.
My reactions usually last 2 weeks but I am usually about 3 weeks to a month before really getting back to 100% again.
The 7th day is usually when I feel the worst..I'm not sure why.
My symptoms are: nausea, anxiety, fatigue, weight loss, irritability, constipation, depression, brain fog..there are some other minor symptoms as well but I think I pretty much covered the main symptoms. Some are usually worse than others.
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#7 jerseyangel

 
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Posted 13 October 2005 - 05:39 AM

If I accidently ingest gluten,I get frequent (3-4 times a day) D, nausea, bloating ,fatigue and just generally dont feel right for about 5 days. Lately, I'm reacting to corn with bloating and indigestion for 1 day or so. I also react to soy, dairy and legumes--these have become a problen since I've been gluten-free.
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#8 gabby

 
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Posted 13 October 2005 - 07:10 AM

As soon as I have gluten, my stomach feels like I've eaten an entire horse and I feel extraordinarily full. My stomach starts rumbling and I will feel like I want to jump out of my skin. Within the hour I get a feeling like someone has hit me across the midsection with a big flat metal shovel. Then the cramping begins, followed by bloating, gas, and sharp pains that feel like I'm being stung inside by angry bees. I also get that feeling like there's broken glass pinching me in there.

Over the next few days I get tired, achy, sore throat, headache, really sore hips, and my skin feels like it is really sunburned. I also get some acne on my face. The mix of D and constipation wears me out. I lose my appetite and lose weight. I'm a grouchy grouchy person and I sleep a lot.

It usually takes about 10 days to clear up, but I don't feel like myself for about 3 weeks.

During this time I stay away from dairy products and any sort of stimulants. I usually have very weak tea and eat a very strict and simple diet of a handful of foods that I am SURE are gluten-free (usually baked chicken with a steamed veg).

I allow myself 2 days to feel sorry for myself, and then I do not talk about or complain about it to anyone (except here :)
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#9 happygirl

 
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Posted 13 October 2005 - 07:20 AM

My symptoms usually start within about 20-30 min.
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#10 Rachel--24

 
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Posted 13 October 2005 - 12:39 PM

My symptoms usually last from a few days up to 2 weeks. I think it depends on how much gluten I have.
These are my symptoms:
-fluid retention
-fatigue
-depression/crying/irritablity/super overly emotional
-brainfog
-weight loss
-increased food sensitivities/chemicals
-burning/tingling sensations
-muscle/joint pains
-burning or blurry eyes
-headaches
-sometimes I get rashes or skin eruptions
-constipation
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#11 frenchiemama

 
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Posted 13 October 2005 - 12:46 PM

Also, if your stomach is affected, is there anything you do to help it? We've been using heat and Alka-Seltzer Gold (recommended by a nutritionist), which helps a little.


<{POST_SNAPBACK}>


Aloe juice. It's gross and snotlike, but damn does it ever work. I can't believe I lived without it for so long.
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Carolyn


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#12 frenchiemama

 
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Posted 13 October 2005 - 12:50 PM

-headache
-sleepiness
-painful bloating and gas
-sharp stomach pains
-nausea
-diarreah
-extreme moodiness - depression, crabbiness, anxiety
-heartburn
-DH breakouts
-aches and pains

The intersting thing is that I seem to get a different combination of symptoms ever time. It lasts anywhere from 2-3 days to a week or more, but the DH breakouts last much longer (I take medication for that now that keeps it under control).
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Carolyn


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#13 LauraZ

 
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Posted 13 October 2005 - 01:46 PM

Aloe juice. It's gross and snotlike, but damn does it ever work. I can't believe I lived without it for so long.

<{POST_SNAPBACK}>


Thanks so much! I'm going to go get some right now.
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"Good judgment comes from experience. Experience comes from bad judgment."

#14 Kasey'sMom

 
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Posted 13 October 2005 - 01:57 PM

Carolyn,
I find that Aloe helps to soothe my tummy as well. I've been using George's Always Active Aloe Juice. I find it at the health food store and it tastes and looks like water. What kind do you use? :)
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#15 frenchiemama

 
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Posted 13 October 2005 - 02:12 PM

Carolyn,
I find that Aloe helps to soothe my tummy as well. I've been using George's Always Active Aloe Juice. I find it at the health food store and it tastes and looks like water. What kind do you use? :)

<{POST_SNAPBACK}>



I'm not sure of the brand, I'd have to look at the bottle. I only tried it for the first time a couple of days ago, and I was so impressed.

The stuff I have definitely doesn't look or taste like water! It has a really nasty cran-apple flavor to it, and it's thick and slimy with chunks (pulp?) in it. Ew.
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Carolyn


"When the going gets weird, the weird turn pro. "
- Hunter S. Thompson




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