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What Are Your "glutened" Symptoms?


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#31 bunnybaby

 
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Posted 21 July 2009 - 02:46 AM

I have not been in here for ages as I lost my old PC and my bookmarks with it. I was doing a google search as I have been glutened yesterday and needed to reassure myself.
Your experiences are so helpful. I use Aloe in fact I started selling it (UK). My symptoms are very similar to Rachels and others lists. The pain is so severe that it scares me.

Aloe is a gel from a leaf and so good quality 99% Aloe should be a thick gel that does not taste nice but can be bought mixed with other stuff but best to use the pure stuff mix a bit of juice or honey or something in if you really can't take it any other way.

The liquid ones are good but are diluted or use not just the gel from the leaf but the juice to which makes it less effective.

Thanks again, it is helpful to read others experience. I had never had nausea like this time before.

Love Ruth
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#32 bunnybaby

 
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Posted 21 July 2009 - 02:48 AM

:D Also wanted to add that my gums and tongue have gone nearly white! It seems odd but all my other symptoms are on the lists but not this wierd one.
Love Ruth
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#33 amoliphant

 
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Posted 21 July 2009 - 10:03 AM

I've never heard this expressed by anyone else but when I get glutened this old, slow, familiar feeling starts to come over me as if my blood pressure is dropping quickly, followed by nausea and sometimes breaking out in a sweat. My eyes feel "squinty" and I feel slightly feverish and achy with a tremendous head-in-a-vice-grip headache. The diarrhea comes later. When that old, familiar like the blood is actually starting to drain from my head downward and the weakness and I might faint feeling comes on, I know I've been glutened. If we are riding in a car the symptoms are magnified like you wouldn't believe. It can be SO humiliating and has happened too many times to count. My husband has to pull over, like immediately (!), I am sweating profusely, head between the knees, weak and shaking all over. Afterward, I am completely wiped out physically for 2-3 days.
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#34 TiffLuvsBread

 
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Posted 21 July 2009 - 10:54 AM

I share symptoms with most already posted, with a few exceptions. Also my symptoms start within the hour usually, or sometimes after 2 hours. The "tummy rumblings" begin probably after 30 minutes but after an hour or two I'm really feeling awful and I'm certain it was gluten and not something else.

Exceptions for myself from what people posted:
--I do not get a skin rash, nor does my father. There are no visible signs for either of us.
--I am significantly more sensitive than my father to gluten, however he has more sensitivities than I do like MSG and chorizo sausage give him issues.
--Headaches are more than just headaches, they are migraines and they last well beyond the rest of my symptoms.
--My abdominal cramps feel almost like terrible/extreme menstrual cramps. My dad can't relate to this one, but for me that's what they feel like. Way "down deep" kind of twisting feeling cramps.
--Burping is my very first symptom, always.
--Weird "tightening" on my left side between my lowest rib and hip. Strange, and not painful but very uncomfortable, like I'm being poked in the side by something broad.
--Severe heartburn (not sure if someone mentioned it). I NEVER experience heartburn as I eat natural and never processed foods. I definitely get heartburn after a cc issue.

My symptoms last all day, and typically all the next day even though the 2nd day is much better. By the 3rd day I'm feeling normal enough to call it normal - even though my gluten-free normal is actually pretty GREAT.
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Family history of Celiac Disease (father. Sister and paternal aunt also assumed but not diagnosed).
Been fighting the inevitable . . .

St Louis, MO.

#35 Becci

 
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Posted 21 July 2009 - 10:56 AM

I am very sensitive to gluten. Just touching it gets me.
My symptoms usually start within 1-3 hours and last 3 days to a WEEK!!

My symptoms are:
Nausea, Vomiting, Sharp pain in my stomach (like knife pricks all over), Weakness, Dizziness, and Fatigue. I also have very bad mood swings, and depression; i turn into a meanie :P.
I want to just fall asleep and stay asleep.
My head gets foggy, and I can't think straight.
My legs feel like they are going to fall out from under me.
And not to be to gross, but I get consipated and it sucks!

Those are my symptoms. Sounds fuuuunnnnn.

I am the lucky kind, to where if there is a millionth of an organism of gluten in something, I will be SCREWED!
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[becci]

Celiac Disease
ABCDEFG, gummy bears are chasing me. One is red, one is blue, the yellow suckers got my shoe. ABCDEFG, gummy bears are chasing me.


#36 Becci

 
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Posted 21 July 2009 - 11:08 AM

I use Aloe in fact I started selling it (UK). My symptoms are very similar to Rachels and others lists. The pain is so severe that it scares me.

Aloe is a gel from a leaf and so good quality 99% Aloe should be a thick gel that does not taste nice but can be bought mixed with other stuff but best to use the pure stuff mix a bit of juice or honey or something in if you really can't take it any other way.

The liquid ones are good but are diluted or use not just the gel from the leaf but the juice to which makes it less effective.

Thanks again, it is helpful to read others experience. I had never had nausea like this time before.

Love Ruth




Hi Ruth,
my husband was told to take a kind of Aloe Vera to help heal the intestines if I have celiac.

It tastes like water. It is 100% pure aloe, but the unnecessary stuff has been taken out.
You should try it.


It is:
George's "Always Active" Aloe
100% Aloe Vera
Fractionally distilled liquid from aloe vera leaves

Bitter free
no unpleasant taste
no preservatives
no additives

Pure aloe! and it takes like water.

I would suggest trying it if you like using aloe for your symptoms.

Rebecca~ (we bought ours from The Whole Foods Market http://www.wholefoodsmarket.com)
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[becci]

Celiac Disease
ABCDEFG, gummy bears are chasing me. One is red, one is blue, the yellow suckers got my shoe. ABCDEFG, gummy bears are chasing me.


#37 bunnybaby

 
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Posted 21 July 2009 - 11:58 AM

Thanks Rebecca for the link, I will try it :D
Love Ruth
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#38 LBethanyC

 
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Posted 29 July 2009 - 07:29 AM

Whenever I eat gluten, even in the tiniest amount, I get:

-Extreme abdominal swelling and bloating.
-Gas.
-Constipation.
-Ache-y joints.
-Sharp pains in my back.
-Pains in my stomach.
-EXTREME fatigue. (I have to drag myself across the floor, and it takes everything I have to walk a few feet.)
-Trouble breathing at times. (Maybe because I'm so bloated? I'm not sure.)
-Depressed feeling/anxiety. I tend to feel on the verge of tears a lot, 'cause it makes my self-esteem plummet.
-I look very pale and sickly.
-Cravings for more gluten. Haha.
-Nausea and burning in the stomach (Usually the next morning when I wake up.)
-Sometimes I completely lose my appetite. The thought of food makes me want to throw up.

I'm not sure if this is a symptom or not, but yesterday when I had a bad reaction, I had this unbearable pain throughout my entire lower body. From my waist to my ankles was just a horirble ache. I took some tylenol, and it eased up a little. But it was horrible. Today, my elbow joints are aching a lot.

A few months ago, my friends and I went to McDonalds and Tim Hortons while we were on a road trip. An hour after eating, my stomach had gone from flat to several months pregnant. Lol. It was so swollen. Also, my stomach-related symptoms seem to be worse while I'm sitting down. When I stand up, they're still there, but not as painful.

Oh, and, when I get "glutened", the symptoms last for at least 4 or 5 days, if not longer.

A few weeks ago, I realized that I had been accidentally eating gluten, from the chicken breasts that me and my roommate buy. After that, for a period of 4 or 5 days, I had this constant shooting pain through my stomach, and I would break out into sweats, and have to lie down. I couldn't stomach anything but jell-o.
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Bethany
Celiac since birth, only discovered recently.
Also lactose intolerant, with severe acid reflux.

#39 SLB5757

 
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Posted 03 August 2009 - 06:55 AM

Well I have learned that Gluten is definitely a big no-no for me, but I always get roped into "trying it" just one more time by someone who feels that it just has to be some other issue.

My boyfriend, although VERY great about finding me gluten-free things, suggested this weekend that I try to add back gluten and add fiber also. He feels that if I just go to the bathroom more then I could eat gluten and be fine. Unlike many of the posters I see on the board I have different symptoms. Mine are as follows ( I am in a current "glutening", so I think I know what happens to me fairly well).

*Fairly early after glutening is the severe stomach bloating (This starts very high up under breasts and goes all the way down)
*Constipation - am unable to go to the bathroom for days - like my system completely shuts down
*two or three full days after ingestion I will start to go to bathroom again and it's an all day episode, if not two days
*day four to five seems to be fairly normal and bloating starts to subside
*fatigue
*chin "breaks out" with bumps (never have break outs any other time)
*This episode brought severe headaches
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*Multiple allergies including IGE positive RAST to Wheat, Rye, Barley and Oats.
*Diagnosed with IBS 3/09.

#40 PMM

 
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Posted 03 August 2009 - 08:48 AM

Wow. I'm so glad to hear you all talk about the deadness from the neck up. When I get glutened I can't think and I have overwhelming lethargy. My gut also looks like any minute I'm going to explode. When I was diagnosed I just thought I was gaining weight and it was all above the beltline.

I also have PVCs like crazy. Anyone else blessed with this symptom? I had to wear a holter monitor and get a nuclear stress test....all good. They make me feel like my heart is skipping a beat and can be quite severe. Although I'm Gluten Free (I really, really work at it) I still have frequent PVC's.

Patty
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What is food to one, is to others bitter poison.
Lucretius, De Rerum Natura
Roman Epicurean poet, philosopher, & scientist (96 BC - 55 BC)

#41 Karrin

 
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Posted 04 August 2009 - 09:31 AM

I'm still relatively newly diagnosed (2 months), but the last time I was cross contaminated it took me out for at least 2 weeks, with other symptoms persisting close to a month or more (mostly joint pain and bloating).

When I'm glutened severe fatigue is the worst, I'm bedridden until it passes. Lower back pain, constipation (usually, sometimes I have the big D), nausea, bloating, joint pain, my reynauld's and RA kicks into over drive, face rash, and I have such terrible head fog I can't concentrate long enough to read a sentence in a book. I sometimes have a hard time breathing too (feel unable to catch my breath).
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#42 Karrin

 
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Posted 04 August 2009 - 09:42 AM

Wow. I'm so glad to hear you all talk about the deadness from the neck up. When I get glutened I can't think and I have overwhelming lethargy. My gut also looks like any minute I'm going to explode. When I was diagnosed I just thought I was gaining weight and it was all above the beltline.

I also have PVCs like crazy. Anyone else blessed with this symptom? I had to wear a holter monitor and get a nuclear stress test....all good. They make me feel like my heart is skipping a beat and can be quite severe. Although I'm Gluten Free (I really, really work at it) I still have frequent PVC's.

Patty


I think I have something like this, though with all my other problems I've not really thought to bring it up to a doctor again (the first and only time I did he treated me like I was nuts and decided I had anxiety disorder - needless to say he was dropped for a new doc). It has gotten better since I quit all caffeine, but my heart will, on occasion, go from zero to full speed for something as simple as me walking up the stairs from the couch to the bathroom. I occasionally get really short of breath as well, I feel as though I'm unable to catch it or take a deep enough breath, though the latter has not happened since I went on the diet. I also notice when I've been CC'd and go to the doctor my blood pressure is extremely low. I have a low reading on average - about 104/45, though it used to be more like 110/55, and the last few times I've gone in (and have felt really horrid), it was 90/45 - the nurse was so surprised she read it again and was happy with the 94/45 she got.
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#43 SLB5757

 
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Posted 04 August 2009 - 09:55 AM

I think I have something like this, though with all my other problems I've not really thought to bring it up to a doctor again (the first and only time I did he treated me like I was nuts and decided I had anxiety disorder - needless to say he was dropped for a new doc). It has gotten better since I quit all caffeine, but my heart will, on occasion, go from zero to full speed for something as simple as me walking up the stairs from the couch to the bathroom. I occasionally get really short of breath as well, I feel as though I'm unable to catch it or take a deep enough breath, though the latter has not happened since I went on the diet. I also notice when I've been CC'd and go to the doctor my blood pressure is extremely low. I have a low reading on average - about 104/45, though it used to be more like 110/55, and the last few times I've gone in (and have felt really horrid), it was 90/45 - the nurse was so surprised she read it again and was happy with the 94/45 she got.



My BP is always 90 something over 60 something. No one ever seems concerned. What I think is funny is that when I went in for my scope - a nurse said "well you aren't too worried about this procedure, your BP is only 110 over 80". I told her " That IS high for me". lolol. I contribute it to being small or having poor circulation, not anything with celiac disease.
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*Multiple allergies including IGE positive RAST to Wheat, Rye, Barley and Oats.
*Diagnosed with IBS 3/09.

#44 merry0709

 
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Posted 04 August 2009 - 12:54 PM

Over this past summer, both of my daughters and I have discovered we are gluten-intolerant, even though we all test negative for celiac disease. We all express our intolerance a little differently -- I through my skin, my youngest daughter through her energy level, and my oldest daughter through her gut.

Skin and energy level are fairly easy to continue with a regular life, but when my oldest gets "glutened," it will wipe her out for 2-3 days with stomach upset, maybe some diarrhea. We have been pretty good at avoiding everything, but there is an occasional slip-up.

I was wondering how other people react to getting glutened. I know there is probably a wide variety of responses. I'm just curious if the 2-3 day range of being out sick is about average. Also, if your stomach is affected, is there anything you do to help it? We've been using heat and Alka-Seltzer Gold (recommended by a nutritionist), which helps a little.

Thanks!
Laura

I get all the same symptoms as everyone else has pretty much stated. Amazing, and quite comforting to know it isn`t in our heads, like some people believe. But the other thing I get is woken up in the middle of the night with my feet burning hot on fire and little twingy spasms in my legs. I see they just linked Restless Leg Syndrome to Celiacs. My mom has that just terrible but wont get tested. the M.D. just keeps upping her meds, and she just keeps eating her cakes, cookies and crackers, with every celiacs symptom in the book,gets sicker and takes mor pills. Frustrating.
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#45 PMM

 
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Posted 04 August 2009 - 01:15 PM

I get all the same symptoms as everyone else has pretty much stated. Amazing, and quite comforting to know it isn`t in our heads, like some people believe. But the other thing I get is woken up in the middle of the night with my feet burning hot on fire and little twingy spasms in my legs. I see they just linked Restless Leg Syndrome to Celiacs. My mom has that just terrible but wont get tested. the M.D. just keeps upping her meds, and she just keeps eating her cakes, cookies and crackers, with every celiacs symptom in the book,gets sicker and takes mor pills. Frustrating.



Wow. Tell mom she'll feel so much better if she finally figures out what she has and does something about it. It's a pain to give up the cake and cookies, but I feel so much better now that I've stopped poisoning myself. I didn't know RLS was linked to Celiac. I used to really suffer with that but I didn't want to go the medication route. It went away about the time I was diagnosed....imagine that!
I was 56 when I was diagnosed and who knows how long I've had it. I had symptoms of fatigue as long as I can remember. The GI stuff didn't really get bad until last year. When I think about how long I suffered before I got scared enough to find out what was wrong with me I just feel stupid. Even the scopes aren't all that bad and I woke up in the middle of mine.
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What is food to one, is to others bitter poison.
Lucretius, De Rerum Natura
Roman Epicurean poet, philosopher, & scientist (96 BC - 55 BC)




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