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Food Allergy Woes (Outside Of Gluten)
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It has been so long since I've been glutened that I hardly remember what it was like. Thank goodness for that! Unfortunately, I ate a handful of nuts (the first food I gave up back in the 90s). It has been a three-day drag so far. Many symptoms are similar to gluten but not as pronounced. Also, there is not much emotional disregulation as there typically is with a glutening. What IS there is the fatigue, heavy arms, muscle burning, numb knees and arthritis that typically accompanies the gluten reaction.

The nuts were made in a factory where flour is used which could be a consideration.

Does anyone else have 3+ day event after eating foods (other than gluten) to which they are allergic? Is there any proof that this reaction to other foods is due to leaky gut and, therefore, may disappear as the gut repairs over time?

So far, the best I've felt is on a Paleo diet (no grains or legumes). It's a restrictive diet but worth it to feel that good. However, I really am curious if any of you have experienced a reduction in food allergies after being gluten-free for some time.

Thanks,

Cali

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It has been so long since I've been glutened that I hardly remember what it was like. Thank goodness for that! Unfortunately, I ate a handful of nuts (the first food I gave up back in the 90s). It has been a three-day drag so far. Many symptoms are similar to gluten but not as pronounced. Also, there is not much emotional disregulation as there typically is with a glutening. What IS there is the fatigue, heavy arms, muscle burning, numb knees and arthritis that typically accompanies the gluten reaction.

The nuts were made in a factory where flour is used which could be a consideration.

Does anyone else have 3+ day event after eating foods (other than gluten) to which they are allergic? Is there any proof that this reaction to other foods is due to leaky gut and, therefore, may disappear as the gut repairs over time?

So far, the best I've felt is on a Paleo diet (no grains or legumes). It's a restrictive diet but worth it to feel that good. However, I really am curious if any of you have experienced a reduction in food allergies after being gluten-free for some time.

Thanks,

Cali

Yes, I have 6 other diagnosed food allergies besides gluten.  I also have 3+ day (actually 1-2 week) reactions after consuming any of those foods.  I've been gluten free for 9 years, but i still react just as severely to my other diagnosed allergens. Actually, like gluten, the longer I abstain from those allergens, the more severely and longer I react. 

 

I suspect leaky gut, caused by gluten antibody damage, originally caused those other allergies. However, even after my gut heals (or healed?), the antibodies to those foods will still be in my blood. My body's immune system won't forget how to react to those foods. So the bad new is I will probably always react to my diagnosed allergens.

 

The good news is that I found tasty substitutes for all my allergens (which are usually ingredients in most processed foods and baked goods).  I don't miss any of my allergens, because I can make the foods which contained my allergens, without my allergens, but with safe substitutes. (That will make more sense if you look at my list of allergens.) Of course, I only eliminated my diagnosed allergens. So I can eat anything to which i don't react.  Getting an accurate allergy test was so much easier than trying to figure out my allergens with an elimination diet.

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My Functional Medicine Nurse told me that it takes about 4 days for antibody levels to go down.  I had mentioned that my reaction to eating mango peels (don't try it) peeked at about 4 days and took a week to go away.  Mango peels have the same substance as poison ivy, so this experience isn't recommended.  I went through a cycle just like I go through when I have some major food intolerance.

 

D

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If only positive thinking was the cure! I have an appointment with a Functional Medicine doctor in a few weeks (first visit). I can imagine she will want to test me for allergies. If you have any suggestions or questions I should ask during my appointment, I'd appreciate your input.

It would definitely be better to have a test and stop with the trial and error. Don't worry, no mango peels for me!

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    • Hi Beachgrl, It won't hurt anything to go gluten-free now, except the possibility of getting a diagnosis of celiac disease.  When i went gluten-free, it seemed like the initial changes were spread over about 6 weeks.  I had gut spasms for that time.  And other changes, all for the better.  Initial recovery from celiac damage can take up to 18 months, so it can be a slow thing.  Some people get better much faster of course, because we are all individuals and not identical. Going gluten-free for celiac disease is a lifetime commitment though, and some people have a hard time doing that without a diagnosis.  Even minor amounts of gluten can cause us to react, so it is best to eat a very simple diet of whole foods at first.  Avoid dairy and processed foods.  I hope it works out for you.  I know some people with Crohns disease eat gluten-free and find it helps them.  Gluten is a tough thing to digest for all people, but most don't have an immune reaction to it like celiacs do.  
    • Honestly, I would not trust the school to provide a gluten-free meal except for fruit, salads, veggies, etc. I sub in a school cafeteria and I swear everything is breaded or on bread. Utensils are shared. They're very clean but unless you have a very knowledgeable person in there, I just wouldn't chance it. I found a slim Jim type snack that says gluten-free on it. If you want to give me your email or FB account, I can send you some very valuable info on 504's though. They carry the student right through college. I kept a copy of what a friend wrote about her daughter being in a sorority and just how the 504 helped immensely. But, I would definitely get one and still be prepared to pack a lunch. All our meals are delivered frozen and we just hear them up. If your school actually fixes food, that's different. 
    • Oh, I would suggest providing gluten-free goodies (e.g. Candy) or even a frozen cupcake (kept in the teacher's freezer) in the event of a party.  My daughter's classmate is severely allergic to peanuts.  Her mom did that and Abby was never left out!  😊
    • Hi Nobody, Welcome to the forum!  I noticed you said you have been avoiding wheat products.  That's good, but are you avoiding rye and barley also?  Wheat, rye, and barley are the 3 grains that cause reactions in celiac patients.  About 10% also react to oats. If you haven't had the full celiac antibodies test panel, it might be worthwhile getting that done now.  The ttg is just a basic test and is generally followed up by an endoscopy or the full celiac panel. I wouldn't worry a lot about getting cancer.  That doesn't happen often. It is possible some of the other grains you might be eating are contaminated.  A group did a test on several off the shelf products a few years ago that would not normally be thought of as having gluten and found some actually did have low levels of gluten.  Things like corn meal for example.    
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