Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Common For Ncgi People To Be Nutrient Defficient?
0

4 posts in this topic

I am iron, B12 and D3 deficient and living with a multitude of gluten related symptoms.  I've been told that I'm 1 point away from being considered Celiac, but I haven't had biopsies or genetic testing.  I've seen 2 different opinions - can you have Celiac and not have one of the 2 genes associated with the disease?   Also, do you see the nutrient deficiencies in NCGI? Putting the puzzle pieces together is so complicated!   Thanks for any insight.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Yes and yes. There are board members here who don't have either of the 2 most common genes... can't remember who though.   NCGI appears to affect nutrients levels - I'm guessing it has something to do with the inflammation it causes.

0

Share this post


Link to post
Share on other sites

Yes and yes. There are board members here who don't have either of the 2 most common genes... can't remember who though.   NCGI appears to affect nutrients levels - I'm guessing it has something to do with the inflammation it causes.

 

Thank you!  I'm very new to this forum.  Is there a way to have email notification on responses or an easy way to return to the forum and find your own post/topics?  I had to wait for my posts to be approved by a moderator and then find them again.  I'm guessing there is an easier way.  Thanks again

0

Share this post


Link to post
Share on other sites

Thank you!  I'm very new to this forum.  Is there a way to have email notification on responses or an easy way to return to the forum and find your own post/topics?  I had to wait for my posts to be approved by a moderator and then find them again.  I'm guessing there is an easier way.  Thanks again

 

 

At the top of the topics is a Follow button.  You get notifications of any posts on this topic.  Also, in your profile is a notification section.  You can choose different options in there.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,354
    • Total Posts
      920,517
  • Topics

  • Posts

    • Hi Aly and welcome You may want to repost this in a new thread, that way more people will see it and can advise you.  I think you would be much better off getting the celiac test now, if you stay off gluten you will need to go back on it and that can be much harder. That said, loads of your symptoms look like they could be gluten related.  I had a persistent 'trapped nerve' for instance under my eye which would twitch like crazy. Since I went gluten-free doesn't happen any more.  Best of luck! Matt
    • Your scalp sounds like seborrheic dermatitis. I have that and although its better after going gluten-free its very persistent. The dermatologist recommended Nizoral shampoo for it and it does help. I think dairy has a big part to play with skin problems, for me at least. 
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
    • Just found this site today. Did you ever find one? I was diagnosed this year and I live on Oahu.
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,424
    • Most Online
      1,763

    Newest Member
    drennanw
    Joined