Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Common For Ncgi People To Be Nutrient Defficient?
0

4 posts in this topic

I am iron, B12 and D3 deficient and living with a multitude of gluten related symptoms.  I've been told that I'm 1 point away from being considered Celiac, but I haven't had biopsies or genetic testing.  I've seen 2 different opinions - can you have Celiac and not have one of the 2 genes associated with the disease?   Also, do you see the nutrient deficiencies in NCGI? Putting the puzzle pieces together is so complicated!   Thanks for any insight.

0

Share this post


Link to post
Share on other sites


Yes and yes. There are board members here who don't have either of the 2 most common genes... can't remember who though.   NCGI appears to affect nutrients levels - I'm guessing it has something to do with the inflammation it causes.

0

Share this post


Link to post
Share on other sites

Yes and yes. There are board members here who don't have either of the 2 most common genes... can't remember who though.   NCGI appears to affect nutrients levels - I'm guessing it has something to do with the inflammation it causes.

 

Thank you!  I'm very new to this forum.  Is there a way to have email notification on responses or an easy way to return to the forum and find your own post/topics?  I had to wait for my posts to be approved by a moderator and then find them again.  I'm guessing there is an easier way.  Thanks again

0

Share this post


Link to post
Share on other sites

Thank you!  I'm very new to this forum.  Is there a way to have email notification on responses or an easy way to return to the forum and find your own post/topics?  I had to wait for my posts to be approved by a moderator and then find them again.  I'm guessing there is an easier way.  Thanks again

 

 

At the top of the topics is a Follow button.  You get notifications of any posts on this topic.  Also, in your profile is a notification section.  You can choose different options in there.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,697
    • Total Posts
      914,474
  • Topics

  • Posts

    • Keurig K-Cups
      I haven't really disclosed much at this point as i just joined. Yes...I have Endoscopies done on a regular basis. yes...my dr here in NS is one of the main GI specialists who does specialize in Celiac Disease. I am actually having all the procedures done again next week. Just diagnosed with Limited Scleroderma. Also suffer from IBS and diabetes. We hardly ever eat out. My kitchen is completely gluten-free. I do have a separate toaster and a few untensils in case my hubby wants regular toast! Specialist has said that of all the Celiac patients has has I am probably one of a few who are extremely careful when following a gluten-free diet...however...I am seeing a dietician at the Hospital clinic to review my diet! I think I have addressed all of your questions and I commend you all for asking! I was diagnosed in 2010 but from the biopsies had the disease for 23yrs from then but wasn't experiencing major symptoms. Dr and I have talked about Prednisone however due to all my other issues we feel it's best for now just to do the procedures on a regular basis. I know refractory is rare however with my autoimmune issues..this probability is high. The only real consistent factor that I was questioning is the K-cups. I will probably be following a FODMAP for a bit under the consultation of the dietician. We'll see what happens!
    • Keurig K-Cups
      Sorry,  I know you didn't ask for info on refractory but I am worried that your GI does not  know much about Celiac.  I would hate for you to have to have the massive amounts of steroids, even Chemo, that will be prescribed for refractory Celiac.  If you haven't even had a repeat endoscopy, and he is just diagnosing based on a slightly elevated ttg (which could be from your other AI disease)... well that is a bit like getting a mammogram and finding a small lump and jumping right to invasive cancer with a complete breast and lymph node removal and chemotherapy!  Without even a biopsy of the lump!
    • Second Panel has come back...advice?
      Absolutely! Our Motto: READ EVERY LABEL EVERY TIME
    • Keurig K-Cups
      Many celiacs are not healing because they are not diet compliant due to hidden sources of gluten.    Read this research paper about this subject.  As Karen said, refractory celiac disease is rare but some doctors are quick to jump to that diagnosis  because they are not celiac savvy.   http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3598839/pdf/1471-230X-13-40.pdf welcome to the forum!
    • Keurig K-Cups
      Envelope glue is another internet myth. You didn't mention that you had had repeat endoscopies showing continued villa  damage. (That is how refractory is diagnosed)That is completely different than a bit elevated tTg .  True refractory is pretty rare.  As you can see from my links, a slightly elevated tTg may have nothing to do with gluten ingestion and does not mean you are " refractory".    Before resorting to drastic treatments, you might want to look into the " Fasano diet".  It is a super strict diet - mostly whole foods, no eating out, etc -that cleared up people being labelled " refractory".  If that doesn't do it, look at the University of Chicago Celiac Center site,  they have some studies going for people with refractory.   And really, if you have other autoimmune diseases and have not had a repeat positive endoscopy, the other AI s are probably causing the elevated tTg and has nothing to do with Celiac and no villi damage.   That wouldn't be refractory.   http://www.cureceliacdisease.org/archives/faq/what-else-can-cause-damage-to-the-small-intestine-other-than-celiac-disease
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      59,733
    • Most Online
      1,763

    Newest Member
    Shirley Furrer
    Joined