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Left Side Limb Pain, Numbness
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Hi,

 

Does anyone know if there is a connection between Celiac and osteo/nerve issues?  Are Celiacs prone to osteopathic or nervous tissue degenerative diseases?

 

My history - diagnosed with Celiac about 3 yrs. ago - gluten free ever since.  Since then, internal carotid dissections and aneurysms thought to be caused by Fibromuscular Displaysia, Tension Migraines.

 

Recently - waking up from sound sleep with burning pain - left side only - from neck/chest/shoulder down to fingers.  Pain feels like it's deep in the bone.  Occurs a couple times per week with varying severity.  It does not seem to matter what I'm doing - sleeping, driving, just sitting there...  After the pain (and sometimes along with it) comes numbness, sometimes tingling.

 

I ask because I just came from the hospital for such pain.  I thought I had suffered a heart attack.  I didn't.  My doctors are bewildered and so am I.  I have a follow up with my primary next week and I'd like to offer some ideas as to what they might want to check for.

           

Thanks for your input!

 

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I would be thinking more along the line of a TIA, than a HA.    keep a detailed diary, see if you can correlate symptoms with some sort of activity.  ?cervical issues?  spine doc/chiro ?

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About two years ago I started experiencing tingling on the tops of my feet when I applied lotion.  A year ago I had a bad kink in my neck and couldn't move for two days. It felt like a pinched nerve and it wasn't muscle related.  I had to be very careful not to turn my neck as well as the rest of my body the pain was so bad.  A year later I had the same problem in my lower back.  About 2 months ago I started experiencing a burning sensation on my outter left hip area.  I think this is all related to neuropathy problems but I haven't been tested because I told my doctor the hip pain isn't bad enough to justify taking medication that would probably only cause other problems.  If I had the neck and back problem more often then I would look at testing because that felt like I was being tortured.  Good luck!

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Thanks for your input!

 

I spoke with a family member who is a chiropractor & he said to ask my doctor to check me out for 'thorasic output syndrome', so that's on my to-do list. 

 

I worried about a TIA also, especially considering my history.  Obviously I need more testing - symptoms are still present. 

 

To twe0708 - 'neuropathy problems'?  Could you elaborate?  Do you know what the testing is for that?  Everything you mentioned, I have had also at different times recently.

 

Thanks & Take Care!

Pondy

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Hi,

 

Does anyone know if there is a connection between Celiac and osteo/nerve issues?  Are Celiacs prone to osteopathic or nervous tissue degenerative diseases?

 

My history - diagnosed with Celiac about 3 yrs. ago - gluten free ever since.  Since then, internal carotid dissections and aneurysms thought to be caused by Fibromuscular Displaysia, Tension Migraines.

Recently - waking up from sound sleep with burning pain - left side only - from neck/chest/shoulder down to fingers.  Pain feels like it's deep in the bone.  Occurs a couple times per week with varying severity.  It does not seem to matter what I'm doing - sleeping, driving, just sitting there...  After the pain (and sometimes along with it) comes numbness, sometimes tingling.

 

I ask because I just came from the hospital for such pain.  I thought I had suffered a heart attack.  I didn't.  My doctors are bewildered and so am I.  I have a follow up with my primary next week and I'd like to offer some ideas as to what they might want to check for.

           

Thanks for your input!

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    • Did your doctor check for SIBO, H. pylori, ulcers, etc. when he was obtaining biopsies to check for celiac disease?  
    • Oh, and as I mentioned in my own post on pain, xanax. I swear. I tried it just to deal with the occasional panic I had at weird scary symptoms and clueless doctors. I am not a fan of long term use. But I recently found that .25 mg seems to aid with the neuropathic pain. It does not go away, but it helps. 
    • It does sound like a Glutening and you are just a few months into the diet.  It might help if you read our Newbie 101 thread under the "Coping" section.   Here is some information about rice milk: https://www.verywell.com/is-rice-dream-gluten-free-562354 Many, many celiacs are often lactose intolerant temorarily or permanently if you are naturally genetically inclined.  When I am glutened, I lose the ability to digest lactose for a while.   Salad?  Great but it can be rough on a sore gut!  Think soups, stews, easy-to-digest foods that you prepare yourself until you feel better.  Did your folks give you salad after a bout of flu?  Or did you stick with jello and broth?  I am intolerant still after three years to garlic and onions (the lactose resolved, thankfully).  You have a leaky gut (Google zonulin and Dr. Fasano who is a leading celiac researcher to verify that this is true) and that means you can become intolerant to anything (hopefully, just temporarily).   If you are 100% sure that you have had no access to gluten....did you eat out lately?.....then see your doctor.  Remember, celiac disease symptoms can change.  And here is the biggie.....it can take weeks, months or years to heal from celiac disease.  Two months in is nothing, really.  Why?  It takes time to figure out the diet and time for antibodies to come down.  celiac disease is an autoimmune disorder triggerEd by gluten.  once triggered it can go on and on damaging your gut especially with repeated glutenings (accidental or through cross contamination). I hope you feel better soon!  
    • I concur! I literally feel your pain as well. Like, at the moment, lol. Did you have an endo to see inflammation or damage? I am close to begging my GI for carafate or something to coat and protect. How about testing your antibodies to see if they are still rising? I read somewhere here rice milk may not be a good option.  Folks here have also suggested to me to stick with whole foods. Limit processed. Especially stuff that is not certified gluten-free, like chex. I think small amounts of gluten are in processed foids and can add up. I too reacted to lettuce the other day like I was ingesting glass. My sibling  had a food sensitivity panel done and it came back positive for a few things he had been eating a lot of. He can now eat them, but had to cut them out of his diet. Lettuce is probably on mine.  I have been drinking carrot and pomegranate juice,  dandelion root tea with hiney, aloe water, lots of squash, fish. Mild, no garlic, no onions or hot sauce. No coffee. It sucks.  Inflammation can tick off other organs, you mention a "Pain below". Not exactly sure which side, but certainly call your doc Monday. Sooner if the pain increases.
    • You should see a GI specialist before you go gluten free.  They should do a upper endoscopy to check for celiac damage.  Colonoscopy won't show anything related to celiac.  Also no you should not feel worse on gluten free, you should feel better.
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