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Anyone With Confirmed Diagnosis But Constipation Not D?


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#1 Khickson1980

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Posted 13 June 2013 - 11:18 AM

So a year and a half ago I saw gastro specialist for bad bloating, pains, no appetite and constipation. Barium and ultrasound confirmed there is nothing wrong with my 'mechanics' and I was sent away with movicol.

Six months layer I went back with the bloating and feeling sick. I asked to be tested for Intolerances and he said a gastroenterologist doesn't do that and sent me away with domperidone!?

After researching further I started having colonics and on advise of therapist cut out bread, pasta, noodles etc. tummy got almost better for 4-5months but has slowly gotten worse again.

I do eat gluten, the odd biscuit, slice of pizza at a party etc but not masses.

Due to movicol I now have a good bm nearly every day but have had some pretty bad episodes of bloating, pains and a total loss of appetite in last few weeks. And I love my grub!! :-(

Do you think I should insist on a coeliac test? Or is it really unlikely with my symptoms? Most people have the opposite troubles.....

Any help appreciated!!
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#2 powerofpositivethinking

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Posted 13 June 2013 - 12:26 PM

take a look at the top of pg. 7 of this report 

 

http://www.worldgast..._long_FINAL.pdf

 

constipation and bloating are both non-classic symptoms.

 

the big C and bloating were both issues for me that were not resolving with diet changes, and that's what prompted me to finally get tested  :)


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Diagnosed with celiac disease, fat malabsorption, severe pancreatic insufficiency (taking Creon) and vitamin K and D deficiency

Thankful for all the help I've received from members on this board!

Happy to have answers  :) 


#3 GottaSki

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Posted 13 June 2013 - 12:33 PM

I was a BigC'r all my life (only very rarely had BigD and had no idea what a normal BM really was until I was 43 -- sad but true) -- still struggle with it post diagnosis -- but has improved A LOT - thankfully ;)


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

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#4 Hala

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Posted 13 June 2013 - 01:00 PM

It's the first in the list of symptoms listed by Coeliac UK:
http://www.coeliac.o...coeliac-disease

I think you should definitely push for blood test and biopsy. But remember, you have to be eating gluten for the tests to be accurate!


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#5 Khickson1980

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Posted 13 June 2013 - 01:13 PM

Thanks peeps. I do eat gluten at the moment, just not masses. Thought if been gluten free totally for last two days but have just found it in my stir fry sauce!

I'm gonna book an appointment tomorrow. I just want a diagnosis of SOMETHING.....then I might be able to start treating myself!
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#6 powerofpositivethinking

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Posted 13 June 2013 - 03:35 PM

keep eating gluten until ALL testing is complete  :)

 

Thanks peeps. I do eat gluten at the moment, just not masses. Thought if been gluten free totally for last two days but have just found it in my stir fry sauce!

I'm gonna book an appointment tomorrow. I just want a diagnosis of SOMETHING.....then I might be able to start treating myself!


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Diagnosed with celiac disease, fat malabsorption, severe pancreatic insufficiency (taking Creon) and vitamin K and D deficiency

Thankful for all the help I've received from members on this board!

Happy to have answers  :) 


#7 nvsmom

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Posted 13 June 2013 - 07:00 PM

I'm a "C" er too - my whole life but it took getting treatment for my hypothyroidism to actually get things moving. C is a big hypo symptom.

 

I was the same as Lisa (Gottaski), I had no idea that I was abnormal and was actually a bit annoyed when things normalized for me because I had to "go" everyday... how inconvenient!  ;)  LOL


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#8 pricklypear1971

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Posted 13 June 2013 - 08:01 PM

I'm a "C" er too - my whole life but it took getting treatment for my hypothyroidism to actually get things moving. C is a big hypo symptom.

I was the same as Lisa (Gottaski), I had no idea that I was abnormal and was actually a bit annoyed when things normalized for me because I had to "go" everyday... how inconvenient! ;) LOL


Ditto. Freaked me out, thought I was getting D.
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#9 Khickson1980

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Posted 13 June 2013 - 11:21 PM

So which did you guys get diagnosed with first? The hypo or coeliac? What are nightmare having to find answers for two things!

I'm having trouble enough with one, waiting for a phone call today for a different gastro guy. Can't believe when you are going private they wouldn't test for intolerances!?
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#10 kareng

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Posted 14 June 2013 - 05:00 AM

So which did you guys get diagnosed with first? The hypo or coeliac? What are nightmare having to find answers for two things!

I'm having trouble enough with one, waiting for a phone call today for a different gastro guy. Can't believe when you are going private they wouldn't test for intolerances!?

 

 

There are tests for Celiac disease.  A gastro or a regular physician can do the blood test.  Is that what you mean?

 

There are allergy tests but those would be done by an allergist.  I understand that the food allergy tests aren't always accurate..

 

The only tests for food intolerances is to eliminate them and see how you feel.


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#11 nvsmom

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Posted 14 June 2013 - 07:01 AM

So which did you guys get diagnosed with first? The hypo or coeliac? What are nightmare having to find answers for two things!

I'm having trouble enough with one, waiting for a phone call today for a different gastro guy. Can't believe when you are going private they wouldn't test for intolerances!?

 

I figured out the celiac for myself, and then did a home Biocard tTG IgA test that confirmed it... Then I went to the doctor and told him I had celiac disease. He retested me for his own proof, and I requested thyroid testing because I knew it was linked. My TSH was high. So, I had my celiac disease and hypothyroidism diagnosed at about the same time.

 

I'm in Canada and our health care covered it all. I've never seen a gastro or an endocrinologist - they only allow access to those guys if you have a problem you can't figure out or if you have diabetes.  :rolleyes:


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#12 ruthie_ray

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Posted 18 June 2013 - 12:08 PM

So a year and a half ago I saw gastro specialist for bad bloating, pains, no appetite and constipation. Barium and ultrasound confirmed there is nothing wrong with my 'mechanics' and I was sent away with movicol.

Six months layer I went back with the bloating and feeling sick. I asked to be tested for Intolerances and he said a gastroenterologist doesn't do that and sent me away with domperidone!?

After researching further I started having colonics and on advise of therapist cut out bread, pasta, noodles etc. tummy got almost better for 4-5months but has slowly gotten worse again.

I do eat gluten, the odd biscuit, slice of pizza at a party etc but not masses.

Due to movicol I now have a good bm nearly every day but have had some pretty bad episodes of bloating, pains and a total loss of appetite in last few weeks. And I love my grub!! :-(

Do you think I should insist on a coeliac test? Or is it really unlikely with my symptoms? Most people have the opposite troubles.....

Any help appreciated!!

Dear KHickson,

I was diagnosed celiac in March 2013.  I have suffered with constipation for 1/2 my life and usually am more backed up than "lose".  Sorry for the details, but the question required this sort of answer.  My answer is yes.  I am slightly less constipated now that I am on a gluten-free diet.  Constipation can be a symptom of celiac, but most celiacs have the opposite problem.  They thought I had other tummy troubles, but never could pinpoint them.  I sought my celiac diagnosis after unexplained excema, arthritis and headaches.  All 3 other issues went away since gluten-free after my March 2013 Celiac diagnosis.  Constipation is better, but not 100% cured.  Water seems to help with that.  Water...Water....Water.  Good like in finding out what is going on.


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