My 9 year old was diagnosed with celiac in March of 2012 by blood tests and a positive biopsy. We put him on a gluten-free diet the day he had his biopsy done. His original ttg was 168. After 6 months gluten-free it went down to 31. We got his blood results back today (15 months after original diagnosis, 8 months after the last blood test) and his ttg was 23. (0-19 is considered normal)
The dr. was pleased with this and said we can basically consider him to be in the normal range since he is so close and is pretty much symptom free at this point. He is growing great - is in the 75% for height for his age and I'm pretty pleased with his overall health but I thought his numbers would be better by this point. I've read through the forums a little and I'm seeing posts that ttg isn't the right test for dietary compliance? That is the only follow up the dr. ordered this time - he did not order the full panel. Should he have done something different? Should I be satisfied with the 23 since that is only slightly over normal? Can I ever expect him to be in the normal range? The dr. said he doesn't need to be retested for a year.
Thanks for reading and for any insight you can give. His numbers went down so dramatically in the first 6 months that I guess I was just expecting another 8 months to give him a normal reading.