Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Why Did I Eat The Bread?
0

6 posts in this topic

First off, I want to say that I am new here to this forum. I also want to say I have not been officially diagnosed with celiac. I think it is important to point that fact out because it bothers me when people think it's "cool" to have the latest and greatest disease process because it undermines those who really do have it. So, no, I have not been officially diagnosed. 

 

I "fell" into eating gluten-free. Back at the beginning of April my husband wanted to try doing Paleo. I VERY reluctantly agreed. I LOVE bread and things. I see meat as simply the inside of something that is sandwiched between the good stuff - the bread. Anyway, I went along with it.

 

The first week was HELL. I had the worst "carb flu" ever. I was achy and had a constant headache and felt like death. But.........after that first week I felt GREAT!  I had always had extreme gas, bloating, very loose stools (sorry, TMI), achy hands, insomnia, and a constant situation of  throat-clearing, post-nasal drip and blowing my nose as a result. It was ALL GONE when I stopped eating ANY wheat.

 

I haven't had wheat since March 31st. It is now June 17th. Two days ago we went to Canada's Wonderland. We packed a lunch. I thought, hey, we can make sandwiches out of some sourdough, that won't be so bad. WRONG! Last night I had the WORST heartburn and gut ache. This morning is a run to the bathroom multiple times day. Ugh. 

 

I have never been properly diagnosed but I am convinced, now, after lurking on this forum, and reading all your posts, that I do, in fact, have some degree of gluten-intolerance at the very least. Over the years I have suffered:

 

Achiness

Bloating

Severe Menstrual cramping

Severe anemia

Three miscarriages - one of them second trimester

Gas

Loose stools

Post-nasal drip

Throat clearing (feeling like mucous is constantly in my throat)

Sinusitis -  EVERY time I get a cold I get a sinus infection

Heartburn

Insomnia

 

I went off the gluten and all of those things disappeared. I just wish there was a test that didn't involve going back ON gluten. I wonder how many people are unknowingly and silently suffering from this. 

0

Share this post


Link to post
Share on other sites


Ads by Google:

Sounds like your experiment worked, even if that wasn't what you intended.....

It might be worth talking to your doctor about getting tested asap for blood and biopsy. Sometimes it could still pick it up. I didn't last long when I tried to reintroduced gluten for testing. It did convince me I had a gluten problem. I have been diagnosed non celiac gluten intolerant NCGI. Others here are self diagnosed.

Come on in, chat, rant. There is plenty of help to be had here :)

0

Share this post


Link to post
Share on other sites

Welcome.  :)

 

Good for you for figuring out your gluten intolerance!  Not many do. I agree that you might as well get tested ASAP. Your antibody levels still might be high enough to register. Plus, when people go paleo without focusing on going gluten-free, gluten sometimes sneaks in in small places like soy sauce, spices, worchestershire sauce, or other processed foods like a protein bar - that might keep your antibody levels up.

 

The tests are:

  • tTG IgA and tTG IgG
  • DGP IgA and DGP IgG
  • EMA IgA
  • total serum IgA (a control test)
  • AGA IgA and AGA IgG (older tests that find gliadin sensitivity rather than intestinal damage like the above tests)

Best wishes in whatever you decide to do.

0

Share this post


Link to post
Share on other sites

Good luck.  

0

Share this post


Link to post
Share on other sites

Probably millions of people have a problem and are not willing to give up the bread they eat to find out.  They would rather stay sick. 

 

FYI...there are many excellent gluten-free breads out there, in case you Jones for a sammy now and again!  ;)

0

Share this post


Link to post
Share on other sites




Sounds like you're on to something. Great to hear that you're feeling better without wheat, which i'm sure is now without Gluten.

 

Yes, go get tested for the sake of it. Also get your vitamin levels, etc etc checked out. Talk to your doctor about your symptoms and that you've been feeling better wheat/gluten free. Even if the tests come back negative, you can hopefully get the support you need to go gluten free anyway. Even without an official diagnosis (I was never officially diagnosed either, but considering Celiac is on both sides of my family, I was doomed), as long as you treat yourself as Celiac/Gluten Intolerant, and stick to a strict gluten-free diet, and feel better, then that's as legitimate as anything.

 

Welcome, and good luck!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,393
    • Total Posts
      917,601
  • Topics

  • Posts

    • Week late aftershock!?
      I had a similar problem, I was glutened after a meal out at the beginning of April and am still experiencing problems, obviously not as bad now, but bad enough.  I have also become intolerant to  xanthan gum since, which cuts down the foods I can eat even more. I'm already intolerant to dairy, soya, and a whole lot of other stuff.  Cyclinglady is right about the auto-immune disorders, and I've noticed I have similar problems to her.  I too, eat easy to digest foods until the glutening symptoms pass. The sinus infection might also be a reaction to the glutening, it effects people in different ways.
    • celiac disease is psychosomatic
      Thanks, I'll check out the information in the link. Do you remember how long you were on a gluten-free diet before your vertigo disappeared? I have been on the diet for 2 years, but I might be glutened from time to time since I am not an expert food label reader. My dizziness still persists.
    • celiac disease is psychosomatic
      Thank you, Arlene, for making tea come out my nose!  I should have known not to read your post while drinking......
    • celiac disease is psychosomatic
      sella.........in 11 years gluten free, I have never been glutened by natural flavorings. I know some of the older literature on Celiac says it may contain gluten but they rarely do.  For more info, I have put in a link that briefly explains how it works with labeling for those.  The link is dated 2013 but I have yet to read any updates that list any pertinent changes to this.  It will take a few years or longer for a person with Celiac to really learn how to read a label to the point where they feel comfortable with eating that food but I guarantee you'll be a food expert! http://www.glutenfreeliving.com/gluten-free-foods/gluten-free-nutrition/gluten-questions-and-answers/natural-flavorings/ As to your other question, yes, Celiac most certainly causes balance and neuro issues.  I suffered from extreme vertigo for years, which disappeared after being on the gluten-free diet for a while.  I had no idea it was connected to celiac disease but it completely disappeared on the diet.  I also never had anxiety issues but now, on the rare occasion I sustain a hit, the anxiety is bad.  It disappears after about a week.  This is well know to Celiac's but many doctors still don't get all the symptoms we suffer from, that are related to gluten ingestion.  Frustrating!
    • Can treatment for Giardia reverse active Celiac
      SugarCube, I saw your other posting today.  I can not believe that I missed your original posting!  Maybe I was doing something super fun that week (oh, my parents were visiting!).   Your celiac blood panel was positive and you had intestinal damage that was caused by both celiac disease and Giardia?  After treating the Giardia, your CD resolved or went into remission?  Are you consuming a diet containing gluten still?  Have you had a follow-up biopsy?   I read your link to the study, but that feature just one patient (a child).  Have you found any other larger studies?  Inquiring minds want to know!       
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,527
    • Most Online
      1,763

    Newest Member
    MBrooks985
    Joined