Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Questions About Blood Test
0

6 posts in this topic

Hello everyone. I'm new here, and I probably don't even have celiac disease but I have a few questions and I'm hoping someone can help.

I recently requested a blood test for celiac disease. I have a few relevant symptoms, and I have a close family member who has several symptoms as well. The test came back "normal" (I don't know the details, the receptionist told me this over the phone) but I am unable to let the whole idea go. I had removed most of the gluten from my diet two or three months before I had the test done, and I started eating it again five days beforehand. I know now from reading articles online that it wasn't long enough to make the result accurate. Also, when people say that steroid use skews the test, what exactly does that mean? I take a corticosteroid inhaler for my asthma, two puffs once a day. I have taken this medication daily for many years. Is that enough for the steroid to be in my bloodstream? If so, should my doctor have advised me to stop taking the inhaler before the test?

I'm not sure what to do now. I could continue to eat wheat, stop taking my inhaler and then have the test redone (assuming my doctor will give me another requisition) or I could continue to experiment with a gluten-free diet on my own and assume I am "gluten sensitive" in a way that can't be measured by the test.

Has anyone here had the blood test redone after preparing for it properly and had different results?

0

Share this post


Link to post
Share on other sites


Ads by Google:

It is possible that your period of being gluten-free could have caused a false negative in your results. Some people's blood work goes back to normal fairly quickly whereas in others in can take years. Also, many doctors will just run a tTG IgA and the total serum IgA control test, that tTG test has a sensitivity of 75-95% which means it can miss 5-25% of all celiacs. See page 12 of this report (a good read): http://www.worldgastroenterology.org/assets/export/userfiles/2012_Celiac%20Disease_long_FINAL.pdf  You might want to make sure you had more than just one test run.

 

You would have to resume eating a couple of helpings of gluten per day for about 2 months to get an accurate test; requirements for a gluten challenge range from 1-4 slices of bread per day for 1-3 months.

 

I don't know how steroids will affect the test. Perhaps the lab could tell you?

 

I can't answer you question. Hopefully someone else has had your experience.  Best wishes.

0

Share this post


Link to post
Share on other sites

Thanks for your help! I hadn't thought of asking the lab, it's a good idea.

0

Share this post


Link to post
Share on other sites

Thank you! I have been taking the medication for years, for my asthma. They say that inhaled steroids only go to your lungs but that can't be true because long term use causes side effects in other parts of your body (eyes, bones etc.)  So it must be in the bloodstream. I'll ask the lab about it. Thanks!

0

Share this post


Link to post
Share on other sites




I am also planning to undergo blood test for Celiac. But i have this fear that the test might not be reliable. But still i will do it and i won't change my diet yet. Maybe you should go back also on eating bread and then try the test again to be sure. 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,123
    • Total Posts
      919,495
  • Topics

  • Posts

    • I had a negative biopsy and was still diagnosed with Celiac. My GI ran a bunch of tests looking for the cause of my 15+ years of diarrhea and the only thing that came back positive was the entire Celiac panel. All very high. So he performed an endoscopy with biopsy. The biopsy was negative. So he ordered a genetic test. When that came back as "high risk" he decided a trial gluten free diet was in order. After 8 weeks my symptoms resolved and my antibodies were back to normal. Since then, follow up testing had shown I have osteoporosis. I am a 40 year old male.  So yes, you can definitely still have it and have significant damage with a negative biopsy. 
    • Annual celiac antibody testing is, in my opinion (and based on what celiac researchers have published), is critical, especially for a 12 year old.  Life is going to get harder for her.  Peer pressure is huge (I have a 15 year old daughter), and remaining diet compliant can be tough.   In Dr. Fasano's, Gluten Freedom, he discusses a young patient who became ill in high school after being gluten free for years.  His parents were perplexed.  Dr. Fasano took the young man aside and he confessed that while on a date, he didn't want to bring up his celiac disease.  So, he ate pizza.  He was too embarrassed to tell his parents.   My daughter does not have celiac disease.  She was first tested two years ago.  Since she is symptom free, is not anemic and her other lab work is fine, we'll wait to test her in another year.  It all depends on the patient, but every few years, testing is recommended for all undiagnosed first-degree relatives.   It certainly sounds like your younger children should be screened.   I wish you both well!      
    • Perhaps you should consider asking for a GI referral.  You might just skip the blood tests and go directly to an endoscopy/biopsies while you are still consuming gluten.  It is the "gold" standard for a celiac diagnosis anyway!   Here's the deal with going gluten free.  You can do it.  It costs nothing, but you must give it six months or longer.  You'd need to think like a celiac, but it can be done!  I'll tell you my tale.  My hubby went gluten-free 15 years ago per the very poor advice of his GP/PCP and my allergist.  After a year of mistakes and learning, he got well.  It worked!  Thirteen years later, I was formally diagnosed.  (It was a shock as I was only anemic at the time.)  Hubby would be the first to say that I have had way more support from family, friends and medical.  I must say, it's nice to see those lab results.  It really helped me adhere to the diet in the beginning too.   So, you know your medical situation.  You must do what's best for you!   I hope you feel better soon!  
    • I'm sure going to have a long talk with my doctor.  Then I'll find a new one that will support me and make sure that my daughter and I both have the proper testing done yearly.  
    • also:  glutendude - i don't get it.  shouldn't it be glutenfreedude?  lolz i eat out few and far between.  most of the times i've been glutened it's been eating out.  this weekend i'm getting my bacon cheeseburger on at red robin  i always get my 'good' waitress - lucky, i guess, paula takes good care of me   and i will eat at bonefish but they have a limited 'safe' menu.  look for places that have the 'GiG'  training they know their stuff.  mellow mushroom, melting pot, california pizza kitchen, pf changs are all supposed to be trained that way.  they know to avoid cc and change their gloves, etc.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,161
    • Most Online
      1,763

    Newest Member
    Jashan8534
    Joined