Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Dh Help Please, Fever Blisters, + celiac disease X 18 Months
0

2 posts in this topic

I am desperate for any suggestions. I have been DQ2 +, Celiac Dx positive for 18 months. I have been gluten-free intentionally since then. 

I was exposed to Gluten 3 weeks ago and have been suffering terribly with what I believe to be severe DH?

 

I feel a sort of numbess on one side of my face- but its more like a sensitivity- when touched my hair, head is tender to touch-

(I know this sounds really nuts)  The clear fluid filled blisters cluster on my lips and sometimes my eyebrows/hairline...

 

The derm. says it cannot be DH because it is not symmetrical (on both sides). These same symptoms happened on/off for years prior to

the DX of Celiac.... what prompted the testing for Celiac was iron def anemia for 9 plus years. 

My Hemoglbn, Ferritin, Iron studies have greatly improved over the last 18 months! 

 

I am DQ2 positive. These blisters hurt terribly and are lingering....do I go see a diff. dermatologist? Any help? I am incredibly frustrated -

Thank you for any help---

 

(I also work for a gastro doctor :(  )

0

Share this post


Link to post
Share on other sites


Ads by Google:

You can try going low iodine & see what happens. Iodine is known to make the dh worse or make it flare. For low iodine diet see:

http://www.thyca.org/rai.htm#diet

 

The only reason I could see for you seeing a derm is to get Dapsone but since you've already been gluten-free for 18 mos. then you shouldn't need Dapsone especially considering your outbreak is due to a glutening. UNLESS what you have is not dh. DH does not always present bilaterally ~~ & in your case ~~ being gluten-free 18 mos.; it's not going to always present typically. 

 

You do understand don't you that you have already been dx'd celiac & there would be nothing to gain by being dx'd with dh (except for the Dapsone). A dx of dh is a dx of celiac so either way you have celiac. Furthermore, there is no test now for the dh for you as you would have to be actively consuming gluten for a dh biopsy. So you would just be frustrated trying to get a dx of dh.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,090
    • Total Posts
      920,307
  • Topics

  • Posts

    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
    • Along those lines, many Americans are now pursuing gluten-free eating. Gluten ... Diagnosis of celiac disease typically requires a history and physical ... View the full article
    • No!  Once you fill the tub, if you sit in it for 3 minutes or you stay for 10... It doesn't change the amount or cost of the water.  That's only relevant if you have 3 kids to cycle thru that same water.  Is your hub bathing in the same water after you? Lol  And even if you add some more hot and stay longer....well...it's much cheaper than perscription meds, vodka or a substance that is legal in a few states.     Of course this only pertains to those of use with running water.... If you make your hub haul water from the creek or well and heat it over a fire....
    • Whether it is bona fide dermatitis herpetiformis, or severe eczema or hives or what have you, we all want to know how to stop the incessant itching.  Through all my research, the solution comes down to one thing: a good long soak in the tub-- with baking soda or Epsom salts or some kind of herbal tea, followed by a rub down in thick expensive lotion.  I don't know about you, but I was brought up to "get in, get done get out."  A long soak in the bath was a frivolous luxury, and a waste of time and hot water.  So now I'm having this awful breakout from forgetting to read a label and got wheated.  And every night I've been soaking in a baking soda bath to relieve the itching and aid my recovery.  And it's been hard! (But it's been very helpful too)  It has been hard to reconcile this "frivolous luxury and waste of time" as medically necessary!  Fortunately I've had no judging, and only support from my husband, who has had a similar upbringing.  Does anyone else struggle with this?
    • His son, Eli, had been misdiagnosed with celiac disease, so the family tried some gluten-free foods. After adding quinoa (KEEN-wah) to their diet, ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • HappyMom623

      I have Tangled problem! I want all the things Rapunzel Related....including Flynn Rider 😂 but seriously. I have like 8 shirts I want.
      · 0 replies
    • AprilBeth2013

      RT @MarkDever: “But the work is God’s and we do not fear the final results. ‘The heathen shall be given to His Son for His inheritance,’ .…
      · 0 replies
    • silk

      I have celiac disease and have been gluten-free for almost 10 years.  I am extremely sensitive to gluten, noting that I react within 15 minutes of contact and in fact the doctor suspects that there may also be an actual wheat allergy at play but have never bothered to be tested since I avoid it like the plague!  I am curious to know if anyone else reacts to flax or inulin?  My symptoms with those two are almost identical to gluten so I have to really watch for that in gluten-free breads and baking and recently discovered after the fact that flax was in the juice I was drinking. I know that people with gluten issues can have other problems as well and in fact I also avoid milk products.  Even after 10 years, and although it has become a way of life, it's still frustrating to have to read every ingredient on every label.😞
      · 2 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,114
    • Most Online
      1,763

    Newest Member
    3boymommy
    Joined