Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Variable Overwhelm Encouragment Wanted :)
0

7 posts in this topic

Hi I'm Christy, long time lurker, first time poster.

 

I've been gluten-free since Aug 2012, self-diagnosed NCGI, sorta doing OK, I also have Fructose Malabsorption and don't do well with dairy, likely casein moreso than lactose.  So I'm currently gluten-free DF and have to weigh the limited foods I can eat to stay under my daily 3g free fructose limit, as well as the fructans, polyols and other FODMAPs that disagree with me.  I figured out the FructMal in April 2010 so I was mostly wheat-free since then.  FructMal is cummulative rather than all or nothing, so it took a long time for me to overcome the gluten denial, thou I had good improvement just from the FructMal adjustments.  There was so much detail I had no idea of, so I'm beating myself up for not knowing what I didn't know - silliness!

 

I'm just tired, not so much physically but emotionally.  If I look back at how awful I used to feel all the time and compare that to feeling awful now maybe once every week or two, I've made huge improvement.  But it's mentally exhausting.

 

There was gluten in stuff I missed for the longest time, like the Bonnie Bell lip blam I used DAILY.  At that realization, I got focused on double checking everything again.  My frozen green beans said "may contain wheat" so out they went.  Uncertain origin of vitamin E in lotion? Bye bye

 

Almost all my kitchen stuff I've replaced, or I make a best effort to make it safer. like my marble mortar & pestle is possibly glutened, so I use the pestle only to crush things in plastic baggies.  I haven't replaced my VitaMix container purely out of cost (they're $130), I scrubbed it & soaked in vinegar and since we use it at least 2x a day, I'm hoping that the fact that it's been washed 600 times since last possible minor gluten (cc oats) is enough.

 

Luckily, I gave my husband Wheat Belly to read and he decided on his own to go gluten free also shortly after I did, so that makes it much simpler.  My darling kitteh was already gluten free :meow: [said cute kitteh pictured in avatar]

 

So there are things I still need to do, like scrub down my cabinets and replace the shelf liner, I'm getting to them a shelf at a time, I greatly dislike the cheap plastic cutting board I now use, I need a bigger sifter, etc.  Most of the stuff left to do is just a time and money situation, so I'm making progress and yet it's frustrating.  I think I have a shread of lingering doubt without a firm diagnosis that it's a huge amount of effort when I'm uncertain.  I considered EnteroLabs or Cyrex, but would rather buy a new VitaMix 7500 for the same cost as the tests.

 

Sigh.  I do want to thank the community in general for all the support and answers I've gleaned over the past couple years, I'm finally posting cuz I'm certain I will benefit from interactive support instead of just lurking.  Plus I'm here if anyone wanted to know that a gluten-free DF Caramel Corn rice cake contains 0.056 mg Fructans - I enjoy FructMal nutrient math.

 

Thanks for listening

 

 

0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome to the board.  :) I hope you keep feeling better. The menatal absorption starts to go away with time. i know that celiac disease was all I thought about at first. It gets easier.  :)

 

I have a new Vitamix too. I LOVE that thing. I can make veggie/fruit smoothies that my second son (pickiest eater in the world- I swear he only eats beige food) will eat and enjoy.  Yeah!

0

Share this post


Link to post
Share on other sites

Welcome Christy...you are in the right place.....we all have gone thru it...some very lucky souls transition quickly ... some not so quickly. Good news is it will get better..hang out...ask questions or just join in the small talk :)

I had one son that I used the smoothie trick on for years....he had no idea his yummy smoothie was loaded with veggies ... blueberries are great for making it purple ;)

0

Share this post


Link to post
Share on other sites

Nice to hear from you!

I really feel like a mental battle is overtaking me as the physical battle seems to be subsiding.

D

0

Share this post


Link to post
Share on other sites

Hi Christy!

It can be very overwhelming at first, but you sound as if you are figuring it all out very quickly.

We can be your cheerleaders!

 

As for the tests vs.kitchen appliance dilemma,  I would most definitely spend the money on the VitaMix (although I suspect 600 washings in vinegar did the trick :) )

New kitchen appliances are probably more useful to you than any of those online tests, IMHO

Plus, who doesn't like a new kitchen toy?

 

Veggie Smoothies rock.

 

Hang in there!

0

Share this post


Link to post
Share on other sites




Thanks for the warm welcomes and empathy lovely ladies.  My disjointed rambling amuses me, impressive that you were able to decipher anything out of it!

Could I have chosen a more cryptic title?  teehee  I sometimes work myself into a tizzy over details or oversights, which is what I meant by variable, maybe I should have said occasional overwhelm.

FructMal eliminates smoothies for me : pout : luckily I use my VitaMix for soup, "cheeze", "pudding" and I make my own arsenic rice milk : grin :
 
Wow, I just checked, I posted my recipes so long ago on my blog, I never updated them to the gluten-free versions.  I refer to my recipes as "reasonably palatable" to me they are terrific, but to a person without intolerances they are bland or weird.  Funny thing, I greatly dislike having to cook or even prepare food, yet this has forced me to have to adapt and get creative.
 
I do truly appreciate you all responding so quickly and enthusiastically, and in trying to reply, I am having this flood of stuff I want to share and I think it would be better if I used the blog feature here for that, I just didn't want to leave yall hanging while I write a novel of my gut history : winkiegrin :
 
[sidenote: For reference, I am a professional goofball, which does not always come across in text, and I have a habit of overusing emoticons to relay that hence I adopted DIY style : likethis : so don't worry that the forum software is having a glitch.]
0

Share this post


Link to post
Share on other sites

I confess...I did wonder about the title and thought maybe you got "spell-checked" ...

 

then figured...well, I am pretty sure I know what she means. :D  

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,916
    • Total Posts
      919,623
  • Topics

  • Posts

    • Depression / anxiety issues
      Hi all.  Still feeling the same way this past week. I'm thinking of dropping dairy starting from today, I don't know if I have a problem with it or not, but I drink 2 coffees a day with milk. I'm just constantly tired all the time, and getting trough the day is pretty hard, I noticed a couple of weeks ago that my sleep was improving but the last couple of days I have been waking up at least 3 times during the night, then when I get up in the morning it feels like I have been hit by a bus, like I haven't slept at all. I keep waking up during the night needing to drink water as I feel dehydrated, I don't know why as I drink 2-3 litres of water everyday 
    • No actual diagnosis/genetic results.
      About 30% of people have a gene for Celiac.  They don't all have it because only about 1% of the population has Celiac.   It is quite possible she has something else that is causing her trouble.  Sometimes eliminating gluten helps that problem, like FODMAPS.   If it were me, I would keep her strictly gluten-free for a year or so.  See if anything develops.  Then I would try her back on small doses of gluten.  If it is something like FODMAPS, she may be able to tolerate some gluten after a while.  I would do that for 3 months .  If she is having issues I would then get her tested with a full Celiac panel and, if positive, an endoscopy.  Even if the panel is negative, if she is having issues, I would pursue more testing, ends, colonoscopy, etc. For schools to take a gluten-free or any special diet seriously, you will need a doctors note.  I am assuming US might be different in other countries.
    • No actual diagnosis/genetic results.
      Hi- new here but have been reading a lot of posts (Long post, last two paragraphs have actual question)  my four year old daughter probably has celiac but I don't know if I'll ever get a definitive diagnosis at this point.    Backstory: growth Delays, GI issues and a few other symptoms as a baby/young toddler. Did not have blood work done but went straight to biopsy which was negative. Always still had suspicions that gluten bothered her.    Started developing more symptoms around 3, by 3.5 they were pretty bad and her dr recommend eliminating gluten. (Blood in stool, rashes, low grade fever, joint pain, stomach pain and bloating, behavior issues) Everything cleared up quickly! Yay. Still had occasional gluten because I was under the impression it was "just an intolerance" and her symptoms kept up/got worse with each exposure. (Developed vomitting as most recent symptom) So I wanted to know if it was celiac. Can't do blood or biopsy since she's been mostly off gluten for months by this time.  I really was hoping to have a concrete answer and diagnosis, So we did genetic testing recently. It came back positive for half of DQ2 (beta subunit). Her dr isn't giving her official diagnosis but says "she is at a fairly low risk" but with her symptoms doesn't that mean she has developed it??!   Either way he says to keep her off gluten but I don't understand why he won't diagnose? Right now I am just telling people (besides family) that she has it because it's too hard to explain it all but do you think an actual diagnosis would be beneficial in any way? Should I push the issue with her dr? 
    • Awaiting Biopsy Results
      Thanks for the advice and encouragement, Gemini. I appreciate having additional insight into my situation. Celiac being the cause of my health issues makes more and more sense the more I learn about it, and eliminating gluten sounds more and more like the right choice for me.
    • Did Jennifer Esposito Leave Town Amid $43 Million Gluten-Free Bakery Lawsuit?
      The topic of this forum is "Celiac Disease - Publications & Publicity," so certainly it fits in here, and in fact, this topic is designed specifically to handle any media coverage that relates to celiac disease and/or the gluten-free diet.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,961
    • Most Online
      1,763

    Newest Member
    foodabc
    Joined