Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Toddler W Celiac gluten-free For 6 Months But Still With Diarrhea


So-so's mom

Recommended Posts

So-so's mom Newbie

My now 2 year old daughter was diagnosed with celiac disease six months ago, after having watery, foul-smelling diarrhea for three weeks.  After 3 weeks of being on a gluten-free diet, her stools became more like a more liquid version of chunky peanut butter.  She has occasionally had formed stools, but mostly they have remained like chunky PB.  How long will it take for her to have normal stools?  It's already been six months!  When I saw the gastro three months ago, he said to give it six months but I haven't seen improvement.  I don't think we are continuously contaminating her re: we have made our entire house gluten-free and she doesn't go to school (and we watch her like hawks when she is outside our home).  When she had a clear exposure three weeks ago, her stool was explosive and watery.  I'm just wondering if she's sensitive to something else, too?  I removed gluten-free oats from her diet about two months ago. Should I eliminate something else?  If so, what?  She still doesn't seem to have regained her appetite, although she is growing along her growth curve nicely.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Have you tried removing diary?

Link to comment
Share on other sites
Lisa Mentor

Have you tried removing diary?

My suggestion as well.  Dairy can create some of the same symptoms as a gluten intolerance, and most often, it can be reintroduced once intestinal healing can take place.

Link to comment
Share on other sites
greenbeanie Enthusiast

If she takes fluoride pills, make sure you check them for gluten too. Long before my daughter was diagnosed with celiac, I noticed that she always had tantrums right after taking fluoride. I stopped giving it to her and told the dentist about the tantrums, and he looked at me like I was crazy. But whenever I re-tried the fluoride, she had another tantrum within 20 minutes. Now, two years later, this finally makes sense. The pharmacist checked and gluten wasn't obvious as one of the inactive ingredients, but he had no idea whether it was made at a shared facility, etc., and he didn't seem able to get that info. My daughter is quite sensitive (reacts to Rice Dream, foods made at shared facilities, and probably a lot of other things we haven't realized yet), so we're not risking the fluoride and are just hoping that better overall health will do more for her teeth than fluoride will.

Link to comment
Share on other sites
Lisa Mentor

If she takes fluoride pills, make sure you check them for gluten too. Long before my daughter was diagnosed with celiac, I noticed that she always had tantrums right after taking fluoride. I stopped giving it to her and told the dentist about the tantrums, and he looked at me like I was crazy. But whenever I re-tried the fluoride, she had another tantrum within 20 minutes. Now, two years later, this finally makes sense. The pharmacist checked and gluten wasn't obvious as one of the inactive ingredients, but he had no idea whether it was made at a shared facility, etc., and he didn't seem able to get that info. My daughter is quite sensitive (reacts to Rice Dream, foods made at shared facilities, and probably a lot of other things we haven't realized yet), so we're not risking the fluoride and are just hoping that better overall health will do more for her teeth than fluoride will.

With due respect greeneanie, your post is purely speculative and unsupported by documentation.  Although you suspect that this is the answer your daughter's issue (and it may be so :) ), most members would want more than an antidotal solution.

 

Perhaps that was an other component in that fluoride pill that made her have tantrums.  Have you pursued that avenue? :)

Edit:

Just a breeze through google, issues several warning for fluoride for children. None of which are gluten related.

Link to comment
Share on other sites
greenbeanie Enthusiast

With due respect greeneanie, your post is purely speculative and unsupported by documentation.  Although you suspect that this is the answer your daughter's issue (and it may be so  :) ), most members would want more than an antidotal solution.

 

Perhaps that was an other component in that fluoride pill that made her have tantrums.  Have you pursued that avenue?  :)

Edit:

Just a breeze through google, issues several warning for fluoride for children. None of which are gluten related.

 

I fully realize that it's anecdotal - my point was just that fluoride might be a possible source of cc that could be easily overlooked. As with any other medication, it certainly seems worth a call to the pharmacist to check. 

 

According to our pharmacist, the only inactive ingredients in my daughter's fluoride are magnesium sterate, grape flavor, and lactose. He was not able to tell me what exactly is in the grape flavor. My daughter is totally fine with all of those ingredients in other sources (even lactose), and she's also fine when she swallows some fluoride-containing toothpaste (not good, I know - we're working on rinsing better!). The pharmacist said there are lots of medications that use gluten as a binder, and that he has no way of telling whether these pills were made on shared equipment. Anyhow, I certainly hope that fluoride pills aren't a problem for other children! But if someone seems to have ongoing cc issues with no clear origin, it might be worth looking into.

Link to comment
Share on other sites
So-so's mom Newbie

My suggestion as well.  Dairy can create some of the same symptoms as a gluten intolerance, and most often, it can be reintroduced once intestinal healing can take place.

Yes, I removed dairy two weeks after we stopped gluten, almost six months ago.  The child is eating a very limited diet re: she was raised lacto-ovo-pesca vegetarian, but has never eaten eggs or fish (has refused them in all forms); then I removed gluten and dairy (I tried to introduce chicken, pork and beef after she was diagnosed with celiac but she persistently refuses them.  Then I removed oats re I read that sometimes a protein in gluten-free oats, called oats avenin, can cause similar problems as gluten for those who are sensitive.  So basically, she's drinking soy milk and eating fruits, vegetables, Lundberg gluten-free rice, tofu, gluten-free chips and tofutti and some gluten-free cookies and pretzels.  Not an impressive diet.  I've read that some rice is contaminated with gluten even though it says gluten-free but that sounds a little crazy to me.  That said, I'm willing to sift through my rice and wash it 18 times before using if truly necessary.....

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



So-so's mom Newbie

My now 2 year old daughter was diagnosed with celiac disease six months ago, after having watery, foul-smelling diarrhea for three weeks.  After 3 weeks of being on a gluten-free diet, her stools became more like a more liquid version of chunky peanut butter.  She has occasionally had formed stools, but mostly they have remained like chunky PB.  How long will it take for her to have normal stools?  It's already been six months!  When I saw the gastro three months ago, he said to give it six months but I haven't seen improvement.  I don't think we are continuously contaminating her re: we have made our entire house gluten-free and she doesn't go to school (and we watch her like hawks when she is outside our home).  When she had a clear exposure three weeks ago, her stool was explosive and watery.  I'm just wondering if she's sensitive to something else, too?  I removed gluten-free oats from her diet about two months ago. Should I eliminate something else?  If so, what?  She still doesn't seem to have regained her appetite, although she is growing along her growth curve nicely.

I think I was hoping some one would say it is normal for the gut to take this long to recuperate and that their child took just as long or longer to develop "normal" stools (I would even take "near normal" stools).....I guess not: I need to keep looking for another cause.....

Link to comment
Share on other sites
So-so's mom Newbie

If she takes fluoride pills, make sure you check them for gluten too. Long before my daughter was diagnosed with celiac, I noticed that she always had tantrums right after taking fluoride. I stopped giving it to her and told the dentist about the tantrums, and he looked at me like I was crazy. But whenever I re-tried the fluoride, she had another tantrum within 20 minutes. Now, two years later, this finally makes sense. The pharmacist checked and gluten wasn't obvious as one of the inactive ingredients, but he had no idea whether it was made at a shared facility, etc., and he didn't seem able to get that info. My daughter is quite sensitive (reacts to Rice Dream, foods made at shared facilities, and probably a lot of other things we haven't realized yet), so we're not risking the fluoride and are just hoping that better overall health will do more for her teeth than fluoride will.

No, she doesn't take flouride pills but thanks for the idea, greenbeanie. 

Link to comment
Share on other sites
dilettantesteph Collaborator

Soy is one of the major allergens so it might be a good idea to try eliminating that next.  If eliminating the soy doesn't do the trick, you might want to try those processed grain containing cookies and pretzels next.  There is that Tricia Thompson study of gluten-free grains (and soy) sometimes being contaminated.  Open Original Shared Link

There is also the gluten contamination elimination diet for those with ongoing symptoms: Open Original Shared Link

It consists of: "brown and white rice; all fresh (no frozen, canned or dried) fruits, vegetables and herbs; fresh meats, poultry, fish and other non-processed protein sources. Unflavored, unseasoned dairy products are introduced on week 4. Allowed condiments are oils, vinegar (excluding flavored and malt vinegars), honey and salt. Allowed beverages are 100% fruit/vegetable juices, Gatorade, milk, water, and gluten-free supplemental formulas such as Boost and Ensure. All cereal grains aside from rice are prohibited. Processed cheeses, lunch meats, ham, bacon or other such processed, self-basted or cured meat products are not allowed. Lastly, a gluten-free multivitamin/mineral daily supplement is recommended and prescription medication (verified as gluten-free) is continued."

 

I hope that things improve soon.

Link to comment
Share on other sites
So-so's mom Newbie

Soy is one of the major allergens so it might be a good idea to try eliminating that next.  If eliminating the soy doesn't do the trick, you might want to try those processed grain containing cookies and pretzels next.  There is that Tricia Thompson study of gluten-free grains (and soy) sometimes being contaminated.  Open Original Shared Link

There is also the gluten contamination elimination diet for those with ongoing symptoms: Open Original Shared Link

It consists of: "brown and white rice; all fresh (no frozen, canned or dried) fruits, vegetables and herbs; fresh meats, poultry, fish and other non-processed protein sources. Unflavored, unseasoned dairy products are introduced on week 4. Allowed condiments are oils, vinegar (excluding flavored and malt vinegars), honey and salt. Allowed beverages are 100% fruit/vegetable juices, Gatorade, milk, water, and gluten-free supplemental formulas such as Boost and Ensure. All cereal grains aside from rice are prohibited. Processed cheeses, lunch meats, ham, bacon or other such processed, self-basted or cured meat products are not allowed. Lastly, a gluten-free multivitamin/mineral daily supplement is recommended and prescription medication (verified as gluten-free) is continued."

 

I hope that things improve soon.

Thank you: that elimination diet sounds like it might be very helpful.

Link to comment
Share on other sites
dilettantesteph Collaborator

You are welcome.  I really hope that it works out.  I have a hard time watching my son be sick.  He got diagnosed at 10 and is now 16.  I can't imagine how hard that must be with a 2 year old.  I guess he was sick then too, but I didn't know it. 

 

We are both on a diet like the one in the study, and have additionally found it necessary to do challenge/elimination diets to fine tune things a bit more.  We keep track of what we eat and try to only add one new thing per week so that we can track sources of reactions.  It can take that long to notice a problem and if you have added a number of things it gets complicated.

 

You are a good parent to be working on this so hard.  Be happy that her growth is on track due to your efforts so far.

Link to comment
Share on other sites
Gemini Experienced

Yes, I removed dairy two weeks after we stopped gluten, almost six months ago.  The child is eating a very limited diet re: she was raised lacto-ovo-pesca vegetarian, but has never eaten eggs or fish (has refused them in all forms); then I removed gluten and dairy (I tried to introduce chicken, pork and beef after she was diagnosed with celiac but she persistently refuses them.  Then I removed oats re I read that sometimes a protein in gluten-free oats, called oats avenin, can cause similar problems as gluten for those who are sensitive.  So basically, she's drinking soy milk and eating fruits, vegetables, Lundberg gluten-free rice, tofu, gluten-free chips and tofutti and some gluten-free cookies and pretzels.  Not an impressive diet.  I've read that some rice is contaminated with gluten even though it says gluten-free but that sounds a little crazy to me.  That said, I'm willing to sift through my rice and wash it 18 times before using if truly necessary.....

Lundberg rice is safe.  I have read their manufacturing process and the chances of gluten contamination are next to zero....they only process rice.  But, yes, soy could be the problem. It is for many people.  I just wonder because your daughter is not getting enough protein in her diet.  Do you eat meat or fish yourself?  It might help if your daughter sees you eating them in a positive way because then she might be more willing to try them.  I know this is tough trying to get kids to eat food they need. 

 

If the cookies and pretzels come from dedicated facilities, then the notion that they are contaminated is probably not true.  I am very sensitive and can eat cookies and pretzels from dedicated facilities and so do many other sensitive Celiac's.  But if she is sensitive to soy, they may contain soy.  Many baked goods do.

 

I wish you luck as I know how tough this can be. With such a spartan diet, you should be able to figure this out soon enough.  Toddler diarrhea must be so difficult to deal with! 

Link to comment
Share on other sites
mommida Enthusiast

Double check the house and hygiene products.  2 is tough, because a 2 year old will eat dog food and such.

 

If the symptoms persist, go back to the doctor.  Was your child scoped for the diagnoses?  Unfortunately many gut issues present with the same symptoms and some of these issues tend to have a higher connection to Celiac.  i.e. H. Ployri. infection, Eosinophilic Disorders, and even down to stomach inflammation.

 

Like Gemini stated soy is on the top 8 allergen list.  (Always the easiest place to start with the usual suspects. Then try the higher reactive allergens that didn't make the list~ like peas.)

 

Was allergy testing even considered?  (Was not helpful at all for my daughter's situation diagnosed with Celiac and Eosinophilic Esophagitis.  We tried it for any information to eliminate the trigger allergens.)

 

Good Luck!  Many here have great information and experience to help along the way.  So ask any question you need.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,471
    • Most Online (within 30 mins)
      7,748

    Mimi of 4
    Newest Member
    Mimi of 4
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JustGemi
      The Tissue Transglutaminase Iga: It says at the top of the page....Normal range: below <15.0 U/mL  The numbers on the top/left of chart start at 123, 122.121.120.119   My Results 120.9 U/mL HIGH ___________________________________________________________________ The Gliadin AB Iga: It says at the top of the page....Normal range: below <15.0 U/mL  The numbers on the top/left of chart start at 64,63,62,61,60 My Results 62.1 U/mL HIGH    
    • trents
      The reference ranges are usually included in the data but they may be cryptically expressed. Just type in everything from the results as it appears in the form you have it. Put it all in a new post window. We'll unpack it for you.
    • JustGemi
      Where would I locate the reference ranges?  I'll take a look at my results again....
    • JustGemi
      Scott,   Can you look at my post and tell me if my numbers are off the chart!?  I won't be able to see my Gastro for another 7 weeks and I am freaking out at the numbers. JustGemi
    • Scott Adams
      Welcome to the forum!  Could you also post the reference ranges for your test results, unfortunately each lab has a different range, so there is no way to interpret your results without that info.
×
×
  • Create New...