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Skin Biopsy!
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So despite my pediatric office's referral department completely dropping the ball (twice), we have an appointment with a dermatologist to biopsy what we think is DH.  She broke out with the first few blisters last night, we have an appointment for 10:30 this morning (long story, but a miracle happened there).  Hopefully if this test comes back positive we can cancel the EGD!!!!!!  

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good luck this morning!!  hopefully you get this before you go if you aren't aware already, "Dermatitis herpetiformis is only 

diagnosed and confirmed by a dermatologist obtaining a slight skin biopsy from uninvolved skin adjacent to blisters or erosions."
 
the above is copied from the diagnosis category on this link: http://calgaryceliac.com/CCA/wp-content/uploads/2012/03/dematitis-herpetiformis.pdf  
 
if anyone can put up a more recent link, please do!

So despite my pediatric office's referral department completely dropping the ball (twice), we have an appointment with a dermatologist to biopsy what we think is DH.  She broke out with the first few blisters last night, we have an appointment for 10:30 this morning (long story, but a miracle happened there).  Hopefully if this test comes back positive we can cancel the EGD!!!!!!  

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good luck this morning!!  hopefully you get this before you go if you aren't aware already, "Dermatitis herpetiformis is only 

diagnosed and confirmed by a dermatologist obtaining a slight skin biopsy from uninvolved skin adjacent to blisters or erosions."
 
the above is copied from the diagnosis category on this link: http://calgaryceliac.com/CCA/wp-content/uploads/2012/03/dematitis-herpetiformis.pdf
 
if anyone can put up a more recent link, please do!

 

 

I did know that!  And I'm going to be positive they do it right!  I don't want anyone else dropping the ball....

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great  :)  I don't have DH, but I've read so many times about how the doc biopsied the actual blister, so it was essentially a wasted appointment  :angry:

 

good luck!!

I did know that!  And I'm going to be positive they do it right!  I don't want anyone else dropping the ball....

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Let us know how it goes!

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Well it is a darn good thing I knew where to biopsy!  The NP we saw was adamant on biopsying the actual blister.  I told her 3 different doctors and all I'd researched said it had to be beside it with uninvolved skin.  They called the pathologists and ended up taking 2 biopsies.  They are going to do a full pathological workup on the biopsy of the blister, and then the DH of the "uninvolved" skin.  I am just hoping the test results come back before the scope, so that if they are positive, we can cancel the scope!    Her bottom this morning was terrible.  Her 3 blisters turned into a break out on her entire bottom.

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glad you got it done and were persistent :)   I hope she feels better!!

 

Well it is a darn good thing I knew where to biopsy!  The NP we saw was adamant on biopsying the actual blister.  I told her 3 different doctors and all I'd researched said it had to be beside it with uninvolved skin.  They called the pathologists and ended up taking 2 biopsies.  They are going to do a full pathological workup on the biopsy of the blister, and then the DH of the "uninvolved" skin.  I am just hoping the test results come back before the scope, so that if they are positive, we can cancel the scope!    Her bottom this morning was terrible.  Her 3 blisters turned into a break out on her entire bottom.

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