Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity

Need Advice Please

7 posts in this topic

OK I have a couple of questions. (Background: I was diagnosed with celiac a couple years ago, and have been on a strict gluten-free diet ever since.) 

1. Is corn masa gluten free? I bought a bag of it from Albertsons and made tamale pie. I was sick as a dog the next day. Was it the corn masa? I thought it was just made out of corn??
2. My next question is gross so stop reading if you're easily grossed out. Whenever I get accidentally glutened or catch whatever stomach bug is going around, I don't just get sick a couple times and then I'm fine. I'm sick ALL DAY. I have to lie in bed the whole day, stay near a bathroom, and wait for my body to vomit and/or otherwise expel every last drop of liquid in my stomach/intestines, including stomach acid. Is this normal??? It's very distressing/inconvenient. I don't know what to do to treat this. Immodium? Or just suffer and wait it out like I've been doing? :(
3. I'm 38, and in the last five years I look/feel like I've aged way more than five years. I look older than my friends who are the same age as me. I also am struggling to lose the 20 lbs I gained from my last pregnancy (which was four years ago). I exercise and eat (mostly) healthy; I'm not sitting around all day eating potato chips. I look in the mirror and I barely recognize my own face: I have eye bags, jowls, and wrinkles. What is going on? Am I deficient in certain nutrients or what? My doctor has humored me and ordered several blood tests but found nothing wrong (hormones, zinc, anemia, etc.) I am vegan as well as gluten-free so I'm starting to wonder if I should be taking some kind of supplements anyway. I do have a juicer and I make green juice which does help a little, but I recently read about sea buckthorn berry, biotin supplements and reservatrol as the new "fountain of youth" type products. Is this stuff a waste of money, or should I try these? Anyone tried any of these or have any advice for me? I'm depressed about my appearance lately.
Thanks in advance and sorry if I sound vain or petty. :(

Share this post

Link to post
Share on other sites

1. Have you any other issues with corn products? If not, I suspect there was some sort of cc involved.


2. Thats how i am with stomach bugs. I wait it out.


3. Have you had your thyroid checked?



Just some random thoughts I had :)


Share this post

Link to post
Share on other sites

First, as to the corn: there is an Italian study from last year, repeating the effort made in Sweden (all as summarized in

which shows that about half or more of celiacs react in some way to corn gluten type molecules. (In my case, that includes sorghum, of the corn family, and oatmeal, or any other prolamin except rice). Then again, the cross contamination of corn and oats and even rice is commonplace, and if you are somewhat triggered and ate a lot of beans with that...not pretty. Welcome to celiac disease, where paranoia over food is a GOOD thing! As to your need to completely empty your gut from either illness or celiac: pretty common and the next day or two is often pretty weak too.

As to the inflammation you otherwise report, you may be deficient in vitamin B (dry beri beri, see Wikipedia) and D even if your levels are adequate. In my case, it took two years after diagnosis to straighten out all the supplement/drug interactions, and I had to find those all on my own, using the internet medical databases. Doctors do not actually know very much about the dozens of proteins we eat daily, and I for example, have a salicylate sensitivity, and you may have any other group of your own other sensitivities (not allergies) or drug interaction. Only you can list all your symptoms and all your medicines, and supplements, and whether they are contaminated, and then laboriously study them using the internet. Be very wary of Misinformation (I always use PubMed to check, at length, for studies). Also, do you have any bone loss (pointing to rare parathyroid disease, or thyroid inadequacies etc). Best wishes.


Share this post

Link to post
Share on other sites

 Be very wary of Misinformation (I always use PubMed to check, at length, for studies).



Good idea.  I noticed you didn't provide any links for your assertions about corn.  :)


Share this post

Link to post
Share on other sites

 Welcome to celiac disease, where paranoia over food is a GOOD thing! 


LOL....I never think paranoia is a "good thing".  :D  Paranoia is wasted energy, IMHO.


Hi Marie!!


(1) corn masa is usually gluten-free. ,maybe it was cced? who knows. I get mine from nuts/com where it is certified gluten-free.


(2)  if you get glutened or you are sick with the flu or food poisoning or anything of that nature....let it out. kid.

The body works naturally to rid itself of what it considers "poison". It expels at the rate it does (either through vomit or the big D) because it wants to purge. Not sure what any of us can do except "wait it out".... can't make it go faster and we can't make it stop. I have taken pepto bismal to help with the abdominal cramping and I double up the probiotic to help with the gastritis/colitis..

(inflammation in the GI tract)


(3) You are 38. So young!!....God Bless!!  :)


 You may be too harsh on yourself, hon! You may not look as "bad" as you think..

I do not know any fountain of youth magic bullets. If I did, I'd be taking them myself.

I do know that I have aged backwards in the last 2 years, whoohoo!!....but then again, I looked like

hell when I was sick before DX (I mean, I looked like I was 90--old and creaky and slow) . so now, I look much better. 


Supplements to make us look younger are a waste of $$, IMHO. 

Supplements that are necessary (vitamins, for example) are useful, yes.


I respect your veganism, but honey, I have to wonder if this is causing  any of your "tired" appearance.

Just sayin. Do you have a B-12 or folate def by any chance which can occur with not eating meat??? 


Hugs to you. I have not seen you in a while! Nice to see you again.!!  


Share this post

Link to post
Share on other sites

Thanks for the suggestions and info everyone!!


I don't have any B deficiencies, which is probably pretty amazing considering vegan diet/celiac. The best I have ever felt was right before i had kids, maybe they are just sapping my energy, haha! Seriously though, I wasn't eating very much food at that time, mostly salads and smoothies, so it may have been because I was (accidentally) not eating much gluten. But then again, I'm not eating ANY gluten now, so you would think that would help me out!


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • turkey
      Turkey is gluten-free as long as it is not stuffed. You can make a good gluten-free stuffing using gluten-free bread. Dry the bread first and add what ever spices or veggies you wish, but cook it in a separate baking dish because stuffing the bird with it can cause bacteria to breed. And gravy must be thickened with corn starch or potato starch instead of wheat flour.
    • turkey
      so you can't even cook without stuffing inside turkey and not get gluten? Sorry I'm not familiar with turkey and wondering if I can have it while rest of family gets stuffing? In other words is turkey gluten free?
    • Numbness, Tingling in limbs & Joint Aches
      Hi Ender, Although you didn't get a complete thyroid panel, from what I see you are hypothyroid.  Most Dr's only care about TSH and yes yours is in the range, but when mine is that high I get terrible joint aches.  I feel best with mine around 1.  Your free T4 isn't just a tad low...most people feel best with it around 50% of the range.  I think you could benefit from some thyroid replacement medication.  You should also get a full thyroid addition to what you've had done a free T3, TPOAB and TgAb.   The last 2 are antibody tests.  Hashimotos is found fairly frequently with celiac.   Low vitamin D can also cause aches.  It would be really good to have your levels checked again.  Until you are healed you may not absorb it well enough so it's good to keep supplementing.  It took me a year and a half gluten free to get mine to an acceptable level for my Dr and he's keeping me on 2000 daily for maintenence.  For the numbness and tingling my Dr had me add magnesium as I was having horrible tingling in my feet and my B12 was good.  I have to say it has helped a lot. I hope you are able to get this figured out...I would definitely start with a complete thyroid panel and recheck of Vitamin D.  Here's a bit of reading on thyroid stuff if you have time.  Hugs!
    • Positive & Increasing TTG -- questions re: testing & history
      I'm a 31-year-old high school teacher (currently on disability) who has been dealing with 4 years of major gastrointestinal problems, which resulted in major surgery for a rectal prolapse & redundant colon last August, prior to which I had lost about 20 pounds. The source of all my gas, bloating, distention & diarrhea has remained basically unexplained though ("lets trust the surgery resolves your obstructed defecation and in turn your gas... d'oh it made both  worse"  ) , and my symptoms have only gotten significantly more severe since surgery. I'm facing a permanent ostomy. I've also, for the first time in a lonnng time, been eating a lot of gluten every day... primarily out of depression and (misguided?) attempts to gain weight and keep stool soft. I've been typically slightly underweight for 10+ years. Suffered anorexia for a period 10 years ago, and since recovering have "naturally" maintained a low weight and low-wheat lifestyle (I've always been put off by heavy wheat items like bread, sandwiches & pasta, *shrug*). As a child I had crazy severe & unexplained constipation issues. I've also had strong teeth discoloration & marked enamel defects (& two missing adult teeth(?)) since childhood. Depression & anxiety have been longterm issues. I have osteoperosis, which was perviously explained by me being anorexic from 19-22. Everything changed 4 years ago upon the onset of all my (severe) classic-IBS symptoms (gas/bloat/d+c). On a low-gluten diet, TTG bloodwork came back "low-positive" repeatedly. A biopsy showed no damage, but my gluten intake at the time was limited to 2 cookies a day, or occasionally 2 cookies and a piece of pizza. Would this have been enough to show damage? I trialled going gluten-free for a few months, and didn't find a ton of relief... so assumed I was just FODMAP intolerant... however I was eating lots of oats and lactose that whole time, which I have subsequently identified as major triggers... not to mention just lots of gluten-free junk food. Wheat was obviously a significant gas trigger since this hit, but that seems typical for gut illness in general. Since my major surgery and the continuation and worsening of symptoms, I've connected with an internist who has again and again pushed me towards eating wheat as a method towards weight gain and healthy non-anxious eating. I also found that a high-wheat diet would provide the proper consistency (i.e. very loose diarrhea every day) to allow colorectal function (the surgery I had went very poorly and caused major obstructed defecation). I have not had success gaining weight, and have found my digestive system feeling assaulted like never before 24/7 by bloating, gas and discomfort, despite a relatively low-residue diet and constant elimination. My appetite has never ever been worse. I just had a fourth TTG test, and after this high-gluten diet I am now testing POSITIVE as opposed to BORDERLINE. Questions: 1) I suspect my first biopsy's gluten challenge wasn't quite heavy enough in terms of gluten content (couple cookies a day). Thoughts? 2) Could being underweight alone cause an elevated TTG? How about simply having colorectal surgery? "IBS" or the supposedly non-pathogenic gut bacteria blastocystis hominis which I've been diagnosed with? I haven't been diagnosed with any other autoimmune condition, and I'm so confused. So far everyones just shoving the TTG off on IBS/anorexia, which doesn't make sense to me at all. 3) I really don't know what to do right now. I'm 20 pounds underweight, in digestive hell, with most of my medical support still suspecting I'm merely acting anorexic. I most assuredly am not. They want to put me on a tube. I would really like to get off the gluten in order to ease my system and gain weight, as I'm clearly reacting to it and have been deluding myself for the past year trying to recover from this surgery, but I'd also *REALLY* like some diagnostic confirmation so my doctors & family all stop looking at me like I'm crazy, and that so I can act with appropriate caution/freedom in my dietary future. 4) Do my childhood experiences line up with any celiac sufferers? I've heard about enamel defects, but missing teeth or crazy constipation? Obviously osteoperosis could connect, and doesn't *really* line up with my anorexia considering I was already fully grown. 5) Is there any way to get EMA/HLA blood tests done in Canada (BC)??? It's really frustrating that my only chance for any confirmation is waiting months and months here for another biopsy, especially considering how dire the need to improve my digestion is ASAP. I imagine if I could get an EMA test & it came back positive I would just take that as my confirmation and be able to move on with confidence here. 6) Is it common for celiac sufferers to find themselves reacting to FODMAPS and/or histamines in foods while they're  still maintaining a gluten-filled diet? Gluten definitely isn't my *only* trigger right now, and that's probably a primary reason I haven't been led to eliminate it at. Sorry for all the talk & questions, but I'm in an incredibly challenging place right now, my head is just swimming and swimming, and any thoughts would be greatly appreciated!   Bloodwork Current, after six months of a heavy-gluten diet = Tissue Transglutaminase Ab IgA ---18.0 ---- <12.0 U/mL = normal
      POSITIVE -Probable celiac disease but this should be confirmed with a small bowel biopsy. [Tested by a multiplex flow immunoassay
      (BioPlex) method.] 

      6 months ago = Tissue Transglutaminase Ab IgA ---13.0 ---- <12.0 U/mL = normal
      BORDERLINE - Borderline anti-tTG. Suggest repeat if clinically indicated.Consider the possibility of celiac disease - a small bowel biopsy may be required. [Tested by a multiplex flow immunoassay
      (BioPlex) method.]

      2012, prior to negative biopsy = Tissue Transglutaminase Ab IgA ---24.0 ---- <20.0 RU/mL = normal
      Weak positive anti-TTG. Consider the possibility of celiac disease - a small bowel biopsy may be required.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
  • Members