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Biopsy This Week...one Year Old..pretty Nervous!
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Anyone else have a child have a biopsy? Im pretty nervous to have my baby sedated! Her IgG was pos and her IgA was normal...so im confused and a bit nervous about weather or not they will find anything! I hope im doing the right thing by going through with this? What are the chance she has celiacs with only the ttg IgG being positive?

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Can't tell you the chances but can say my daughter was 15 months on diagnosis, blood tests were ALL negative but had sufficient IGA. Her endoscopy clearly showed multiple signs of celiac. So I would think with that then even one positive would be best to confirm.

The scope itself is not that bad of an experience. She was drinking formula up until the early morning and was only without a short bit. They let me stay with her until they got her into the or (she was having other surgery) and until she was sedated. If they let you stay until they give her some sedation it is nice but prepare.yourself to walk away from your sedated baby :( for me that was the worst part (but also she was having exploratory surgery and an adenoidectomy so i was more on nerve for that). But then shortly after (it is a pretty quick procedure) she will be done the procedure and back to you, sleepy and wanting to cuddle and likely wanting a bottle. So not too bad over all!

The "worse" part is waiting for results. Not sure about elsewhere but here we waited a full week. Sometimes they see things before office all results.back but not always and our GI told us almost never in ones as little as this. But I guess in the end what is a week after all this time trying to figure out the problem etc...

Hope all goes well and smoothly!

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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