Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Ectopic Heartbeats And Exercise?
0

9 posts in this topic

Went to docs last week because of palpitations, flutters, missed beats... They occur sometimes everyday at rest or after eating or basically at anytime, ocasionally I don't notice them for a day. Sometimes I notice 10 in an hour.

Sometimes its more than just one ectopic, its 3 or 4 together. Once after a run i had a missed beat of about 3 seconds then a huge skipping for another 4-5 seconds... I put this down to being tired from run, hot and dehydrated. I did feel a bit sick and dizzy, but it had been a hard run!!

 

They did a 7 second ECG that showed a an ectopic heart beat. My doc checked various things (thyroid, renal etc) but now says she is going to refer me to a cardiologist... For a 24 hour ECG test...

 

In the meantime I asked if I could do my usual exercise (I have recently moved mountains to motivate myself to exercise, it's been 2 months and I'm proud of myself I'm doing ok!), but my doc says that it's up to me but advises to wait until I have seen the cardiologist. This will probably mean 2-3 months or more of waiting here in UK. She suggested I walk instead. :(

 

Gutted, demotivated. Completely pissed off. I'm trying SO hard to well.

 

I want to continue running and doing my taekwondo class (I only do 2 sessions of exercise per week) If I stop now, I know that'll be it.

 

 

 

Anyone suffer from anything similar? Have googled it all, most ectopics seem benign? 

Any info GREATLY appreciated as I think I'm gonna carry on with the running... I feel well otherwise you see (for a celiac!)

many thanks

0

Share this post


Link to post
Share on other sites


Ads by Google:

I think this condition is called A-Fib in the US and, while I have never had any heart problems, I have a cousin who just underwent surgery to correct long standing A-Fib.  Well...it doesn't really correct it but that's their fix for it in AMA Land.  What I do know is that A-Fib is an associated condition for Celiac's.  I have heard a few of these people say their A-Fib went away on the gluten-free diet, after a time.  I don't know how long you have been gluten-free but there is a good chance it will self correct.  I think you will have to see the heart guy anyway but I wouldn't be overly worried about it before you do go to the doctor.  My cousin, I strongly suspect, has celiac but she STILL is not convinced she has it.  A-Fib, IBS, thyroid problems......and she still isn't convinced.  I have no idea if she has been tested because they dance around any questions I may ask so I don't bother anymore. 

 

If you have this problem after running, I would walk for awhile and see what happens after you see the heart guy.  If you feel good after running, keep on running!  :)   That's what I would do anyway.....I do not give up my exercise without a damn good reason!

0

Share this post


Link to post
Share on other sites

Thanks so much for your response! This exactly how I feel about my running and exercise. I haven't really had this problem after running except once, when in the shower I felt like my heart didn't beat for about 3 seconds, then it went crazy for a few seconds... I felt a bit dizzy & lightheaded and it did make feel queazy and odd... but it had been a hard run (in the morning sun), and I know I was dehydrated (no fluid since the night before)... I went straight out of bed! So I'm not surprised it happened if you catch my drift?! I've been running since that (before docs appt) and been fine, generally I'm bouncing afterwards (give me 10 mins recovery!)... I have my taekwondo class tonight which is tough, but I'm going to go...

Thanks Gemini really appreciated. I'm so annoyed!... It's hard recovering and trying to get better (gluten-free for 7-8 months), and my exercise and running have kept me sane these last 2/3 months... Thank yoooooou :)

0

Share this post


Link to post
Share on other sites

Hey designerstubble, sorry to hear it. That must be scary, though as you say, it seems most uneven heartbeats are benign. Your post reminded me that I also experienced some irregular heartbeats in the last year or so, but only while exercising. I wonder now if they could have been related to Celiac, particularly before I was diagnosed. I went to see a doc at the time (you know, since I was afraid I was going to drop dead in the middle of class) and he suggested it was just dehydration, which seemed plausible given the excessively hot and humid climate I work out it (though I hadn't had the arrhythmia in the previous years doing the same). In any case, the doc didn't think it was anything to worry about. That's very interesting if Celiac can cause palpitations or uneven heartbeats. Good luck with getting some answers.

0

Share this post


Link to post
Share on other sites

Hey designerstubble, sorry to hear it. That must be scary, though as you say, it seems most uneven heartbeats are benign. Your post reminded me that I also experienced some irregular heartbeats in the last year or so, but only while exercising. I wonder now if they could have been related to Celiac, particularly before I was diagnosed. I went to see a doc at the time (you know, since I was afraid I was going to drop dead in the middle of class) and he suggested it was just dehydration, which seemed plausible given the excessively hot and humid climate I work out it (though I hadn't had the arrhythmia in the previous years doing the same). In any case, the doc didn't think it was anything to worry about. That's very interesting if Celiac can cause palpitations or uneven heartbeats. Good luck with getting some answers.

Thats interesing... My cardiologist thinks its not related to celiac but I wonder how so many years of malabsoption cannot affect other parts of the body?? we all know that celiac disease messes with hormones... heart rhythms are also affected by thyroid and adrenal so... my guess is that its all connected... Mainstream consultants are just NOT interested!! Anyway, I had an exercise stress test which showed premature ventricular beats and premature atrial beats, apparently nothing to worry about as they were not present during my maximum heart rate. They are still asking me to wear a holter device for 7 days because of my 'waking up' with racing heart episodes...But i am still exercising and learning to put up with it. Its horrible though! Fingers crossed for the tests though hey?!!!

0

Share this post


Link to post
Share on other sites




Good luck with the tests. Hopefully it won't turn out to be anything serious. This may not be connected to your Celiac, but I think you're right that we (docs included) don't yet understand all the ways Celiac can affect other body systems and be linked to seemingly unrelated problems. Maybe the increase in Celiac and diagnoses will help improve our global understanding of it.

0

Share this post


Link to post
Share on other sites

Just posting an update for info purposes :)

Wore a holter device for 7 days. Showed ectopic multi form ventriculars, and couplets. Apparently nothing to get too excited about. I have been assured that it is not celiac related (I am sure that there is little research on the matter therefore do not hold much credence to that opinion!)... And I have been told that I require no further investigation at this time unless racing heart appears again. Moral of the story. Go to ER and get diagnosed at the time of episode!!! Even if you don't think it's important enough, or feel silly. Saves an awful lot of aggravation!! :)

0

Share this post


Link to post
Share on other sites

Thanks for the update.  How are you feeling, though?  

0

Share this post


Link to post
Share on other sites

I feel ok mostly. I have days of 'heart awareness' and days when I forget completely. Hopefully it will just be a phase? I seem to have gone through SO many things after diagnosis that have been a phase! Sometimes I wonder if I'm losing the plot!!! 8-)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,357
    • Total Posts
      920,528
  • Topics

  • Posts

    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)  
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
    • I had a biopsy done (2 samples, 1 on a lesion and 1 next to lesions), and also more bloodwork done. All came back negative. However, I only had been eating gluten for 2 weeks prior, and it took a week of gluten for lesions to reappear. I also used a topical steroid off and on (1x a week approximately) for a month or so before testing. The dermatologist told me to stay off gluten though, and said she wants to do more allergy testing (her next open testing appt is in 6 months!!). I know I'm not the DR, but I dont think it's allergies...without a doubt, my skin begins clearing about 2 weeks post gluten-free diet...this is without changing anything else in my lifestyle. And when i had to go back on gluten before my biopsy, it took about a week, but did reappear. Now, about 2 weeks post biopsy and gluten-free, it had begun clearing until i worked outside all day in heat, humidity,  sweat etc and it has definitely irritated all the places that were healing (not new breakouts, just aggravating what was going away!). All that being said, i have a friend who is an MD( who's hobby is to attend conferences on skin conditions!), and she has told me that without a doubt, I have celiac/DH.  I think I just feel like I need test results and paperwork to show for it...especially to show family members who are unsupportive (gross understatement!) of the extreme changes I've had to make!
    • Sorry ! I have never cruised before.  Just wanting to follow your topic.  Good luck! Have a great,  safe vacation.  
    • Hi there, I hope you're all having a good day! I'll be heading on a week-long Carnival cruise shortly and had a few questions: -What is the tipping protocol? I've prepaid gratuities, but feel like the food request will warrant something extra. Should I tip the headwaiter? Hostess? Regular waiter? Chef? Those cooking at, say, the sandwich or pasta bars? If so, how much is appropriate, and should I tip at the beginning of the cruise, the end, or split it up? -It looks like the main dining room will be closed during lunch hours on most days. Any recommendations on safe bets for midday meals? I'll be on the Carnival Sunshine, for what that's worth. Thank you so much for any information you can share!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined