Posted 25 June 2013 - 06:22 PM
You can only get a medical answer using the best tools of medicine available, which are now on the internet, such as pubmed.com, rightdiagnosis.com, and a hundred other web sites and forums.
RESIST jumping to conclusions. RESIST quackery and utter nonsense.
You don't mention your thyroid situation. Check it, re-check it, and research it. Also, adrenals.
You may have drug/supplement interactions, check and recheck on rxlist.com. MANY drugs and supplements will wallop someone with celiac disease or a dozen other metabolic diseases.
You may also have one of the common sensitivities/allergies: wheat, corn, milk, egg, etc.
If you think food is a cause, get serious about scientifically nailing down what foods you can eat without any reaction, then add a small amount of suspect foods and see if there is a reaction. This can take months of cautious effort, even years. Repeat each test several times. Some food reactions have no immediate visible symptoms, but the food still can damage the person, so that's a tricky problem.
Apparently, about sixty percent of those who are correctly diagnosed celiac still intentionally eat wheat, though, so if you are not motivated to devote yourself to a stringent diet and always looking to the long run, then there's no point experimenting with celiac. Also, it takes a huge amount of education and caution to be gluten free, due to our rather screwed up food supply system (example, restaurants will be a dangerous challenge). I doubt you will find quick or easy answers.
But first, foremost, if you will try these ideas: SEE A COMPETENT DOCTOR, or more than one as needed, and take nothing at face value. If you have anyone in your life who can help you with these things, have them double check everything with you and do their own internet research. Do not expect anyone in medicine to care or to be willing to research anything for you or even listen to you. As to celiac disease, less than 1% of the population seems to have it, so your hope that you may be on to your main problem...99/100 says you aren't.
I can't give you the benefit of my own situation or research, I don't have enough information and I'm not a doctor, but I will suggest you research whether you have narcolepsy or epilepsy and whether Provigil or xyrem will help you, neither of which are to be experimented with lightly. Oh...on that constipation, try three very small apples a day...yep, it's an effort. Or miralax. If the miralax makes you immediately and noticeably fatigued even more...research whether you have a "leaky gut".
Best Wishes! Gary
Misdiagnosed 62 years; finally medically confirmed Celiac/prolamin 2010
No corn, wheat, rye, barley, oatmeal, sorghum; rice is tolerated. Salicylate sensitive.
Vitamin D and B deficiency, thyroid deficiency, bleeding disorder (all improving slowly).
Neurologically disabled, retired attorney.
Only you can take care of you; random advice from someone on the internet does not substitute for your own doctor!