Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Can Someone Help Me Differentiate Between Salicylate And Histamine Intolerance?


seraphim

Recommended Posts

seraphim Contributor

Okay so I had reason to think I might have a problem with sals. However benzoates like in my cleure toothpaste don't seem to bother me like they seem to bother most sal sensitive that I talked to. (Cleure is suppose to be sal free but apparently not completely...I've also seen avocado in their products. Apparently their focus is for ppl with fibromyalgia). Well anyhow....after I had a reaction to something in lip gloss I decided to keep drinking almond milk and having broccoli. I never swelled again (though it did happen later after giving both up.) But I still got a few hives and itchy red blotches. So after a few days of this continuing I figured I should try giving up the broccoli and almond milk....but stuff kept happening. The day after I gave it up me and my husband were out for a drive and he bought glutino cheese crackers. Within an hour of smelling it my knuckles started itching and swelled. I figured it could be the spices like rosemary. Fast forward almost four weeks and I wound up with three or four more swelling episodes and a bunch of the hives (almost every day). I did notice I was getting cold  urticria. Whenever the air conditioner was on in the car I got itchy raised sore blotches all up and down my arms. Not that I think air conditioner in general did it but I felt cold and didn't bother turning it down as we were almost home anyhow. Thing is I tried the ice cube test for three minutes....there was no welt only a red ring of the edges of the ice cube.

So I guess my question is...what do you all think I should be looking into? I would do an elimination diet right now but I'm horribly sick and malnourished so I'm going to eat moderate sals for a while to get my vitamins. I'm having serious doubts it's sals right now as most have said their worst reactions only typically last a week at most. Not that I expect to find a definite answer here....I'm just curious as to people's thoughts. I know one reaction of hives can last six weeks or more but this was just weird. Not to mention I had broccoli memorial day afternoon and nothing happened whatsoever.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

A simple google search will help you find this information.

 

Not many people on this forum have  a histamine and salicylate intolerance.

 

Foods high in histamine and the symptoms associated with HIT

 

Open Original Shared Link

 

Foods high in salicyaltes and symptoms associated with SI

 

Open Original Shared Link

 

 

I am going to ask the obvious question here: Have you seen an allergist?

Immediate reactions like these "bumps" appear to be an allergic reaction, not an intolerance.

 

There is a huge difference.

 

Fresh meat, fish, shellfish, dairy, eggs, gluten-free cereals and gluten-free breads are low in sals.

 

From all you have told me, you are not eating enough protein. Just eating vegetables and almond milk is not nourishment.

 

Cleure products are salicylate-free. They could never market themselves this way if that were not the case.

Link to comment
Share on other sites
seraphim Contributor

i know it sounds like an allergy right? but my allergist claims the all natural ingredients can't be tested. but they are all very common. Lots of sals sensitive people have hives too so I'm trying to figure out what it was i might b allergic to so i can avoid it in the future. unfortunately the allergist s being no help. The reason why i decided to ask here is that typically the experience of an illness is much different than how it often comes across with a series of symptoms.  As for Cleure I'd like to know what food list they saw that says avacado is low. I've talked to a few  now that avacado would definitely set off. I use them but you can't y Sal free  if it's not. lower sal than most make up yes. Either way it's not of much concern to me at the moment. For protein I've eaten a lot of beans and according to my intake it seems to be enough.

Link to comment
Share on other sites
seraphim Contributor

just read the first link. thank you. the other seems to be a pdf and won't load. i will open it later on my desktop.

Link to comment
Share on other sites
IrishHeart Veteran

 The reason why i decided to ask here is that typically the experience of an illness is much different than how it often comes across with a series of symptoms.  

 

I really do not understand this sentence, hon

Link to comment
Share on other sites
IrishHeart Veteran

 As for Cleure I'd like to know what food list they saw that says avacado is low. I've talked to a few  now that avacado would definitely set off. I use them but you can't y Sal free  if it's not.

 

which product has avocado in it? have you asked the company about this?

Link to comment
Share on other sites
IrishHeart Veteran

 For protein I've eaten a lot of beans and according to my intake it seems to be enough.

 

beans are good protein, yes. But what else do you eat for protein?  You are expressing concerns about malnourishment and maybe we can help you broaden your protein intake with some suggestions.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



seraphim Contributor

Sorry. Sometimes you get a better idea of how a certain illness operates by talking to people who have had it. Sometimes a simple list of symptoms can be misleading. I know people who eat low sal but many are not gluten free so i hoped someone who is might be here as I've seen some posts in the past on it. If i were to go by  I've already talked to....I'm left feeling hopeless like I'm stuck and will never get out of thethe low sal hole. If it is my problem in the end....my body will hate me. It's simply not a realistic diet in my opinion :(

Link to comment
Share on other sites
seraphim Contributor

avacado butter in their mineral lipstick. i have not yet no. plan to.

Link to comment
Share on other sites
seraphim Contributor

i have not had any other protein since feb :(

Link to comment
Share on other sites
IrishHeart Veteran

ANY diet that severely limits food groups and choices without an adequate nutritional substitute is not realistic or healthy.

 

Sal and histamine intolerances require finding your tolerance level, not eliminating every food under the sun.

 

Read the links I gave you, please.

 

Why can't you eat any other proteins? 

Link to comment
Share on other sites
seraphim Contributor

I was eating beef in february and ended up turned off. was going to have some omaha steaks stuff but our order got flubbed then this ill feeling of not being able to eat hit me and so i haven't fixed up our order yet. i was concerned about my b12.

Link to comment
Share on other sites
IrishHeart Veteran

I honestly think you need to add meats, fish, poultry, eggs to your diet, IMHO.

Link to comment
Share on other sites
seraphim Contributor

i agree :( wholeheartedly.....but....i dunno if i can stomach at the moment. wouldn't hurt to re order though.

Link to comment
Share on other sites
IrishHeart Veteran

start small. Eat a beef patty or some broiled chicken. 

Link to comment
Share on other sites
seraphim Contributor

yeah. one thing that also worries me....my body is very acidic right now and it's hard to find much variety in alkaline low sal foods.

Link to comment
Share on other sites
IrishHeart Veteran

How exactly do you measure acidity in your body?? 

 

the foods I just mentioned have no sals in them!! you can eat all of them

 

see this chart?? 

Negligible levels of salicylates

Chicken

Eggs

Fish

Lamb

Organ meats

Rabbit

Sausage casing

Scallops

Tripe

Veal

 

it's from here

 

Open Original Shared Link

 

I feel as if every suggestion I offer, you have a reason why it's not a good one.

 

I offered you everything I know about these food intolerances.

 

Read up on the lists. Hope it helps.

 

I have to get some sleep. Good night! Take care!

Link to comment
Share on other sites
seraphim Contributor

My blood test showed above referance range anion gap. Also...unrelated to acidity i think...low lymphocytes and high monocytes.

Link to comment
Share on other sites
seraphim Contributor

i know meats are low. i was just referancing alkaline low sal foods because i am already acidic and meats are acidic. i don't want to get worse so i need to figure out some alkaline.

Link to comment
Share on other sites
IrishHeart Veteran

The anion gap is an indicator of acidosis. This is not the same as saying "my body is acidic".  Those are two entirely different things.

 

Let your doctor go over the test results with you before you assume anything.

 

Levels on blood tests fluctuate often.

 

If your anion gap was so high you would have acidosis, from diabetes (which you don't have ) or kidney disease (which you don't have either)

 

Do not assume things until you sit with the doctor and go over your blood work.

 

that's my best advice. Good night.

Link to comment
Share on other sites
Lima Bean Newbie

yeah. one thing that also worries me....my body is very acidic right now and it's hard to find much variety in alkaline low sal foods.

 

 

I have never found any real info about people being "acidic".  It is usually just these fringe "doctors" that like to say that stuff. 

 

All you food mixes with acid in your stomach at the start of digestion so I guess it would become acidic then. 

 

Sounds like you just need to force yourself to eat a little bit every hour or so until your body get used to eating.  When a person has been starving themselves, it can be hard to digest anything and you may just have to force yourself for a while.  If you are really "turned off" by eating, you might want to look for some eating disorder counseling and dieticians.  They know how to help you start the healthy eating process.

Link to comment
Share on other sites
Lima Bean Newbie

I knew I had found something about this on WebMD when someone was trying to sell me something related to this nonsense.

 

Open Original Shared Link

Link to comment
Share on other sites
IrishHeart Veteran

i know meats are low. i was just referancing alkaline low sal foods because i am already acidic and meats are acidic. i don't want to get worse so i need to figure out some alkaline.

 

 

The alkaline diet could  over-restrict protein and calcium, though. Not a good idea unless it is supervised by a medical doctor. (that article Lima Bean posted explains it in detail)

 

By the way. I asked you this last night. but you did not really answer me--who told you that your body is "acidic"?

 

Your body's pH is not something indicated in the anion gap result you are worried about.

 

I hope your doctor will see you soon and explain the blood work results to you.

Link to comment
Share on other sites
GottaSki Mentor

avacado butter in their mineral lipstick. i have not yet no. plan to.

 

I have severe reaction to avocado -- anaphylaxis - but do NOT blood or scratch allergy test positive....this is caused by Histamine Intolerance.

Link to comment
Share on other sites
GottaSki Mentor

My blood test showed above referance range anion gap. Also...unrelated to acidity i think...low lymphocytes and high monocytes.

 

Still think you need to talk to a good internist and allergist about your blood tests -- we can't look at all your results here and we are not doctors....

 

Google is very helpful, but be careful not to react too quickly to info you find on the net....if you think you have found something that relates to your specific symptoms -- research further -- try to find published papers or at least university medical center info rather than blogs.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,094
    • Most Online (within 30 mins)
      7,748

    Tracym
    Newest Member
    Tracym
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...