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Help? With Coffee?

coffe maxwell house starbucks 8 oclock folgers

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24 replies to this topic

#1 kitkatkid

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Posted 26 June 2013 - 04:55 PM

Can anyone help me sort through the mass of opinions on coffees. From what I am reading starbuck, gevallia and maxwell house may have trace amount despite their being 100% coffee. But I read other posts where folks say some of the above are garanteed gluten-free

 

I feel like something is dosing me and I drink up so a 8-10 cup pot a day some days so even trace amoutns would be my best guess for whats making me feel sick despite being gluten-free now. I haven't toasted bread yet, or shared cuttign boards. The only thing I have shared was pots after being cleaned in soap and hot water, so coffee seems to be the most viable culprit of my continued issues

 

I would appreciate any thoguhts or information on how to find a brand that is a safe gluten-free brand. I really really prefer dark roasts but of course I prefer not having fog on the brain and feeling weak and dragging all day or being glued to the bathroom

 

Thanks in advance. I must say it has been such a relief to find so many resources such as this on the web these last couple months. I can't imagine how hard it must have been for some of you veterans before technology.


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#2 shadowicewolf

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Posted 26 June 2013 - 05:10 PM

Coffee is harsh on your system. If you are just starting and healing, that alone might be the reason why you are having issues with it.


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#3 Lisa

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Posted 26 June 2013 - 05:11 PM

Can anyone help me sort through the mass of opinions on coffees. From what I am reading starbuck, gevallia and maxwell house may have trace amount despite their being 100% coffee. But I read other posts where folks say some of the above are garanteed gluten-free

 

I feel like something is dosing me and I drink up so a 8-10 cup pot a day some days so even trace amoutns would be my best guess for whats making me feel sick despite being gluten-free now. I haven't toasted bread yet, or shared cuttign boards. The only thing I have shared was pots after being cleaned in soap and hot water, so coffee seems to be the most viable culprit of my continued issues

 

I would appreciate any thoguhts or information on how to find a brand that is a safe gluten-free brand. I really really prefer dark roasts but of course I prefer not having fog on the brain and feeling weak and dragging all day or being glued to the bathroom

 

Thanks in advance. I must say it has been such a relief to find so many resources such as this on the web these last couple months. I can't imagine how hard it must have been for some of you veterans before technology.

I think to answer your question, you should tell us where you are regarding testing, symptoms, dietary issues and duration.  Coffee is gluten free.

 

If you are in an office situation, supply your own coffee.  And not too sure your fog

and dragging feeling is due to your coffee intake. :rolleyes:  You might want to keep a food journal for a while.


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#4 cyclinglady

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Posted 26 June 2013 - 05:16 PM

Coffee is gluten free; however, if you are a "newbie", caffeine can cause symptoms (certainly 8 to 10 cups a day).  

 

http://celiacdisease...Gluten-Free.htm


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#5 bluedove

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Posted 26 June 2013 - 06:50 PM

I have read that coffee contains a protein mimics gliadin... that our bodies interpret as gluten- therefore it can trgger the same symptoms. Since going off coffee (even decaf) I feel much better. Good luck to you....
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#6 kareng

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Posted 26 June 2013 - 06:52 PM

I have read that coffee contains a protein mimics gliadin... that our bodies interpret as gluten- therefore it can trgger the same symptoms. Since going off coffee (even decaf) I feel much better. Good luck to you....

There is no real medical evidence for that. Some one who calls them self a " Home Economist" is not a legitimate medical or scientific source.


http://www.curecelia...ross-reactivity



"What’s with all the talk about certain types of food causing “cross-reactivity?”
There is not yet reliable data about cross-reactivity. As for the alleged possibility that many gluten-free foods or drinks (such as coffee, milk, orange juice, etc.) would trigger symptoms in celiac individuals due to hidden antigens mimicking gluten or cross-reacting with anti-gluten antibodies, it must be clearly stated that this is all false information, devoid of any scientific basis, and must be rejected as untrue."
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#7 w8in4dave

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Posted 26 June 2013 - 08:19 PM

Coffee in a facility that possibly cross contaminated ??? Maby call the company ? Ask if it is cross contaminated? 

I am a tea drinker, I hear Tea can be cross contaminated. This all can be so darned confusing!! 


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#8 kitkatkid

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Posted 26 June 2013 - 09:00 PM

Thanks everyone. Well I found a copy of a response from gevalia customer service and starbucks. Gevalia said there are trace amounts of gluten. And starbucks says who knows some do lol. I haven't found any company responses about gluten making it's way into maxwell house. I realize it's naturally gluten free but it would seem some have cross contamination issues, and supposedly starbucks adds "solid"? gluten to some...the starbucks repoorts were wacky because one person received two different responses on two seperate occassions of calling starbucks and her report of her conversations was as close as I could get to investigating starbucks.

 

One indivual called 8 o'clock coffee and they were adament that it's gluten-free so I figured I would try that

 

Thank you for the other ideas, I guess I've been drinking coffee so long and people joke about my stomach of steel that i didn't think twice that coffee alone, regardless of gluten could be irritating it. If the brand swap doesn't work maybe I can try tea, but oh boy that will be tough

 

Regarding testing etc. In 2009 i was told I should some elevated levels but not enough to be celiac...being i try to avoid web searching my issues too soon i had no idea that my cutting out wheat on suggestion from a friend before the test likely affected my results. I was probably still consuming some gluten but absolutely no breads pastas and wheat to see if helped....when he said "ahh it's just sensitivity and IBS youre fine" I went back to my wheat rules the world diet, like a zombie i fell in line believe white anything was trash haha. So ironically enough uninformed about my testing prob being off with the month of no wheat before, i went back to my ways, the last 2 years I lost 10 pounds and My body always always loves 5'77"135, period...i can even gain to 140 easily...being stuck at 125, cramming in extra mil;kshakes at every meal and fighting to gain weight to no avail...the last year my stomach has been worse, the last 6 months i could bear it, doubled over in pain and tied to a bathroom...i let it go on a while because i have a rare spinal cord thing and it can cause bowel stuff with too hyperactive or the opposite, sluggish so in order to keep myself from assuming the identity of a sick person sometimes im too dismissive of sickness or new symtpoms not wanting to worry i attribute them to my cavity in my spinal cord, etc...so finally a freidn interveined and reminded me their femal friend at my age, 32, had the same problem, weight loss, doubled over, in the bathroom, feeling wasted and brain fog, I felt like I did 8 years ago when I have a severe eating disorder which is crazy because I was eating 3000 calories to try and gain weight and still felt malnourished physically and mentally

 

I couldn't get into the GI for a while so I said forget the testing i don't care if I can feel better and not like a train hit me every day I want to feeel better now..and oh my goodness, aside from the one time i cheated and paid dearly I haven't been doubled over in over a month and I can't remember the last time. I have had a little discomfort sporadically and while a huge amount of fog has lifted and i feel better, i still feel half in the bag and undernourished so looking at my diet all i could think of was cross contamination in my house or coffee because i've been very careful after my one cheat night doubled me over and left me in the bathroom for a day

 

I can't believe i didn't realize this was going on 6 months ago haha but so far I've gained 5 pounds in 1.5 months and feel 75% better than the last 6 months or year ...gosh even to be able to use the bathroom like a normal person, i feel like I have never known what that's like lol.

 

Recoverying from a ED, and so many years of restriction i HATE being restricted now, i love my freedom in my food and weight etc. So I was expecting me to have a difficult time with will power but to be honest i was in so much pain and so sick that i don't ever feel like i want to eat any of it because all i can feel and imagine is that gripping stomoach pain and cramps and the train hit me feelign the next day, like i got drunk the night before. And I'm eating better just because I am forced to prepare more and plan more for meals. I'm pretty laid back usually and eat a lot but whatever i want so on top of everything else I am even feeling a little proud of myself for eating more veggies and fruits, rice..instead of huge bowls of just pasta haha (a kathi typical meal)

 

don't know if that's to long lol, but that's my non tested how I got here story. I really really appreciate so many of you taking time to answer my questions, and my friends friend who sent me a gluten-free fact sheet, bewares, do's and don't lol. I always love seeing communities of people supporting each other. I have a small group who have my spinal cord condition (syringomyelia) and it's a blessing to have support in both areas now. Have a good night everyone. I

 

I am may try to call the aboive companies and if I get anything I would post it and tag it for others wondering the same :)

 

Kat


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#9 kitkatkid

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Posted 26 June 2013 - 09:03 PM

here are two of the links that raised my concern level:

 

http://glutenaway.bl...422561389440204

 

http://www.glutenfre...en-in-your-cup/

 

http://celiac-diseas...gevalia-coffee/

 

HTH


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#10 a1956chill

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Posted 27 June 2013 - 02:40 AM

 I love fresh brewed ,fresh ground (unflavored ) Coffee :wub:  ,, I ♥ mine black but I am sure you have checked anything you add to your coffee ( creamers , sugar ect. are a potential source of CC  and /or gluten ..)

 

Even though gluten free,  coffee was causing issues for me .  ( but EVERYTHING was at that point )     I eliminated coffee altogether ( horrible thought  I know ) for an extended period  (during my elimination diet and for quite some time  after )while my gut healed.

I have since reintroduced coffee with no issues


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Soy free Nov/10

numerous additional intolerances,, i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy...... Celiac :based on DH biopsy and diet response.

Osteoporosis before  age 50
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#11 a1956chill

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Posted 27 June 2013 - 02:49 AM

Coffee in a facility that possibly cross contaminated ??? Maby call the company ? Ask if it is cross contaminated? 

I am a tea drinker, I hear Tea can be cross contaminated. This all can be so darned confusing!! 

tea can be flavored  so stick with a brand that does not make you ill and always  ,always check the label


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Gluten free Oct/09
Soy free Nov/10

numerous additional intolerances,, i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy...... Celiac :based on DH biopsy and diet response.

Osteoporosis before  age 50
Hashimoto's thyroiditis disease .

Diagnosed type 2 Diabetes 

Osteoarthritis

Gilbert's Syndrome , confirmed by gene testing


#12 Greebo115

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Posted 27 June 2013 - 03:12 AM

I thought coffee was ALWAYS safe, but learned the hard way that it can be CC'd in the same way that anything else can be!

Every time we went to the in-laws, we refused all food and I would volunteer to make the drinks so that I could inconspicuously wash the cups......and yet every time I would end up with all my glutening symptoms.

In CSI mode, lol, we quickly worked out what had happened. The coffee at hubby's parents is contaminated.....how? She likes to drink "Barleycup" and Horlicks, both are gluten containing drinks. It doesn't take much to work out that when she makes herself and her husband a drink, she puts one spoon of horlicks into a cup, then dips the same (dry) spoon into the coffee to make hubby a drink. Possibly, lots of times. Voila, coffee now laced with gluten. Pity I didn't think of that before......

 

Any chance of that happening?


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Obvious symptoms started as a baby with gastroenteritis....
Self - diagnosed celiac at age 41 - Gluten-free since December 2012, shortly after realised in needed to avoid:
Dairy, soy, all grains, all pseudo-grains, nightshades, legumes, MSG, xantham gum, all sugar alcohols.
Low sugar/refined carbs since Aug '08 due to reactive hypoglycemia.

22/03/13 Mung beans and blackeyebeans reintroduced successfully!

26/06/13 Some symptoms mysteriously returned - found loads of CC in my nuts and dried beans!! (verified by food/symptom journal and emails to companies)

26/11/13 After 2 weeks on crutches (again) realised that legumes cause my joints to inflame - it's undeniable....legumes gone!


#13 kareng

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Posted 27 June 2013 - 04:32 AM

I remember the Gevalia thing.  They just kept insisting they have gluten in their coffee even though they don't list it in the ingredients.  I think its probably like Starbucks - they don't test for gluten so they won't say gluten-free.  Doesn't mean there is any gluten in the coffee.

 

I drink starbucks and any other brands.  But if coffee is bothering you, for whatever reason, stop drinking it.


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#14 IrishHeart

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Posted 27 June 2013 - 05:01 AM

I drink plain, unflavored  coffee from DD, Starbucks, and just about any restaurant or friend's home  I have ever gone into and I have never had a problem. 

 

Gluten in coffee is extremely rare (those barley coffees are the exception) and if you look at the list from that first teenage blogger you posted, you'll notice he is listing many chocolate drinks, cocoa, etc. as having gluten.

That's not coffee, really.

 

More likely, the issue is your gut is bothering you from........ too much coffee! 8-10 cups is abrasive on the gut.

and acts as a diuretic.

 

Cut back......... and drink more water?   :)

 

The cross-reactivity thing is baseless nonsense and cc issues get overblown sometimes. People blame symptoms on gluten all the time, but sometimes things other than gluten are the cause. We can feel crappy from too much ice cream, sugar, wine, beans or caffeine for example.

 

Hope you feel better soon!


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#15 w8in4dave

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Posted 27 June 2013 - 08:45 AM

tea can be flavored  so stick with a brand that does not make you ill and always  ,always check the label

Ty so much!! I will look mine up!! I drink Cardemon  tea <-spelling , I usually buy it on line! I actually do think the brand I usually drink does have Gluten in it,(Now that I think about it) I usually run to rest room after drinking a couple of cups, always blamed it on Caffeine, Now I am out of that kind ,drinking something eles , lo and behold no running to the rest room!! I will def be investigating!! TY so much...


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