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Doctor's Note For My Trip?

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#1 Celtic Queen

 
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Posted 27 June 2013 - 12:29 PM

Hi all,

 

I used to post here quite a bit but have been off the boards for a while.  I have a question.  I am leaving for Poland in about a month.  It will be the first time I've travelled overseas since my diagnosis.  I am flying Lufthansa and have ordered my gluten free meal.  I also plan on packing some snacks to carry on the plane.  Do you think I should get a note from my doctor in case airport security gives me a hard time about my snacks?  The rules about what they accept on board seem to change daily and I have seen some personnel be much stricter than others about carry on items.

 

I've heard good things about Lufthansa's gluten-free meals, but I am worried that there could be a mix up.  And I don't want to be stuck on a plane without food.  DH doesn't want me to be stuck without food either, as I become very, very grumpy :(    Do you think having a doctor's note would help me, or should I even bother?

 

I'm not worried about the food when I get over there, as we'll be staying with some friends who can give us the skinny on where to eat. Plus the Polish Celiac Society has a free restaurant card in Polish on the English version of their website for visitors and I've printed a bunch of copies to hand to waiters.  It's mostly the plane ride that worries me.

 

What do you guys think?  Do you get a note from your doctor before you travel?  Or am I just being paranoid? :P


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Blood tested 8-11 positive, Biopsy 9-11 negative (long story, most gastro drs. are morons)

gluten-free 7-11, Dairy Free (mostly) 8-13 - Everything but butter.  Can't live life without butter....
 

DS - negative blood test, just diagnosed with ADD and other learning disorders, DNA test positive - high risk

Issues related to gluten: depression, low iron, hair loss, positive ana test for lupus, low vitamin D, headache, sinusitis, environmental allergies, brain fog, GI problems, weight gain....the list goes on....


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#2 kareng

 
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Posted 27 June 2013 - 01:57 PM

I have a note.  Its on the prescription pad.  I keep it in my wallet.  I have never had to use it.  I have offered it but never had to use it.  I say - get one.  It doesn't have to be fancy.  Mine is just a brief note that I have Celiac and must not eat wheat, rye and barley.  As those can be in many foods, I should bring my own food.  I just get the doc to make a new one every year, so the date isn't too old.  People may think that celiac disease gets healed.


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#3 IrishHeart

 
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Posted 27 June 2013 - 03:37 PM

I have a note.  Its on the prescription pad.  I keep it in my wallet.  I have never had to use it.  I have offered it but never had to use it.  I say - get one.  It doesn't have to be fancy.  Mine is just a brief note that I have Celiac and must not eat wheat, rye and barley.  As those can be in many foods, I should bring my own food.  I just get the doc to make a new one every year, so the date isn't too old.  People may think that celiac disease gets healed.

 

 

Same here. Note from GI doc..in my wallet. Never had to produce it, but I like to have it JIK.


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#4 kareng

 
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Posted 27 June 2013 - 03:42 PM

Same here. Note from GI doc..in my wallet. Never had to produce it, but I like to have it JIK.


Mine is from my primary care doctor. I bet my OB/ gym would write one, too if that was the next doc to see.
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santa-dance.gif

 

Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 


#5 IrishHeart

 
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Posted 27 June 2013 - 03:49 PM

Mine is from my primary care doctor. I bet my OB/ gym would write one, too if that was the next doc to see.

 

yes, I would think any one of your regular docs would be willing to write one. 


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#6 cyclinglady

 
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Posted 27 June 2013 - 05:02 PM

Wow!  How fun!  It's been a decade since I've been to Poland.  We have family and they live near Krakow (the village of Lisia Gora near Tarnow).  I'm hoping to take my daughter when she gets to High School.  Just received another email regarding the Wieliczka Salt Mines.  If you haven't  been there, you've got to go!  

 

 

 

Hummm.....I'm going to get a doctor's note to carry too.  


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#7 Dugudugu

 
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Posted 27 June 2013 - 09:15 PM

I think you don't have to worry about your snacks, it's the liquids you should be worried of. Everytime I fly, I travel with my gluten free snacks, and I passed quite a lot of very secure airports. Enjoy your stay!
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#8 Celtic Queen

 
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Posted 28 June 2013 - 06:46 AM

Wow!  How fun!  It's been a decade since I've been to Poland.  We have family and they live near Krakow (the village of Lisia Gora near Tarnow).  I'm hoping to take my daughter when she gets to High School.  Just received another email regarding the Wieliczka Salt Mines.  If you haven't  been there, you've got to go!  

 

 

 

Hummm.....I'm going to get a doctor's note to carry too.  

We are going to stay in Krakow and have been planning on going to the salt mines.  My husband saw them last time he was there and said they were a must see.  My must see thing is Auschwitz.  Not a pleasant tour, but I feel compelled to see it, especially since we'll be so close.  And I want to see the Schindler Museum.  Other than that, I'm game for visiting anything or anywhere in Poland.

 

I hope you get to take your daughter when she gets older.  It's great to be able to see family and your heritage.  DH and I honeymooned in Ireland and it was very special to me when I got to see the town my great grandfather was born in, even though it was a tiny hole in the wall with only a pub and a post office :D


  • 0

Blood tested 8-11 positive, Biopsy 9-11 negative (long story, most gastro drs. are morons)

gluten-free 7-11, Dairy Free (mostly) 8-13 - Everything but butter.  Can't live life without butter....
 

DS - negative blood test, just diagnosed with ADD and other learning disorders, DNA test positive - high risk

Issues related to gluten: depression, low iron, hair loss, positive ana test for lupus, low vitamin D, headache, sinusitis, environmental allergies, brain fog, GI problems, weight gain....the list goes on....


#9 Celtic Queen

 
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Posted 28 June 2013 - 06:49 AM

Okay, now I don't feel so paranoid for wanting to get a doctor's note.  Thanks for your help everyone.  I'm going to call the doctor's office and get one just to have on-hand.  Better safe than sorry.


  • 0

Blood tested 8-11 positive, Biopsy 9-11 negative (long story, most gastro drs. are morons)

gluten-free 7-11, Dairy Free (mostly) 8-13 - Everything but butter.  Can't live life without butter....
 

DS - negative blood test, just diagnosed with ADD and other learning disorders, DNA test positive - high risk

Issues related to gluten: depression, low iron, hair loss, positive ana test for lupus, low vitamin D, headache, sinusitis, environmental allergies, brain fog, GI problems, weight gain....the list goes on....


#10 IrishHeart

 
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Posted 28 June 2013 - 06:55 AM

.  DH and I honeymooned in Ireland and it was very special to me when I got to see the town my great grandfather was born in, even though it was a tiny hole in the wall with only a pub and a post office :D

 

Same here!! both my great grandmother and hub's grandparents --both sets--came from Ireland and we spent our honeymoon traipsing all over and seeing the counties they came from. We went back 3 more times, we loved Ireland so much..

 

BabsV--a member on here--lived in Poland for a while. 

She has not been very active lately, but she may see a PM if you send her one! She's a doll and may have some tips.

Just a thought!

 

Have a wonderful trip! :) 


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#11 Celtic Queen

 
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Posted 28 June 2013 - 07:01 AM

Thanks IrishHeart, I just sent her a PM.


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Blood tested 8-11 positive, Biopsy 9-11 negative (long story, most gastro drs. are morons)

gluten-free 7-11, Dairy Free (mostly) 8-13 - Everything but butter.  Can't live life without butter....
 

DS - negative blood test, just diagnosed with ADD and other learning disorders, DNA test positive - high risk

Issues related to gluten: depression, low iron, hair loss, positive ana test for lupus, low vitamin D, headache, sinusitis, environmental allergies, brain fog, GI problems, weight gain....the list goes on....


#12 IrishHeart

 
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Posted 28 June 2013 - 07:10 AM

Thanks IrishHeart, I just sent her a PM.

 

you bet, hon!


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#13 cyclinglady

 
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Posted 28 June 2013 - 07:50 AM

We are going to stay in Krakow and have been planning on going to the salt mines.  My husband saw them last time he was there and said they were a must see.  My must see thing is Auschwitz.  Not a pleasant tour, but I feel compelled to see it, especially since we'll be so close.  And I want to see the Schindler Museum.  Other than that, I'm game for visiting anything or anywhere in Poland.

 

I hope you get to take your daughter when she gets older.  It's great to be able to see family and your heritage.  DH and I honeymooned in Ireland and it was very special to me when I got to see the town my great grandfather was born in, even though it was a tiny hole in the wall with only a pub and a post office :D

Yes, you must visit  Oswiecimiu.  My husband's family is there.   They lived just outside the walls of the original camp.  If you tried to help you were killed.  To hear their account was horrifying! In Tarnow, my Great Aunt's husband was in the resistance and "disappeared" early on.  Her parents hid her in the cellar, along with her baby, since the Nazi's were rounding up young women to work as housekeepers in Germany (aka slaves).  

 

We plan on going to Great Britain in two years (daughter is a fan of Harry Potter).  We'll visit Ireland.  Both my hubby and I  have a little Irish in us, but I don't think there is any family that we can trace.  

 

It's been fun chatting about this!


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Non-functioning Gall bladder Removal Surgery 2005
Diagnosed via Blood Test and Endoscopy: March 2013
Hashimoto's Thyroiditis -- Stable 2014
Anemia -- Resolved
Fractures (vertebrae): June 2013
Osteopenia/osteoporosis -- June 2013
Allergies and Food Intolerances
Diabetes -- January 2014




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#14 love2travel

 
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Posted 28 June 2013 - 11:20 AM

My doctor's note has never been used, either. I use restaurant cards in the language of the country as well as memorize words in that language for things such as wheat, barley, rye, oats, gluten, etc. This comes in handy with label reading in the shops. We travel internationally regularly and have never had problems with snacks.

Lufthansa does not have the greatest gluten free meals. They are sort of alright. My last one was in May. Let's just say I had to pull out my snacks. Just be prepared for that possibility as well as flight delays which always happen to us at Frankfurt. I have not been to Poland yet but have been to tons of other European countries and have always eaten safely. Don't worry about it much - go and ENJOY!!!

Contact Lufthansa again the day before you leave. A few trips ago they did not have my special meal on a very long flight. Thankfully I was prepared.
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#15 IrishHeart

 
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Posted 28 June 2013 - 11:36 AM

I'd have some GoPicnics with me on the flight.


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif






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