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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Doctor's Note For My Trip?
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19 posts in this topic

Hi all,

 

I used to post here quite a bit but have been off the boards for a while.  I have a question.  I am leaving for Poland in about a month.  It will be the first time I've travelled overseas since my diagnosis.  I am flying Lufthansa and have ordered my gluten free meal.  I also plan on packing some snacks to carry on the plane.  Do you think I should get a note from my doctor in case airport security gives me a hard time about my snacks?  The rules about what they accept on board seem to change daily and I have seen some personnel be much stricter than others about carry on items.

 

I've heard good things about Lufthansa's gluten-free meals, but I am worried that there could be a mix up.  And I don't want to be stuck on a plane without food.  DH doesn't want me to be stuck without food either, as I become very, very grumpy :(    Do you think having a doctor's note would help me, or should I even bother?

 

I'm not worried about the food when I get over there, as we'll be staying with some friends who can give us the skinny on where to eat. Plus the Polish Celiac Society has a free restaurant card in Polish on the English version of their website for visitors and I've printed a bunch of copies to hand to waiters.  It's mostly the plane ride that worries me.

 

What do you guys think?  Do you get a note from your doctor before you travel?  Or am I just being paranoid? :P

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I have a note.  Its on the prescription pad.  I keep it in my wallet.  I have never had to use it.  I have offered it but never had to use it.  I say - get one.  It doesn't have to be fancy.  Mine is just a brief note that I have Celiac and must not eat wheat, rye and barley.  As those can be in many foods, I should bring my own food.  I just get the doc to make a new one every year, so the date isn't too old.  People may think that celiac disease gets healed.

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I have a note.  Its on the prescription pad.  I keep it in my wallet.  I have never had to use it.  I have offered it but never had to use it.  I say - get one.  It doesn't have to be fancy.  Mine is just a brief note that I have Celiac and must not eat wheat, rye and barley.  As those can be in many foods, I should bring my own food.  I just get the doc to make a new one every year, so the date isn't too old.  People may think that celiac disease gets healed.

 

 

Same here. Note from GI doc..in my wallet. Never had to produce it, but I like to have it JIK.

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Same here. Note from GI doc..in my wallet. Never had to produce it, but I like to have it JIK.

Mine is from my primary care doctor. I bet my OB/ gym would write one, too if that was the next doc to see.

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Mine is from my primary care doctor. I bet my OB/ gym would write one, too if that was the next doc to see.

 

yes, I would think any one of your regular docs would be willing to write one. 

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Wow!  How fun!  It's been a decade since I've been to Poland.  We have family and they live near Krakow (the village of Lisia Gora near Tarnow).  I'm hoping to take my daughter when she gets to High School.  Just received another email regarding the Wieliczka Salt Mines.  If you haven't  been there, you've got to go!  

 

 

 

Hummm.....I'm going to get a doctor's note to carry too.  

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I think you don't have to worry about your snacks, it's the liquids you should be worried of. Everytime I fly, I travel with my gluten free snacks, and I passed quite a lot of very secure airports. Enjoy your stay!

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Wow!  How fun!  It's been a decade since I've been to Poland.  We have family and they live near Krakow (the village of Lisia Gora near Tarnow).  I'm hoping to take my daughter when she gets to High School.  Just received another email regarding the Wieliczka Salt Mines.  If you haven't  been there, you've got to go!  

 

 

 

Hummm.....I'm going to get a doctor's note to carry too.  

We are going to stay in Krakow and have been planning on going to the salt mines.  My husband saw them last time he was there and said they were a must see.  My must see thing is Auschwitz.  Not a pleasant tour, but I feel compelled to see it, especially since we'll be so close.  And I want to see the Schindler Museum.  Other than that, I'm game for visiting anything or anywhere in Poland.

 

I hope you get to take your daughter when she gets older.  It's great to be able to see family and your heritage.  DH and I honeymooned in Ireland and it was very special to me when I got to see the town my great grandfather was born in, even though it was a tiny hole in the wall with only a pub and a post office :D

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Okay, now I don't feel so paranoid for wanting to get a doctor's note.  Thanks for your help everyone.  I'm going to call the doctor's office and get one just to have on-hand.  Better safe than sorry.

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.  DH and I honeymooned in Ireland and it was very special to me when I got to see the town my great grandfather was born in, even though it was a tiny hole in the wall with only a pub and a post office :D

 

Same here!! both my great grandmother and hub's grandparents --both sets--came from Ireland and we spent our honeymoon traipsing all over and seeing the counties they came from. We went back 3 more times, we loved Ireland so much..

 

BabsV--a member on here--lived in Poland for a while. 

She has not been very active lately, but she may see a PM if you send her one! She's a doll and may have some tips.

Just a thought!

 

Have a wonderful trip! :) 

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Thanks IrishHeart, I just sent her a PM.

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Thanks IrishHeart, I just sent her a PM.

 

you bet, hon!

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We are going to stay in Krakow and have been planning on going to the salt mines.  My husband saw them last time he was there and said they were a must see.  My must see thing is Auschwitz.  Not a pleasant tour, but I feel compelled to see it, especially since we'll be so close.  And I want to see the Schindler Museum.  Other than that, I'm game for visiting anything or anywhere in Poland.

 

I hope you get to take your daughter when she gets older.  It's great to be able to see family and your heritage.  DH and I honeymooned in Ireland and it was very special to me when I got to see the town my great grandfather was born in, even though it was a tiny hole in the wall with only a pub and a post office :D

Yes, you must visit  Oswiecimiu.  My husband's family is there.   They lived just outside the walls of the original camp.  If you tried to help you were killed.  To hear their account was horrifying! In Tarnow, my Great Aunt's husband was in the resistance and "disappeared" early on.  Her parents hid her in the cellar, along with her baby, since the Nazi's were rounding up young women to work as housekeepers in Germany (aka slaves).  

 

We plan on going to Great Britain in two years (daughter is a fan of Harry Potter).  We'll visit Ireland.  Both my hubby and I  have a little Irish in us, but I don't think there is any family that we can trace.  

 

It's been fun chatting about this!

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My doctor's note has never been used, either. I use restaurant cards in the language of the country as well as memorize words in that language for things such as wheat, barley, rye, oats, gluten, etc. This comes in handy with label reading in the shops. We travel internationally regularly and have never had problems with snacks.

Lufthansa does not have the greatest gluten free meals. They are sort of alright. My last one was in May. Let's just say I had to pull out my snacks. Just be prepared for that possibility as well as flight delays which always happen to us at Frankfurt. I have not been to Poland yet but have been to tons of other European countries and have always eaten safely. Don't worry about it much - go and ENJOY!!!

Contact Lufthansa again the day before you leave. A few trips ago they did not have my special meal on a very long flight. Thankfully I was prepared.

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I'd have some GoPicnics with me on the flight.

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Yeah, I was going to pack some GoPicnics and a bunch of Larabars and Kind Bars.  Plus I was going to lurk on the "Favorite Emergency Food" thread to get some ideas of a few other things.

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Jif to go cups and crackers are good too !!  yes, go check that thread!!  :) good stuff!!

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I have a dr note and had to use it once on a flight from Washington to idaho (can you believe that!!).  Handy to have.

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I just flew El Al to Israel and got stopped both ways due to the food in my carry on. they were going to take it away, I got out my note, and they let it go. I am so glad I had the note with me.

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