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Am I Super Sensitive Or Just Recovering?
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I am 15 and was diagnosed with celiac disease about a month ago. I am pretty sure I am not eating gluten for about half a month now except maybe for those under 20 ppm little bits. I have gas almost every day but it varies on the intensity and lately it has decreased. Sooo, my question is: is the gas because i am super sensitive to gluten and because I eat those little bits and they add up to give me gas or is it just because my villi haven't healed a lot and that is the cause??? I really don't know so any help would be greatly appreciated if maybe someone had this same situation? Also if I do a blood test for antibodies and the results come back close to the norm then does it prove that my villi are healing and I am gluten free?

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2 weeks gluten-free isn't enough time to get the diet right, much less heal up. Give it some time. Are you still eating dairy? You might want to cut it out for a month or 2. The damaged villi is the part that digests dairy so it can cause gas and bloating because they aren't getting digested.

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There isn't an easy way to tell if you are super sensitive or not.  A month isn't very long at all for healing.  You could reduce some of those processed things.  You can always try adding them back later.   I hope you feel better soon.  It is hard to try to do well in high school while sick all the time.  My super sensitive son is 16 and I see that with him.

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2 weeks gluten-free isn't enough time to get the diet right, much less heal up. Give it some time. Are you still eating dairy? You might want to cut it out for a month or 2. The damaged villi is the part that digests dairy so it can cause gas and bloating because they aren't getting digested.

 

I am eating dairy but I just can't cut it out. I will literally have nothing to eat. But anyway thanks for the info about dairy maybe being the cause of the gas. I will keep that in mind.

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There isn't an easy way to tell if you are super sensitive or not.  A month isn't very long at all for healing.  You could reduce some of those processed things.  You can always try adding them back later.   I hope you feel better soon.  It is hard to try to do well in high school while sick all the time.  My super sensitive son is 16 and I see that with him.

 

Thanks for the info and support. I think I may try to stop eating the 20 ppm foods but that makes my choice of food even slimmer. Anyway glad to see that I'm not alone.

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I am eating dairy but I just can't cut it out. I will literally have nothing to eat. But anyway thanks for the info about dairy maybe being the cause of the gas. I will keep that in mind.

Why would you have nothing to eat? BBQ chicken, chili, salads, veggies, fruits, meats, hot dogs, , PB on anything, stir fry, nuts, potatoes, Ore Ida fries, rice, beans, refried beans and tortilla chips, guacamole, etc.

I realize you are a kid, but surely your parents realize you were diagnosed with a real illness and would help you with food?

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Why would you have nothing to eat? BBQ chicken, chili, salads, veggies, fruits, meats, hot dogs, , PB on anything, stir fry, nuts, potatoes, Ore Ida fries, rice, beans, refried beans and tortilla chips, guacamole, etc.

I realize you are a kid, but surely your parents realize you were diagnosed with a real illness and would help you with food?

My parents do help me a lot but making alot of that food and or buying it is a challenge for my mom and with my dad at work almost all day and barely sleeping. There are 3 other kids besides me. One who is disabled with a undiagnosed neurological disease and me and my younger brother both with type 1 diabetes. So my mom is always busy but she helps me alot with food but basically half my diet has dairy and alot of stuff you listed has little or no carbs and my problem is trying to find gluten free food with carbs that it quick to make.

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You can learn a lot about cooking on the internet.  It actually doesn't take that much longer to make a rice stir fry from fresh produce than it does to prepare it from a box.  You just need to get used to the routine.  My 16 year old son cooks up our veggies while I make the rice and he does a great job.

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You can learn a lot about cooking on the internet.  It actually doesn't take that much longer to make a rice stir fry from fresh produce than it does to prepare it from a box.  You just need to get used to the routine.  My 16 year old son cooks up our veggies while I make the rice and he does a great job.

Thanks for your advice. I actually can cook but not that well. I will try and practice more and more. I guess it's just another routine I have to learn.

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My parents do help me a lot but making alot of that food and or buying it is a challenge for my mom and with my dad at work almost all day and barely sleeping. There are 3 other kids besides me. One who is disabled with a undiagnosed neurological disease and me and my younger brother both with type 1 diabetes. So my mom is always busy but she helps me alot with food but basically half my diet has dairy and alot of stuff you listed has little or no carbs and my problem is trying to find gluten free food with carbs that it quick to make.

Just wanted offer HUGS! that can't be an easy situation. I grew up with preoccupied parents for different reasons, but either way it's difficult and a lot of burden. I think that's incredible they still try to offer support with all they have going on, and kudos to you for recognizing all they are handling even though I'm sure it's tough for you. I'm not a huge fan of cooking for the sake of cooking so the idea of spending half my day in the kitchen is not my idea of a good time. I have found some fairly simple things I enjoy that don't take forever. I love rice and potatoes and once ehy are boiling on stove there is little intervention needed. Sometimes I take a big pacakge of hamburger and just mix it with the big pot of rice and spinach and I have so many leftovers it's ridiculous :) I do all natural lunch meat (gluten-free) they have some prepackaged ones that keep for a long time so i stock up once a month and do turkey/roastbeef and a slice of tomato, roll it up and enjoy. not glamorous but gluten-free bread is rather a pain and I prefer simple to spending so much per loaf. chiicken tenderloins can be thrown in the oven and pretty much ignored till they are done. rolled oats gluten-free are sold at walmart. Chex cereal is awesome just to munch on for a snack (cinnamon flavor). nuts are awesome to snack on, gluten-free, brown rice pasta I got from walmart was good and a gluten-free pasta sauce, or I mix the brown rice pasta with a veggie(walmart has some cheap frozen veggies I microwave and they are ready). Alot of the above is no more difficult that doing a boxed meal and it's so much easy to do gluten-free with pure ingredients as opposed to the label reading and searching involved required for some of these boxed things. I know for me I hate the label reading and laborous searching and have settle for fresh ingredients I know are naturally gluten-free. If you have a smart phone there is a decent gluten-free scanner. It doesn't have everything but it has a lot and when I'm shopping it tells me if something is gluten-free or not, also GFoverflow.com have a good list of things. Progresso also has some gluten-free soups that are quick to make obviously.

 

Good luck to you and to your family!

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Just wanted offer HUGS! that can't be an easy situation. I grew up with preoccupied parents for different reasons, but either way it's difficult and a lot of burden. I think that's incredible they still try to offer support with all they have going on, and kudos to you for recognizing all they are handling even though I'm sure it's tough for you. I'm not a huge fan of cooking for the sake of cooking so the idea of spending half my day in the kitchen is not my idea of a good time. I have found some fairly simple things I enjoy that don't take forever. I love rice and potatoes and once ehy are boiling on stove there is little intervention needed. Sometimes I take a big pacakge of hamburger and just mix it with the big pot of rice and spinach and I have so many leftovers it's ridiculous :) I do all natural lunch meat (gluten-free) they have some prepackaged ones that keep for a long time so i stock up once a month and do turkey/roastbeef and a slice of tomato, roll it up and enjoy. not glamorous but gluten-free bread is rather a pain and I prefer simple to spending so much per loaf. chiicken tenderloins can be thrown in the oven and pretty much ignored till they are done. rolled oats gluten-free are sold at walmart. Chex cereal is awesome just to munch on for a snack (cinnamon flavor). nuts are awesome to snack on, gluten-free, brown rice pasta I got from walmart was good and a gluten-free pasta sauce, or I mix the brown rice pasta with a veggie(walmart has some cheap frozen veggies I microwave and they are ready). Alot of the above is no more difficult that doing a boxed meal and it's so much easy to do gluten-free with pure ingredients as opposed to the label reading and searching involved required for some of these boxed things. I know for me I hate the label reading and laborous searching and have settle for fresh ingredients I know are naturally gluten-free. If you have a smart phone there is a decent gluten-free scanner. It doesn't have everything but it has a lot and when I'm shopping it tells me if something is gluten-free or not, also GFoverflow.com have a good list of things. Progresso also has some gluten-free soups that are quick to make obviously.

 

Good luck to you and to your family!

wow! its like you've read my mind lol. I eat almost all of what you listed. The soup, rice, potatoes, chex, walmart gluten-free pasta, etc. Thanks for ur support and I am really lucky I have such great parents.

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wow! its like you've read my mind lol. I eat almost all of what you listed. The soup, rice, potatoes, chex, walmart gluten-free pasta, etc. Thanks for ur support and I am really lucky I have such great parents.

 

:D :D :D no prob, support should always be free :) hugs for mom and dad too! haha

 

I am such a creature of habit so thankfully it's not the end of the world!

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:D :D :D no prob, support should always be free :) hugs for mom and dad too! haha

 

I am such a creature of habit so thankfully it's not the end of the world!

ikr, well i will let u know if i have anymore questions and thanks again for ur help

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Hello,

 

At first...sorry for my pretty bad English..;i'm french and mum of a 12 years old girl we just diagnosticated coeliac ( 2 months ago).

She always had stomach pains but now she is on  Gluten free diet...it continues...She doen't have any willi left...I just hope it's because we have to wait some more before knowing the goog effects of this really strict diet!

This forum seems very interesting...i'm just starting reading ! and performing my English writting at the same time !!!

A bientot

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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