I have been gluten-free (but not super strict) for almost 12 months. I know I have issues with gluten, but I tested negative for Celiac in a previous blood test...does this definitely mean I don't have Celiac?
When I do (on rare occasions) regrettably eat wheat, I get the following:
- peeling/flaking skin on my temples and scalp
- aching knee joints when going up stairs
- what might be blood in my stools - it is deep rusty color, so hard to tell
- sometimes slight stomach discomfort, but pretty mild
- sometimes stomach bloating
- feeling very fatigued (suspect this could be tied to the possible blood in stools?)
I generally have the following (whether avoiding gluten or not)
- thyroid tends to hypo side but seems to respond well if I take care of it and eat well, rest etc, and take a tiny amount of Lugol's
- anemic - to the point where I used to pass out when I had peroids
- anemia also caused my periods to be monstrous - enormous clots the size of an orange, severe fatigue and brain fog etc
- chronic constipation
- ADD/brain fog
- prone to candida
- had childhood eczema - it is now confined only to my ear canals, which itch terribly on occasion
When I ate wheat regularly I was an absolute addict...I loved and craved the stuff, and felt "empty" without it in every single meal. When I first stopped wheat my stomach growled a lot! I also experience a lot of bloating and lower abdominal discomfort when I eat wheat regularly, but for the odd infraction I seem to be okay in that regard.
Is it possible I have Celiac and it was missed somehow? Or are these symptoms also pretty typical of an intolerance? My mother also can't tolerate wheat (but also tested negative for Celiac with a blood test), and on my maternal side we have diabetes, chronic fatigue, MS and cystic fibrosis. Not sure which of those are linked if any, but I understand genetics play a role. My kids also both have severe and chronic eczema which is the misery of our lives.
Would love feedback and whether testing is something worth pursuing in our case!